Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,682 public posts
Filter results
Bio-artificial kidney
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Sharam
in
Kidney Disease
3 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
Bronchiectasis, disease progression and lifestyle changes
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Issues with elevated blood markers
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Lm371260
in
Kidney Transplant
3 years ago
After being told last night they have concerns re my heart which needs sorting before lung transplant this has cheered me up…🤪
Smart landlord!
Smart landlord!
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Well, I have sarcoidosis folks
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
Missbrenda21
in
Lung Conditions Community Forum
3 years ago
Lung transplant assessment
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
mary1956
in
Lung Conditions Community Forum
3 years ago
Shingrix OK For Immunocompromised Adults
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
lankisterguy
Volunteer
in
CLL Support
3 years ago
Hepatic Encephalopathy
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
Albw
in
British Liver Trust
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
New to this
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
Kidney Cancer Support
3 years ago
New To this site
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
British Liver Trust
3 years ago
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets?
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Yamaha1871
in
ITP Support Association
3 years ago
WARWICK'S ASCT ~ LATEST UPDATE...
. :-) Below I have Posted Warwick's latest Update on his
Stem
Cell
Transplant
journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...
. :-) Below I have Posted Warwick's latest Update on his
Stem
Cell
Transplant
journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...
socrates_8
in
MPN Voice
3 years ago
Kidney Donation Difficulty
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
DrKeptiocal
in
Kidney Disease
3 years ago
Join us for our next online supporter event, celebrating 60 years of BHF-funded research
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Helen_BHF
Partner
in
British Heart Foundation
3 years ago
Another HSCT question….
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
krikri1989ho
in
CLL Support
3 years ago
Kidney transplant caregiver
Kidney transplant caregiver
Kidney transplant caregiver
Dogdaysummer
in
Kidney Transplant
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
695 results
Lung Conditions Community Forum
458 results
Kidney Transplant
420 results
View top 10 communities
Sort by
Most Relevant
Newest