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Sialic acid storage disorders
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One Year After Diagnosis
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
805guy
in
Prostate Cancer And Gay Men
13 days ago
Cialis blues
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Purple-Bike
in
Advanced Prostate Cancer
17 days ago
Restless Legs
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Hi all - curious if any of you are experiencing pretty intense restless legs? I am a triplet therapy patient and am through the chemo and radiation (maybe quad therapy:)) so wondering if somehow Darolutamide is contributing to this? I also take a statin, a reflux pill, vitamin D, flomax, and cialis
Yzinger
in
Advanced Prostate Cancer
22 days ago
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High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
1 month ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
1 month ago
Post Operation Erectile-dysfunction
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Hello allI'm 12 weeks in post op since my successful robotic prostatectomy for prostate cancer. I'm recovering generally, very well. Incontinence is getting a lot better now. Down to using a small pad. My main issue now is on attempting masturbation, I hhave no erection, or sensation feeling at all
Wakeyguy63
in
Erectile Dysfunction Support
2 months ago
Pathway to boners? :)
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
What the most current news on getting an erection while fighting this damn disease? I recently switched from 10mg Cialis every 3rd day to daily 5mg pills. I have not noticed a difference yet. I know some here may have experience with the injections - i guess that is next step outside of implants
Yzinger
in
Advanced Prostate Cancer
2 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
3 months ago
Prostectamy
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
I'm 5 weeks post op following my successful prostectamy. I've recovered very well. Incontinence almost gone, just a few drops now and then. I've been taking Cialis 5mg every day since surgery. No matter how I try, I just can't get any type of erection, or have a dry orgasm. It even hurts my penis
Wakeyguy63
in
Prostate Cancer And Gay Men
3 months ago
help for arousal incontinence
Hi folks. I'm 58 and had a nerve-sparing radical prostatectomy 9 weeks ago. My recovery has gone fairly smoothly - I had no stress urinary incontinence after the catheter came out and haven't really needed pads, and my erections are slowly starting to recover (been taking Cialis 20mg/day). The one big
Hi folks. I'm 58 and had a nerve-sparing radical prostatectomy 9 weeks ago. My recovery has gone fairly smoothly - I had no stress urinary incontinence after the catheter came out and haven't really needed pads, and my erections are slowly starting to recover (been taking Cialis 20mg/day). The one big
tahinitoast
in
Prostate Cancer And Gay Men
4 months ago
Stay Positive!
Good morning Gentlemen! I wanted to take a moment to Thank each and every one of you that reached out to me after my initial. To recap, I am a 53 year old man and was diagnosed with Prostate Cancer in September with a Gleason Score of 3+4. Immediately, they wanted to do surgery but I knew that based
Good morning Gentlemen! I wanted to take a moment to Thank each and every one of you that reached out to me after my initial. To recap, I am a 53 year old man and was diagnosed with Prostate Cancer in September with a Gleason Score of 3+4. Immediately, they wanted to do surgery but I knew that based
SadandScared
in
Prostate Cancer And Gay Men
4 months ago
What’s wrong with me?
I’m a fit, good looking dude with a nice dick…and I can’t get hard for the life of me. It’s disappointing, I feel like a huge failure, plus I don’t get to enjoy the things I want to enjoy and have worked hard to enjoy. Even taking cialis last night it just didn’t happen. I’m so nervous and have no confidence
I’m a fit, good looking dude with a nice dick…and I can’t get hard for the life of me. It’s disappointing, I feel like a huge failure, plus I don’t get to enjoy the things I want to enjoy and have worked hard to enjoy. Even taking cialis last night it just didn’t happen. I’m so nervous and have no confidence
Surewhynot
in
Erectile Dysfunction Support
5 months ago
New Breakthrough in My Journey
This maybe a bit rude but it is all in the name science. Men have an early built in warning system for CAC, their penile member, because the penile arteries being a far extremity and on the small side they are the first to plaque up. It it the canary in the coal mine. However our medical community
This maybe a bit rude but it is all in the name science. Men have an early built in warning system for CAC, their penile member, because the penile arteries being a far extremity and on the small side they are the first to plaque up. It it the canary in the coal mine. However our medical community
Bluehope81
in
British Heart Foundation
6 months ago
Cialis duration after SBRT
I was prescribed Cialis as a possible protectant for radiation damage to blood vessels. I had a five session SBRT. A year out, I have few if any side effects. No erectile issues, but I’ve stayed on the Cialis on the assumption it might reduce future radiation damage. My research indicated ED started
I was prescribed Cialis as a possible protectant for radiation damage to blood vessels. I had a five session SBRT. A year out, I have few if any side effects. No erectile issues, but I’ve stayed on the Cialis on the assumption it might reduce future radiation damage. My research indicated ED started
Mike404
in
Prostate Cancer Network
6 months ago
zoledronic acid infusion
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
Radars
in
Bone Health and Osteoporosis UK
13 hours ago
Hot flushes
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
NewPMR53
in
PMRGCAuk
3 days ago
Neuropathy fatty liver
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
glander2405
in
British Liver Trust
3 days ago
How is PMR diagnosed?
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
JubileePenny
in
PMRGCAuk
4 days ago
Blood Tests to show if Calcium is being absorbed into the bones and not elsewhere....
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Cheerleader123
in
Bone Health and Osteoporosis UK
4 days ago
Estrogen for Bone Health in PCa patient.
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
binati
in
Advanced Prostate Cancer
6 days ago
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