Search
Search
About
Log in
Join
Experiences with
Sialic acid storage disorders
Posts
Communities
16,104 public posts
Filter results
weather related flare
Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶🌫️
Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶🌫️
ratoncita
in
Fibromyalgia Action UK
26 days ago
Sexual function after prostatectomy
Hello all, trying to see if I can get some answers from folks in the trenches instead of winks and nods I get from the docs. Im 55 had prostatectomy in 11/15/23, gleason 9 in one core with a 1mm positive margin. Gleason 7 in two other cores, and disease only in 1/2 of prostate. Had resection in lymphnodes
Hello all, trying to see if I can get some answers from folks in the trenches instead of winks and nods I get from the docs. Im 55 had prostatectomy in 11/15/23, gleason 9 in one core with a 1mm positive margin. Gleason 7 in two other cores, and disease only in 1/2 of prostate. Had resection in lymphnodes
nelsoncobra
in
Advanced Prostate Cancer
1 month ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
One Year After Diagnosis
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
805guy
in
Prostate Cancer And Gay Men
3 months ago
Cialis blues
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Purple-Bike
in
Advanced Prostate Cancer
4 months ago
Restless Legs
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Yzinger
in
Advanced Prostate Cancer
4 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
4 months ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
4 months ago
Post Operation Erectile-dysfunction
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Wakeyguy63
in
Erectile Dysfunction Support
5 months ago
Pathway to boners? :)
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
Yzinger
in
Advanced Prostate Cancer
5 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
6 months ago
Prostectamy
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
Wakeyguy63
in
Prostate Cancer And Gay Men
6 months ago
K2 supplements
Which K2 supplement is best for osteoporosis? Do I need to take it? I already take Alendronic Acid and Accrete. I do lots of weight bearing exercises and walk five miles wearing a weighted vest most days. I'm not due another dexa scan for at least a year so I want to make sure I'm doing all I can to
Which K2 supplement is best for osteoporosis? Do I need to take it? I already take Alendronic Acid and Accrete. I do lots of weight bearing exercises and walk five miles wearing a weighted vest most days. I'm not due another dexa scan for at least a year so I want to make sure I'm doing all I can to
Alendronic2024
in
Bone Health and Osteoporosis UK
3 days ago
My Osteoprosis Diagnosis!
Hi All, I was diagnosed with osteoporosis earlier this year - early July. I had an DEXA Scan in late June! My osteoporosis is due to my age as I'm now menopausal - haven't had a period in last few years. I also have epilepsy & many epilepsy medications can affect how the body absorbs vitamin D as it
Hi All, I was diagnosed with osteoporosis earlier this year - early July. I had an DEXA Scan in late June! My osteoporosis is due to my age as I'm now menopausal - haven't had a period in last few years. I also have epilepsy & many epilepsy medications can affect how the body absorbs vitamin D as it
PurpleCurls16
in
Bone Health and Osteoporosis UK
4 days ago
Estrogen content for bone health
I had PSA of 250 Gleason 9/10 in 2019 Mar. Was under ADT regime from Jun 19 followed by IMRT in Nov 19. It was 39 sessions of 78 Gy to prostrate, prostrate bed, pelvic nodes. Later in Sep 22 PSA started to rise indicating BCR. In Jan 22 underwent Orchidectomy followed by Nubeqa for 19 months now. I've
I had PSA of 250 Gleason 9/10 in 2019 Mar. Was under ADT regime from Jun 19 followed by IMRT in Nov 19. It was 39 sessions of 78 Gy to prostrate, prostrate bed, pelvic nodes. Later in Sep 22 PSA started to rise indicating BCR. In Jan 22 underwent Orchidectomy followed by Nubeqa for 19 months now. I've
binati
in
Advanced Prostate Cancer
5 days ago
more than medication
I was lucky enough to have a diagnosis of osteoporosis before I broke anything. I started taking alendronic acid, But I spent the next few months terrified that every pain meant a fracture. So I started exercising with ROS excercises, and with a personal trainer who specialises in over 55s. 3 years
I was lucky enough to have a diagnosis of osteoporosis before I broke anything. I started taking alendronic acid, But I spent the next few months terrified that every pain meant a fracture. So I started exercising with ROS excercises, and with a personal trainer who specialises in over 55s. 3 years
Aquadulce
in
Bone Health and Osteoporosis UK
6 days ago
I can't get on with the medications
Hello. I've tried Alendronate and Risedronate, from which I had unpleasant side effects (dizziness from Alendronate and severe upset stomachs from Risedronate). I was offered a 6-monthly Denosumab jab, but I decided that, if I had the same reaction to that, I'd be stuck with it for 6-months. That seems
Hello. I've tried Alendronate and Risedronate, from which I had unpleasant side effects (dizziness from Alendronate and severe upset stomachs from Risedronate). I was offered a 6-monthly Denosumab jab, but I decided that, if I had the same reaction to that, I'd be stuck with it for 6-months. That seems
andmetoo
in
Bone Health and Osteoporosis UK
7 days ago
Teriparatide??
Was diagnosed with osteoporosis just over 5years ago, have completed5 a year course of alendronic acid with no problems ,but my osteoporosis is apparently very severe, although I am OK apart from occasional spinal fractures....... I have now been recommended for teriparatide, I hate injections and just
Was diagnosed with osteoporosis just over 5years ago, have completed5 a year course of alendronic acid with no problems ,but my osteoporosis is apparently very severe, although I am OK apart from occasional spinal fractures....... I have now been recommended for teriparatide, I hate injections and just
Blondeisbest
in
Bone Health and Osteoporosis UK
7 days ago
Newby question
In 2016 I broke my right knee and needed emergency surgery to put in pins. In 2022 I broke my left knee and needed emergency surgery to put in a large plate and bolts. I was then diagnosed with osteoporosis (at the age of 54). I have been on alendronic acid tablets since May 2023. Since my initial discussion
In 2016 I broke my right knee and needed emergency surgery to put in pins. In 2022 I broke my left knee and needed emergency surgery to put in a large plate and bolts. I was then diagnosed with osteoporosis (at the age of 54). I have been on alendronic acid tablets since May 2023. Since my initial discussion
Fruitjuice41
in
Bone Health and Osteoporosis UK
9 days ago
liver enzymes elevated after Urso brand change.
I have had PBC since 2004 with stable liver enzymes until approximately one year ago. I realize it may be disease progression but am wondering because I had an insurance company change just before their elevation and my new insurance company switched me to a different generic brand of ursodiol. Does
I have had PBC since 2004 with stable liver enzymes until approximately one year ago. I realize it may be disease progression but am wondering because I had an insurance company change just before their elevation and my new insurance company switched me to a different generic brand of ursodiol. Does
USmember
in
PBC Foundation
10 days ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3633 results
Anxiety Support
2546 results
Thyroid UK
791 results
View top 10 communities
Sort by
Most Relevant
Newest