Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,682 public posts
Filter results
Studies about Biliary Atresia
It is known that neither Kasai procedure nor liver transplantation is a permanent cure of Biliary atresia. And medical treatment is also very limited (URSO, some antibiotic to prevent Colengetisis etc) and they are also not cure. Liver keeps suffering most of the time. I know first sentences may break
It is known that neither Kasai procedure nor liver transplantation is a permanent cure of Biliary atresia. And medical treatment is also very limited (URSO, some antibiotic to prevent Colengetisis etc) and they are also not cure. Liver keeps suffering most of the time. I know first sentences may break
Pearon
in
Children's Liver Disease Foundation
4 years ago
Roid Rage!
My husband had a kidney transplant 3 months ago and the past 3 months have been very difficult for me as a wife and caretaker because of his irritability and short temper, which I am attributing to the Prednisone. The dosage has decreased quite a bit, but this still seems to be an issue. Has anyone
My husband had a kidney transplant 3 months ago and the past 3 months have been very difficult for me as a wife and caretaker because of his irritability and short temper, which I am attributing to the Prednisone. The dosage has decreased quite a bit, but this still seems to be an issue. Has anyone
transwife
in
Kidney Transplant
4 years ago
Healthy New Year’s Checklist for People with Kidney Disease
For those of you on Original Medicare, you know that at the beginning of each year you are advised about a Wellness Check that OM will cover. For those of you who have other insurance you may or may not receive something similar. In any case, I thought this checklist would be valuable for all to see
For those of you on Original Medicare, you know that at the beginning of each year you are advised about a Wellness Check that OM will cover. For those of you who have other insurance you may or may not receive something similar. In any case, I thought this checklist would be valuable for all to see
Hidden
in
Kidney Disease
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
4 years ago
Husband on the transplant list
My husband is on the lung transplant list here in the UK which is wonderful. We know it could be a long wait and we are ok with that but I am struggling to keep going with “normal” life. I would like to 100% focus on my husband and family but need to work until the call comes to afford the time off to
My husband is on the lung transplant list here in the UK which is wonderful. We know it could be a long wait and we are ok with that but I am struggling to keep going with “normal” life. I would like to 100% focus on my husband and family but need to work until the call comes to afford the time off to
Thomac
in
Care Community
4 years ago
Parents Advisory Board
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic
stem
cell
transplant
(allo-HSCT) to gain insight and better understanding into
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic
stem
cell
transplant
(allo-HSCT) to gain insight and better understanding into
fightald
Administrator
in
Parents of ALD Newborns
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
4 years ago
Sickle Cell Trait and menstrual cycle
For years I suffered from fainting and blackouts right before or during my periods. I recently met another woman who had a similar experience and she mentioned that it was because she has the sickle cell trait. I am wondering if this has happened to anyone else?
For years I suffered from fainting and blackouts right before or during my periods. I recently met another woman who had a similar experience and she mentioned that it was because she has the sickle cell trait. I am wondering if this has happened to anyone else?
MsLady0
in
Sickle Cell Society
4 years ago
Where can I buy Vitamin B complex for intramuscular injections
Hi, just wanting some advise please. I was ill whilst in South Africa last year and was given Vitamin B complex injections as part of my wellness plan. I was given the bottle with the remaining doses to bring back to the UK. I have been getting this injected regularly from a pharmacist thats qualified
Hi, just wanting some advise please. I was ill whilst in South Africa last year and was given Vitamin B complex injections as part of my wellness plan. I was given the bottle with the remaining doses to bring back to the UK. I have been getting this injected regularly from a pharmacist thats qualified
Volta
in
Pernicious Anaemia Society
4 years ago
Hello!
I don’t know if anyone remembers me but I was around last year asking for help regarding my husband who had cirrhosis. I just wanted to update and say thank you so so much for all of your help. I learned so much and you all helped me stay sane. He received a liver transplant Sept 23 2019 and is doing
I don’t know if anyone remembers me but I was around last year asking for help regarding my husband who had cirrhosis. I just wanted to update and say thank you so so much for all of your help. I learned so much and you all helped me stay sane. He received a liver transplant Sept 23 2019 and is doing
Mywildlove
in
British Liver Trust
4 years ago
Urea and Electrolytes
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
prunus
in
PMRGCAuk
4 years ago
A Welcome, to Other Friends
I have just visited the Vasculitis Forum, on here, there was a question on Kidney Transplantation. I direct the person here indicating that, both I, and 'Others' would assist her. I, fully expect, this to Re-direct, a number- of 'Folk'- from this other Forum, which is in fact, my 'Home' Forum, as I have
I have just visited the Vasculitis Forum, on here, there was a question on Kidney Transplantation. I direct the person here indicating that, both I, and 'Others' would assist her. I, fully expect, this to Re-direct, a number- of 'Folk'- from this other Forum, which is in fact, my 'Home' Forum, as I have
AndrewT
in
Kidney Transplant
4 years ago
Any decline in kidney function after changing from prograf to adoport
Hi my husband has a kidney transplant just over 6 years ago. He had his sisters kidney. He was changed in the spring from prograf to adoport. Since then his kidney function seems to be declining. Has anyone else found this the case as well. He was perfectly fine before
Hi my husband has a kidney transplant just over 6 years ago. He had his sisters kidney. He was changed in the spring from prograf to adoport. Since then his kidney function seems to be declining. Has anyone else found this the case as well. He was perfectly fine before
Ashlee1103
in
Kidney Transplant
4 years ago
Liver Transplant / Transition
Hello Everyone, my daughter has had a liver transplant at the Birmingham Children's Hospital. She is seventeen years old and will be moving to the adult's clinic at the Queen Elizabeth Hospital in March 2020. I am, concerned with the transition and she is also scared with all the changes. My main concern
Hello Everyone, my daughter has had a liver transplant at the Birmingham Children's Hospital. She is seventeen years old and will be moving to the adult's clinic at the Queen Elizabeth Hospital in March 2020. I am, concerned with the transition and she is also scared with all the changes. My main concern
Passion123456
in
Children's Liver Disease Foundation
4 years ago
Kidney Transplant /Dialysis
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed to outrun most of the nasty effects of Vasculitis but I fear the disease is finally catching up with me. I went to my regular quarterly review/
gibson100
in
Vasculitis UK
4 years ago
High anxiety- husband needs 2nd liver transplant
The anxiety from waiting and wondering is astounding and debilitating.
The anxiety from waiting and wondering is astounding and debilitating.
Lipstick2020
in
Anxiety and Depression Support
4 years ago
What is the Immuno Bill & what can YOU do about it?
CURRENTLY… - If a kidney recipient has Medicare at time of transplant, and Medicare pays for the transplant, his/her immuno meds are covered under Medicare Part B - This medication coverage expires at 36 months unless he/she is disabled or > 65 y/o (expecting that the recipient will obtain health insurance
CURRENTLY… - If a kidney recipient has Medicare at time of transplant, and Medicare pays for the transplant, his/her immuno meds are covered under Medicare Part B - This medication coverage expires at 36 months unless he/she is disabled or > 65 y/o (expecting that the recipient will obtain health insurance
IzabellaDOnofrio
Administrator
in
Power2Save Transplant Community
4 years ago
Blood traces in urine after 1 year post kidney transplant
I m having blood traces in my urine after 1 year of kidney transplant.. Any thing to worry ?? Or it will go it's own ?? Any one face it plz suggest ...
I m having blood traces in my urine after 1 year of kidney transplant.. Any thing to worry ?? Or it will go it's own ?? Any one face it plz suggest ...
Ish123
in
Kidney Transplant
4 years ago
Headaches and dizziness
I'm almost a year from my kidney transplant, and have begun to have headaches and dizzy spells, especially after sleeping a while. Will this get better? I feel like someone that's had too much to drink when the dizzy spells start.
I'm almost a year from my kidney transplant, and have begun to have headaches and dizzy spells, especially after sleeping a while. Will this get better? I feel like someone that's had too much to drink when the dizzy spells start.
kimosabi1961
in
Kidney Transplant
4 years ago
Medical people ignoring "minor" problem
Renal transplant since 2007. Question about getting medical people to help with a "minor problem". Dr. And nurses (including my wife) seem to ignore my questions about a yeast skin infection I've have had for years. No, that's not an exageration. How do I get them to pay attention? I'm pretty close to
Renal transplant since 2007. Question about getting medical people to help with a "minor problem". Dr. And nurses (including my wife) seem to ignore my questions about a yeast skin infection I've have had for years. No, that's not an exageration. How do I get them to pay attention? I'm pretty close to
Okum
in
Kidney Transplant
4 years ago
1
...
69
70
71
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
695 results
Lung Conditions Community Forum
458 results
Kidney Transplant
420 results
View top 10 communities
Sort by
Most Relevant
Newest