Experiences with

Sialic acid storage disorders

Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶‍🌫️

I’m wondering if others are having the same difficulty that I am. I had IMRT and HDR Brachytherapy 4 years ago along with 12 months ADT. About a year and a half ago I started testosterone replacement therapy since it wasn’t coming back on its own. PSA is remaining undetectable so all is good there. Erections

Tamsulosin user 3yrs... and despite some online opinions it definitely DOESN'T stop ED... I'm a healthy fit 61yr old... with normal healthy attitude to sex...but have struggled to feel anything like hardness since using this drug..also semen production is less than a third volume now too. Heard alpha

Hi all, Thought I'd update you at just about the two-year mark post-treatment, having written here about treatment before, during and five weeks after treatment. Initial diagnosis: *August, 2021: PSA 5.74. Sept, 2021: Biopsy 3+4=7. MRI: PIRADS 4 *1 lesion of 1 cm on left side of peripheral

I’m looking for other people’s testimony on which works better, taking Cialis 5mg at night vs taking it in the morning. I’ve been taking it at night but for some reason I’m always waking up with a hard on.

Has anyone taken Dutasteride? Also called Avodart? It’s to shrink the swelling of your prostate. I just want to know if it’ll make you not be able to get an erection and an orgasm? It say not to take cialis with it. Why not?

My PSA after surgery was < 0.02 for 1.5 years and read 0.02 at that point. 1 year later I just got a 0.03. That's pretty certain for BCR unfortunately according to more recent studies. Not a fact PCa patients like to learn about. I know most Urologists & Oncologist typically don't recommend salvage

My husband’s Dr. Mulhall has prescribed him 25 mg of cialis once a week as a way of blood flow to the penis. Wondering if there are any side effects that result from this…already from the positive one hopefully:) Thank you for any input.

Has anyone else had increased heartburn / GERD when using the generic versions of Cialis & Viagra? The brand versions have a type of enteric coating which may make it easier to digest without causing heartburn / GERD since I never had this problem with the brand name pills. The generic versions I receive

Hello all, trying to see if I can get some answers from folks in the trenches instead of winks and nods I get from the docs. Im 55 had prostatectomy in 11/15/23, gleason 9 in one core with a 1mm positive margin. Gleason 7 in two other cores, and disease only in 1/2 of prostate. Had resection in lymphnodes

Unable to take the prescribed drug to protect my bones from ongoing use of steroids , I received a Zoledronic Acid Infusion last Friday. I was told I might exhibit flu symptoms for a few days afterwards but apart from excessive tiredness over the weekend (which isn’t unusual for me) I didn’t appear

i normally get restless legs on an evening and tended to go to bed early as thankfully for me in bed it stops. The past couple of weeks I have been staying up later and have had none of the usual discomfort. I started taking a supplement for my arthritis about 3 weeks ago and it has reduced my pain greatly

I had a bad experience taking alendronic acid tablets - throat issues/spasms. I'm wondering if taking AA in liquid form would help as I didn't have any other side effects. Has anyone else taken AA this way?

hi I was diagnosed 2 years ago with osteoporosis and osteopenia in spine as I had no fractures I was just told to take calcium tablets etc then in December 2024 I had another bone density scan and actually saw a consultant he said as I am on hrt just carry on as am but then my dr called and said recent

I've avoided taking alendronate due to being high risk of stomach and throat cancer. My doctor wants me to try risedronate. Has anyone any experience of taking this?

A couple of months ago I wrote a post asking why my GP was trying to persuade me to take Omeprazole and Alendronic Acid before knowing if I needed them. I resisted and took neither. I have had no stomach problems and since yesterday, when I saw my Dexa scan results, feel vindicated in my decision.

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), and my doctor started me on UDCA. Unfortunately, I’m struggling to tolerate it. For those who have faced a similar situation, what alternatives worked for you? Did the alternatives provide results comparable to UDCA?

I have not posted for a long time as when finally diagnosed in 2016 I learned as much as I could from all the very knowledgeable people here and have not had any doctors appointment since. At that time I pushed to have my TSH close to 1 or even slightly lower to allow mw to feel human, To keep this

Hi all. I've finally got my follow-up appointment on Monday since my MRI in August last year, which showed some adhesions, endometriotic plaque/nodules and thickened uterosacral ligaments. I've been on desogestrel since my last appointment but recently the lower back/hip/tailbone pain is just getting

Hi I was diagnosed with osteoporosis in June 24 following a fall on black ice I broke my wrist. I also have a small hiatus hernia and have slow motility in my osephogus. I tried Alendronic acid which I felt made my acid reflux worse and felt like it was sticking in my throat even though I was drinking