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Stem cell and bone marrow transplants
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Waking after neurotoxicity
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after
Stem
Cell
Transplant
. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks.
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after
Stem
Cell
Transplant
. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks.
skatergirl
in
ICUsteps
6 years ago
Seriously questioning my doctor, need your advice!
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
Lgriffis
in
Early CKD Support
6 years ago
High ALP levels post transplant - help any advice?
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
Kimlescam
in
British Liver Trust
6 years ago
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Second transplant
I am 34 and about 3 years ago received my second kidney Transplant. My first when I was 20. I have yet to meet anyone with a kidney transplant let alone 2 and at my age. It’s hard to find friends to relate to what I go through on a day to day let alone when I get sick. Just wondering if anyone deals
I am 34 and about 3 years ago received my second kidney Transplant. My first when I was 20. I have yet to meet anyone with a kidney transplant let alone 2 and at my age. It’s hard to find friends to relate to what I go through on a day to day let alone when I get sick. Just wondering if anyone deals
Universalmatchs
in
Kidney Transplant
6 years ago
Put on weight!
I need your advice! My daughter is putting on weight after she had her kidney transplant, without eating much! She is eating same food she use to eat before and now she continusly put on weight! Any advices/ recommendations very welcomed!!!she is 3 months post transplant
I need your advice! My daughter is putting on weight after she had her kidney transplant, without eating much! She is eating same food she use to eat before and now she continusly put on weight! Any advices/ recommendations very welcomed!!!she is 3 months post transplant
Skevi
in
Kidney Transplant Patient Support
6 years ago
Do you know how sickle cell started?
I have read scientists believe that sickle cell started during slavery. This is why black/African Americans are born with the disease more than any other race. During slavery the owners of African people would withhold drinking water from the slaves as a form of hatred and of punishment. Without water
I have read scientists believe that sickle cell started during slavery. This is why black/African Americans are born with the disease more than any other race. During slavery the owners of African people would withhold drinking water from the slaves as a form of hatred and of punishment. Without water
Hidden
in
Sickle Cell Society
6 years ago
Volunteers needed to help with our first liver screening project
Every organization needs volunteers. We are doing a pilot research study in Houston using FibroScan screening for unidentified fatty liver (NAFLD AND NASH) liver disease. These diseases are usually silent and people often become ill before they learn that their liver is damaged. Our goal is to provide
Every organization needs volunteers. We are doing a pilot research study in Houston using FibroScan screening for unidentified fatty liver (NAFLD AND NASH) liver disease. These diseases are usually silent and people often become ill before they learn that their liver is damaged. Our goal is to provide
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
Molecular Improvement – Exercise, & Dietary Regime or Medication(?)
. :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic
Stem
Cell
Transplant
(ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as my CALR Type2.
. :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic
Stem
Cell
Transplant
(ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as my CALR Type2.
socrates_8
in
MPN Voice
6 years ago
Relapsed DLBCL
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Clementslr
in
Non Hodgkin's Lymphoma Friends
6 years ago
Diabetes and lung transplant
Hi does anyone on the transplant list have diabetes? Or post transplant with diabetes before transplant? My husband is waiting on an assessment appointment but today found out that he may have diabetes, really worried that this may mean he in not suitable for transplant.
Hi does anyone on the transplant list have diabetes? Or post transplant with diabetes before transplant? My husband is waiting on an assessment appointment but today found out that he may have diabetes, really worried that this may mean he in not suitable for transplant.
Thomac
in
Lung Conditions Community Forum
6 years ago
Sickle cell and menstruation
I know someone who is sickle cell anaemic, but her menstruation is not regular and when it does come it trickles and there's no use for a sanitary pad. The problem is she's worried that this means she isn't fertile since her menstruation isn't normal. But I read somewhere that the flow isn't much cos
I know someone who is sickle cell anaemic, but her menstruation is not regular and when it does come it trickles and there's no use for a sanitary pad. The problem is she's worried that this means she isn't fertile since her menstruation isn't normal. But I read somewhere that the flow isn't much cos
Tyrose
in
Sickle Cell Society
6 years ago
Any liver transplant folks in Houston who would like to help educate people as part of a screening project for undiagnosed liver disease?
We are going to be screening high risk but asymptomatic patients in Houston as part of a research study. We need a couple of people with knowledge of liver disease to explain things to patients taking part. We plan to start October 1st and run for 3 months.
We are going to be screening high risk but asymptomatic patients in Houston as part of a research study. We need a couple of people with knowledge of liver disease to explain things to patients taking part. We plan to start October 1st and run for 3 months.
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
Kidney transplant
Ive got an 19 years old girl , mma mut 0 , with this genetic disorder, and its been now three months we had a kidney transplant! Her father gave her a kidney! We are living in Cyprus, a Greek island in the Mediterranean! We are the olny one with this rare condition, called methylmalonic acidemia mut
Ive got an 19 years old girl , mma mut 0 , with this genetic disorder, and its been now three months we had a kidney transplant! Her father gave her a kidney! We are living in Cyprus, a Greek island in the Mediterranean! We are the olny one with this rare condition, called methylmalonic acidemia mut
Skevi
in
Kidney Transplant
6 years ago
Severe Joint Swelling And Pain
I am 10 1/2 post kidney transplant. My meds now include Myforic. This was recently added as they try to reduce and possibly eliminate the steroids (Prednisone and Tacro). I now am experiencing extreme joint pain, especially in my fingers on both hands. I presently cannot golf because gripping the golf
I am 10 1/2 post kidney transplant. My meds now include Myforic. This was recently added as they try to reduce and possibly eliminate the steroids (Prednisone and Tacro). I now am experiencing extreme joint pain, especially in my fingers on both hands. I presently cannot golf because gripping the golf
kidneytransplan
in
Kidney Transplant Patient Support
6 years ago
Kidney transplant in an mma patient
Im a mum of a 19years old girl, with mma mut 0 and she recently had a kidney transplant, from her father! Things went well!!how long does it take to recover? She is so scared, stressed, tired,! When she will be able to have her life back? She is 3 months post transplant!
Im a mum of a 19years old girl, with mma mut 0 and she recently had a kidney transplant, from her father! Things went well!!how long does it take to recover? She is so scared, stressed, tired,! When she will be able to have her life back? She is 3 months post transplant!
Skevi
in
Power2Save Transplant Community
6 years ago
This is love!!!
When your almost nine year old daughter rubs arnica oil on both 10 inch scars on your back every night after a lung transplant. What a trooper. That lass has been thru hell and back
When your almost nine year old daughter rubs arnica oil on both 10 inch scars on your back every night after a lung transplant. What a trooper. That lass has been thru hell and back
Hidden
in
Lung Conditions Community Forum
6 years ago
10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL
You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-
stem
-
cell
-
transplant
-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since then I have tried twice more for a home run. Stay strong. We are in this together. Brian
You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-
stem
-
cell
-
transplant
-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since then I have tried twice more for a home run. Stay strong. We are in this together. Brian
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Quality of Life of Transplant vs PD
I am a 65 year old married male with two adult children and two grand children. I have been on PD for about nine months and found it NOT to be a significant burden. I am contemplating going on the Kidney Transplant waiting list. I am interested in input on Life Style Positives and Negatives of transplant
I am a 65 year old married male with two adult children and two grand children. I have been on PD for about nine months and found it NOT to be a significant burden. I am contemplating going on the Kidney Transplant waiting list. I am interested in input on Life Style Positives and Negatives of transplant
65_and_wondering
in
Kidney Transplant Patient Support
6 years ago
Quality of Life
I am a 65 year old married male with two adult children and two grand children. I have been on PD for about nine months and found it NOT to be a significant burden. I am contemplating going on the Kidney Transplant waiting list. I am interested in input on Quality of Life Positives and Negatives of transplant
I am a 65 year old married male with two adult children and two grand children. I have been on PD for about nine months and found it NOT to be a significant burden. I am contemplating going on the Kidney Transplant waiting list. I am interested in input on Quality of Life Positives and Negatives of transplant
65_and_wondering
in
Kidney Dialysis
6 years ago
Could this be PMR or Steroid side effect ?
I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had a very strenuous and stressful day on Saturday, going to a funeral and driving home took nearly 2 hours. The longest journey I have done for 3 years is about 15/20 minutes. When I got home I was so tired I needed a rest
I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had a very strenuous and stressful day on Saturday, going to a funeral and driving home took nearly 2 hours. The longest journey I have done for 3 years is about 15/20 minutes. When I got home I was so tired I needed a rest
NursePeggy
in
PMRGCAuk
6 years ago
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