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Sialic acid storage disorders
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New week
Hi Everyone, I have just woken up and I am already thinking ahead like I always do I am working Monday To Sunday only doing short shifts 4 - 6 hours but I have anxiety on what is going to happen if I will have any set backs and not go in . All this negativity at work has got me down will my colleagues
Hi Everyone, I have just woken up and I am already thinking ahead like I always do I am working Monday To Sunday only doing short shifts 4 - 6 hours but I have anxiety on what is going to happen if I will have any set backs and not go in . All this negativity at work has got me down will my colleagues
Claire1631
in
Anxiety Support
9 months ago
9 years and counting with PMR!
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
MC60
in
PMRGCAuk
1 year ago
Low Ovarian Reserve - (supplements to boost eggs quality)
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
olabode
in
Fertility Network UK
11 months ago
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living with panic disorder- any tips?
I was diagnosed with panic disorder in mid 2022, it was a sudden occurance that traumatized me I fear for life. I had panic attacks that lasted from the moment I woke up to the minute I fell asleep, sometimes waking from them which lasted weeks before I looked for professional help. I went to intensive
I was diagnosed with panic disorder in mid 2022, it was a sudden occurance that traumatized me I fear for life. I had panic attacks that lasted from the moment I woke up to the minute I fell asleep, sometimes waking from them which lasted weeks before I looked for professional help. I went to intensive
Takeabath
in
Anxiety and Depression Support
9 months ago
How to recover from a failed flare taper
PMR diagnosed: June 2021 Intial prednisone taper 30 to 8 mg/dy by Aug 2022—then flare 14 months: Successful flare recovery to 7.5 mg/dy by end of 2022-then flare 3 months: Inadequate flare recovery to about11 mg/dy through this March. I did not get above the pain threshold and was tolerating more
PMR diagnosed: June 2021 Intial prednisone taper 30 to 8 mg/dy by Aug 2022—then flare 14 months: Successful flare recovery to 7.5 mg/dy by end of 2022-then flare 3 months: Inadequate flare recovery to about11 mg/dy through this March. I did not get above the pain threshold and was tolerating more
JASpmr
in
PMRGCAuk
1 year ago
This was my awareness message on my socials.
This disease it’s true colours around age 40 its an excruciating genetic 🧬degenerative inflammatory disease.The barer can no longer sit, drive lie down or sleep . In the end they stand nearly 24 hours for hours everyday they live in sustained, energy drinks because they cant eat and then their bones
This disease it’s true colours around age 40 its an excruciating genetic 🧬degenerative inflammatory disease.The barer can no longer sit, drive lie down or sleep . In the end they stand nearly 24 hours for hours everyday they live in sustained, energy drinks because they cant eat and then their bones
Shumbah
in
Restless Legs Syndrome
9 months ago
Will Alendronic Acid affect my RLS?
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
Brenda48
in
Restless Legs Syndrome
1 year ago
ursodeoxycholic acid
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
Sunliver
in
PBC Foundation
1 year ago
Hard times
Hi Everyone, I have been down this month always having panic attacks and anxiety. I feel like I am the only one as it has got so bad that I don’t go into work. I’ve had a few days off and I am on zero-hours contract so if I don’t go in I will not get paid. The reason for my panic attacks is work it’s
Hi Everyone, I have been down this month always having panic attacks and anxiety. I feel like I am the only one as it has got so bad that I don’t go into work. I’ve had a few days off and I am on zero-hours contract so if I don’t go in I will not get paid. The reason for my panic attacks is work it’s
Claire1631
in
Anxiety Support
9 months ago
I need positive thoughts and vibes
I'm having an
insane
amount of anxiety and panic right now. I got triggered late last night and I was already elevated. I'm stuck in flight fight freeze and I can't get out. I'm so messed up right now. My mind is sensitive and fragile because of the anxiety and panic attacks. I've been messed
I'm having an
insane
amount of anxiety and panic right now. I got triggered late last night and I was already elevated. I'm stuck in flight fight freeze and I can't get out. I'm so messed up right now. My mind is sensitive and fragile because of the anxiety and panic attacks. I've been messed
Swilly97
in
Anxiety and Depression Support
9 months ago
Viagra, Ambien?
I have been on Cialis for several years now and worked pretty well, until lately. I've have had total failure with it. Dr. gave me a script for Viagra. I tried it twice and both times it knocked me out after 30 minutes. I wasn't even tired either. Slept for 4 hours and woke up with a killer hard on.
I have been on Cialis for several years now and worked pretty well, until lately. I've have had total failure with it. Dr. gave me a script for Viagra. I tried it twice and both times it knocked me out after 30 minutes. I wasn't even tired either. Slept for 4 hours and woke up with a killer hard on.
richlandfarmboy
in
Men's Health Forum
1 year ago
Radio 4 programme today
just listened to today's Food Programme at 15.30 via the BBC Sounds app. Really really interesting about the effect of nutrition on the brain and the importance of omega 3. It's half an hour and a must to listen to in my opinion.
just listened to today's Food Programme at 15.30 via the BBC Sounds app. Really really interesting about the effect of nutrition on the brain and the importance of omega 3. It's half an hour and a must to listen to in my opinion.
Espeegee
in
Thyroid UK
11 months ago
Closer to checkmate to Parkinson's (1): what Dr. Phillipson says.
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
parkinsonshereandnow
in
Cure Parkinson's
1 year ago
Adhd, bipolar or both?
Hi,I've very recently had a change of diagnosis from ADHD and mood disorder to BPD by a consultant psychiatrist, am awaiting a meds change and would like to learn about other people's experiences with 1. BPD, any type and degree: I want to understand why BPD (with or without ADHD) and not ADHD (with
Hi,I've very recently had a change of diagnosis from ADHD and mood disorder to BPD by a consultant psychiatrist, am awaiting a meds change and would like to learn about other people's experiences with 1. BPD, any type and degree: I want to understand why BPD (with or without ADHD) and not ADHD (with
Hominid711
in
Anxiety and Depression Support
1 year ago
Dexa scan
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
MrsPractical
in
PMRGCAuk
1 year ago
T4 to T3 conversion.
Hi all, I recently had a blood test done and I have a feeling my t4/T3 conversion rate isn't good. I took the test early in the morning,. no food or drink from the night before. I regularly self inject B12 as I have pernicious anaemia. I supplement with D3, magnesium and omega 3 oil. For the past couple
Hi all, I recently had a blood test done and I have a feeling my t4/T3 conversion rate isn't good. I took the test early in the morning,. no food or drink from the night before. I regularly self inject B12 as I have pernicious anaemia. I supplement with D3, magnesium and omega 3 oil. For the past couple
miravet
in
Thyroid UK
11 months ago
Alternative and adjunct medications for RLS
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Hidden
in
Restless Legs Syndrome
1 year ago
Severe Osteoporosis - Understanding the scan report and treatment
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
RAD23
in
Bone Health and Osteoporosis UK
1 year ago
Questions about taking Alendronate (Fosomax) and hydroxyeurea
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
Skater69
in
MPN Voice
1 year ago
ADAA Blog: Harm OCD vs. Being Dangerous
Are you suffering from harm OCD? Harm inducing types of thoughts, images and urges are typically referred to as Harm OCD and they can cause significant distress and anxiety in sufferers. Read ADAA member Marion Plessner Rodrigue, LMHC's blog explaining the difference between #harmocd and being dangerous
Are you suffering from harm OCD? Harm inducing types of thoughts, images and urges are typically referred to as Harm OCD and they can cause significant distress and anxiety in sufferers. Read ADAA member Marion Plessner Rodrigue, LMHC's blog explaining the difference between #harmocd and being dangerous
ADAATeamRachel
Partner
in
Anxiety and Depression Support
11 months ago
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