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Sexual function after prostatectomy
Hello all, trying to see if I can get some answers from folks in the trenches instead of winks and nods I get from the docs. Im 55 had prostatectomy in 11/15/23, gleason 9 in one core with a 1mm positive margin. Gleason 7 in two other cores, and disease only in 1/2 of prostate. Had resection in lymphnodes
Hello all, trying to see if I can get some answers from folks in the trenches instead of winks and nods I get from the docs. Im 55 had prostatectomy in 11/15/23, gleason 9 in one core with a 1mm positive margin. Gleason 7 in two other cores, and disease only in 1/2 of prostate. Had resection in lymphnodes
nelsoncobra
in
Advanced Prostate Cancer
4 hours ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
One Year After Diagnosis
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
805guy
in
Prostate Cancer And Gay Men
2 months ago
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Cialis blues
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Purple-Bike
in
Advanced Prostate Cancer
2 months ago
Restless Legs
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Yzinger
in
Advanced Prostate Cancer
3 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
3 months ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
3 months ago
Post Operation Erectile-dysfunction
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Wakeyguy63
in
Erectile Dysfunction Support
4 months ago
Pathway to boners? :)
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
Yzinger
in
Advanced Prostate Cancer
4 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
5 months ago
Prostectamy
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
Wakeyguy63
in
Prostate Cancer And Gay Men
5 months ago
help for arousal incontinence
Hi folks. I'm 58 and had a nerve-sparing radical prostatectomy 9 weeks ago. My recovery has gone fairly smoothly - I had no stress urinary incontinence after the catheter came out and haven't really needed pads, and my erections are slowly starting to recover (been taking Cialis 20mg/day). The one big
Hi folks. I'm 58 and had a nerve-sparing radical prostatectomy 9 weeks ago. My recovery has gone fairly smoothly - I had no stress urinary incontinence after the catheter came out and haven't really needed pads, and my erections are slowly starting to recover (been taking Cialis 20mg/day). The one big
tahinitoast
in
Prostate Cancer And Gay Men
6 months ago
Bit of a ramble but this is the only place that I can .....
Bit of a ramble but this is the only place that I can ......... I am down to 4mgms pred. When I last saw my Rheumatologist 6 weeks ago I told him that I thought I had sciatica .Been suffering pains down leg and lower back pain and was generally aching all over. awake at night He said that the pains
Bit of a ramble but this is the only place that I can ......... I am down to 4mgms pred. When I last saw my Rheumatologist 6 weeks ago I told him that I thought I had sciatica .Been suffering pains down leg and lower back pain and was generally aching all over. awake at night He said that the pains
Teekay2
in
PMRGCAuk
1 day ago
blood tests and zoledronic acid infusions
I recently asked for a blood test in-between my zoledronic acid infusions to see how my calcium levels are, I got a text from a gp to say that I only need a blood test 2-7 days prior to my infusion, it's good to know if I am still absorbing calcium I do not take a calcium supplement,
I recently asked for a blood test in-between my zoledronic acid infusions to see how my calcium levels are, I got a text from a gp to say that I only need a blood test 2-7 days prior to my infusion, it's good to know if I am still absorbing calcium I do not take a calcium supplement,
Radars
in
Bone Health and Osteoporosis UK
2 days ago
blood tests while on zoledronic acid infusion.
I recently asked for regular blood tests while on zoledronic acid infusions, a gp sent me a text to say that I only need blood tests a week before the next infusion, I wanted to see if my calcium levels were ok in-between infusions, but no.
I recently asked for regular blood tests while on zoledronic acid infusions, a gp sent me a text to say that I only need blood tests a week before the next infusion, I wanted to see if my calcium levels were ok in-between infusions, but no.
Radars
in
Advanced Prostate Cancer
2 days ago
questions about Ursodiol medication.
I take 300mg of ursodiol 3 times a day and I’ve been taking this for 6 years. My only one problem is that I have never been able to swallow pills before and still can’t get it right. I been getting complaints from my dentist about cavities popping up often when I visit for fillings. I try to rinse
I take 300mg of ursodiol 3 times a day and I’ve been taking this for 6 years. My only one problem is that I have never been able to swallow pills before and still can’t get it right. I been getting complaints from my dentist about cavities popping up often when I visit for fillings. I try to rinse
TurtleLuv
in
PBC Foundation
4 days ago
Alendronic Acid. Making my own choices.
Just an offload really: I woke up today (AA day) and decided not to take it. I’ve just been reading previous posts on here and ive found it pretty scary to read that once stopping taking it, it can stay in your system for 10 yrs. That’s frightening stuff. I was diagnosed over the phone withPMR
Just an offload really: I woke up today (AA day) and decided not to take it. I’ve just been reading previous posts on here and ive found it pretty scary to read that once stopping taking it, it can stay in your system for 10 yrs. That’s frightening stuff. I was diagnosed over the phone withPMR
Doraflora
in
PMRGCAuk
4 days ago
vision problems taking alendronic acid
Took alendronic acid for 5 months,then teriparitide injection 2 years,then back on alendronic acid since june 2024. Noticed visual disturbance whilst driving last week. seen by optician yesterday ,who is contacting consultant today. Realised on reflection had one episode when taking first time around
Took alendronic acid for 5 months,then teriparitide injection 2 years,then back on alendronic acid since june 2024. Noticed visual disturbance whilst driving last week. seen by optician yesterday ,who is contacting consultant today. Realised on reflection had one episode when taking first time around
h1h1h1h1
in
Bone Health and Osteoporosis UK
4 days ago
Mefenamic Acid, Lansoprazole & Cyclizine Hydrochloride
Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food together with mefenamic acid at the same time or leave some period inbetween? I’m trying to figure out how am I going to sort an order o taking
Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food together with mefenamic acid at the same time or leave some period inbetween? I’m trying to figure out how am I going to sort an order o taking
senselessmind
in
Endometriosis UK
8 days ago
tooth extraction
I came off of alendronic acid over 7 years ago and now need a tooth extracted. Has anyone had this done that long after treatment and had any problems? My dentist is referring me to the hospital to have it extracted, but I am concerned it may be too risky.
I came off of alendronic acid over 7 years ago and now need a tooth extracted. Has anyone had this done that long after treatment and had any problems? My dentist is referring me to the hospital to have it extracted, but I am concerned it may be too risky.
Harveymum
in
Bone Health and Osteoporosis UK
9 days ago
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