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Experiences with
Stem cell and bone marrow transplants
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Decision time for Multiple Myeloma
Had treatments for MM and was told that I had an excellent response was a perfect candidate for
Stem
Cell
Transplant
even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests I decided to have the SCT.
Had treatments for MM and was told that I had an excellent response was a perfect candidate for
Stem
Cell
Transplant
even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests I decided to have the SCT.
mcp1941
in
Advanced Prostate Cancer
4 years ago
Play ideas for a 5 year old 6 months after transplant
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
Quamel_Mom
in
Parents of Children with Kidney Disease
4 years ago
New to lung cancer
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Ragrug
in
Lung Conditions Community Forum
4 years ago
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We have seen the Heptologist
Finally the day arrived and he was great. He told us the the Child’s Pugh score was 10 and I can’t remember the name for,the other score but he said to be considered for Liver Transplant the score is 49 and my husband’s score was 51. He is putting him on to Rifaximin and wants him to reduce the amount
Finally the day arrived and he was great. He told us the the Child’s Pugh score was 10 and I can’t remember the name for,the other score but he said to be considered for Liver Transplant the score is 49 and my husband’s score was 51. He is putting him on to Rifaximin and wants him to reduce the amount
Bs1524
in
British Liver Trust
4 years ago
Survey for liver transplant patients
Calling all those who have had a transplant or are on the waiting list If you have had a liver transplant, or are waiting for one, please could you take a few moments to answer some questions to help us understand the kinds of issues you've faced and possible solutions. The views you give will help
Calling all those who have had a transplant or are on the waiting list If you have had a liver transplant, or are waiting for one, please could you take a few moments to answer some questions to help us understand the kinds of issues you've faced and possible solutions. The views you give will help
Hidden
British Liver Trust
in
British Liver Trust
4 years ago
Please can someone explain rogue DIO2 gene & Myxedema Coma to me please?
My mother passed away from Myxedema Coma, my sister fell into a Myxedema Coma & thankfully saved as lived in France & they immediately recognised hypothyroidism even though TSH normal. The NHS ignore my history & my TSH normal although I have exact symptoms down to putting on 30kg of fluid. My body is
My mother passed away from Myxedema Coma, my sister fell into a Myxedema Coma & thankfully saved as lived in France & they immediately recognised hypothyroidism even though TSH normal. The NHS ignore my history & my TSH normal although I have exact symptoms down to putting on 30kg of fluid. My body is
Hidden
in
Thyroid UK
4 years ago
in need of hope!!! husband received new kidney 11 days ago
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
Mafy
in
Kidney Transplant Patient Support
4 years ago
FutureLearn Liver Courses and Mental Health
Some of you will know of the two online liver courses that were run by FutureLearn. These were "Liver Disease: Looking after Your Liver" and "Liver Transplant". I, like so many have done both these courses, scoring 91% and 98% which surprised me at the time. I was therefore disappointed to learn
Some of you will know of the two online liver courses that were run by FutureLearn. These were "Liver Disease: Looking after Your Liver" and "Liver Transplant". I, like so many have done both these courses, scoring 91% and 98% which surprised me at the time. I was therefore disappointed to learn
Hidden
in
British Liver Trust
4 years ago
Follow-up...and perhaps hope for us all
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
shueswim
in
Advanced Prostate Cancer
4 years ago
Gastric problems since liver transplant
Allotment,j Had liver transplant 6yrs ago and have since suffered gastric problems Wind constipation bloating Any advice Allotment
Allotment,j Had liver transplant 6yrs ago and have since suffered gastric problems Wind constipation bloating Any advice Allotment
allotment
in
PBC Foundation
4 years ago
Liver Transplant
Hi all. Just a little update from me. 21.8 19 A very brave person lost there fight for live and gave hope to others. I am one of those . I cannot express how grateful me and my family are. Every day is a blessing for us Never give up hoping ..
Hi all. Just a little update from me. 21.8 19 A very brave person lost there fight for live and gave hope to others. I am one of those . I cannot express how grateful me and my family are. Every day is a blessing for us Never give up hoping ..
donnathompson
in
British Liver Trust
4 years ago
Coronavirus, a Fashionable way to die? medical care in America is broken, among the things that make me mad.
Terminal illness is a fate that awaits us all. We know not the pathways of our personal journey only that we will take one of those paths in a time not of our choosing. I live in the land of the chronically ill. It is that time between health and end stage disease. The Foundation's niche is fatty liver
Terminal illness is a fate that awaits us all. We know not the pathways of our personal journey only that we will take one of those paths in a time not of our choosing. I live in the land of the chronically ill. It is that time between health and end stage disease. The Foundation's niche is fatty liver
nash2
Partner
in
Living with Fatty Liver and NASH
4 years ago
What is “Public Comment” and why should I participate?
Do you ever wonder how you can influence change when it comes to the development of policies in the world of organ transplant? When the Organ Procurement and Transplantation Network (OPTN) begins to investigate how to solve any current policy issues regarding organ sharing and regulation, they provide
Do you ever wonder how you can influence change when it comes to the development of policies in the world of organ transplant? When the Organ Procurement and Transplantation Network (OPTN) begins to investigate how to solve any current policy issues regarding organ sharing and regulation, they provide
IzabellaDOnofrio
Administrator
in
Power2Save Transplant Community
4 years ago
Is it worth to get transplanted?
I have been following the forum in this site for a while. However, everytime I read many of the threads, I end up wondering if it is worth going through it. Currently, I am relatively healthy, although my creatinine is 3.6, my BUM is 49, and my GFR is 13. I have been in the list for almost a year. I
I have been following the forum in this site for a while. However, everytime I read many of the threads, I end up wondering if it is worth going through it. Currently, I am relatively healthy, although my creatinine is 3.6, my BUM is 49, and my GFR is 13. I have been in the list for almost a year. I
hope1419
in
Kidney Transplant
4 years ago
So much new CLL material to read
See: https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
-
cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll/ Guest writer, Brian Maxson is a CLL patient and an inquisitive engineer who lays out the points Dr.
See: https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
-
cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll/ Guest writer, Brian Maxson is a CLL patient and an inquisitive engineer who lays out the points Dr.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Uric acid rise after 1 year kidney transplant
Uric acid rise after 1 year kidney transplant and pain in forefeet and heel uric acid 7.1 normal 7 .o but to do for
Uric acid rise after 1 year kidney transplant and pain in forefeet and heel uric acid 7.1 normal 7 .o but to do for
Ish123
in
Kidney Transplant
4 years ago
First Face-to-Face With Other CKD Patients
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
FlowerPreciousLover
in
Kidney Disease
4 years ago
CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO
second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-lymphocytic-leukemia-cll/ In my #7 of the top 10 CLL abstracts from ASH, I review the encouraging data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
-
cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll
second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-lymphocytic-leukemia-cll/ In my #7 of the top 10 CLL abstracts from ASH, I review the encouraging data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
-
cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
can a kidney transplant be performed when the filtration rate is between 15 and 20%?
Hi. I am new to the forum and to ckd, transplant, etc... still trying to get oriented... Has anyone been told by a hospital that they wouldn't even be registered for a transplant if they are not below 15%?
Hi. I am new to the forum and to ckd, transplant, etc... still trying to get oriented... Has anyone been told by a hospital that they wouldn't even be registered for a transplant if they are not below 15%?
kidkidney202
in
Kidney Transplant
4 years ago
I have to withhold my tocilizumab
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
Teekay2
in
PMRGCAuk
4 years ago
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