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Stem cell and bone marrow transplants
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What is your opinion on Max's Law?
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
YMendozaEPQ
in
British Heart Foundation
5 years ago
cll w/ a twist - Stem cell
Just had a bone marrow test yesterday so no results yet. they feel i'm going to have to do the
stem
cell
transplant
. Anyone go through this???
Just had a bone marrow test yesterday so no results yet. they feel i'm going to have to do the
stem
cell
transplant
. Anyone go through this???
chemosuxs
in
CLL Support
6 years ago
Bone Marrow Transplant Failed
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
Beauxman
in
Advanced Prostate Cancer
5 years ago
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Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Liver transplant
Life after the liver transplant for my father is boon good other then the little stuff but that’s normal accoutring to the dr but I have questions if anyone can help me . My father has been had this itching problem and now it’s getting much worst and there asking him to go in for test now I read some
Life after the liver transplant for my father is boon good other then the little stuff but that’s normal accoutring to the dr but I have questions if anyone can help me . My father has been had this itching problem and now it’s getting much worst and there asking him to go in for test now I read some
Sana18
in
British Liver Trust
5 years ago
Lung Transplant assessment / LVRS
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
Rich1957
in
Lung Conditions Community Forum
5 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
5 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
5 years ago
Guess who's getting home tomorrow
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yuiop
in
British Liver Trust
5 years ago
Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
tracey13
in
MPN Voice
5 years ago
two kids diagnosed with ALD
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
aadilmadarveet
in
Leukodystrophy Support
5 years ago
Identify the carrier.
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
aadilmadarveet
in
Parents of ALD Newborns
5 years ago
Lukiemia and High white blood count
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
ConcernedSpouse2012
in
CLL Support
5 years ago
Stem Cell Success for MS
I remain really hopeful that
stem
cell
research will change our world. https://www.thisisinsider.com/
stem
-
cell
-
transplant
-ms-treatment-2018-10
I remain really hopeful that
stem
cell
research will change our world. https://www.thisisinsider.com/
stem
-
cell
-
transplant
-ms-treatment-2018-10
jimcaster
in
Cure Parkinson's
6 years ago
Unable to walk
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
Rusty8
in
Pain Concern
5 years ago
11642
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
11642
in
Kidney Disease
5 years ago
Liver transplant
What does the 5 day liver transplant involve for my husband
What does the 5 day liver transplant involve for my husband
Whitelock
in
British Liver Trust
5 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
5 years ago
For my son
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
Wolvesmel
in
Couch to 5K
5 years ago
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