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Sialic acid storage disorders
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Help with blood test results
After waiting at least 6 weeks post covid and one venous sample getting delayed I finally have my test results. I am due an endo appointment soon and last time my endo wanted to reduce levothyroxine to 75microgrammes from 100micro based on TSH alone which I fought because I have no symptoms of being
After waiting at least 6 weeks post covid and one venous sample getting delayed I finally have my test results. I am due an endo appointment soon and last time my endo wanted to reduce levothyroxine to 75microgrammes from 100micro based on TSH alone which I fought because I have no symptoms of being
CarnelianT
in
Thyroid UK
1 year ago
missed dose AA
on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have already taken my 7am pred and omniprazole - what should I do? Can I miss it for one week? Panicking!!
on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have already taken my 7am pred and omniprazole - what should I do? Can I miss it for one week? Panicking!!
Jantayl
in
PMRGCAuk
2 years ago
allergy to meds taken for GCA
diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Alendronate. Last week ended up at A&E with severe allergic rash my body is just like it’s burnt so itch & sore. Been taken off everything except prednisolone. Has anyone else had a reaction like this
diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Alendronate. Last week ended up at A&E with severe allergic rash my body is just like it’s burnt so itch & sore. Been taken off everything except prednisolone. Has anyone else had a reaction like this
CavalierKC3
in
PMRGCAuk
2 years ago
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Nothing left
I’ve nothing left to fight with. I’ve had depression and anxiety all my life and have learned to live with it. I now have cervical spondylitis and am exhausted. I try so hard to be pro-active but I’ve nothing left to give. I don’t know what to do.
I’ve nothing left to fight with. I’ve had depression and anxiety all my life and have learned to live with it. I now have cervical spondylitis and am exhausted. I try so hard to be pro-active but I’ve nothing left to give. I don’t know what to do.
Crochetchica
in
Anxiety and Depression Support
1 year ago
RLS or something else?
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hidden
in
Restless Legs Syndrome
2 years ago
Levothyroxine sodium loaded dissolving microneedle arrays for transdermal delivery
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Azelaic acid and asthma
Hi, I have been prescribed a skin treatment for my rosacea that includes Azelaic acid. I have read that it could worsen my asthma, which is already severe. Has anyone any experience of azelaic acid? Thanks
Hi, I have been prescribed a skin treatment for my rosacea that includes Azelaic acid. I have read that it could worsen my asthma, which is already severe. Has anyone any experience of azelaic acid? Thanks
CraftyLego
in
Asthma Community Forum
2 years ago
obsessive thoughts
I have periods of anxiety that take over my brain for months at a time. All day I monitor every thought to gauge my anxiety levels. It’s exhausting. What do others do to break that cycle?
I have periods of anxiety that take over my brain for months at a time. All day I monitor every thought to gauge my anxiety levels. It’s exhausting. What do others do to break that cycle?
Trish23
in
Anxiety and Depression Support
1 year ago
Treating TBI sleep disorders
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
pinkvision
in
Headway
2 years ago
Differing Rheumatologist opinions and Alendronic Acid
I am a bit befuddled so thought I would turn to The Oracle. Apologies for the epistle. I have been in gradually increasing pain (the air has become blue) in my groin, right hip and leg since July. I increased my Pred from 5 mg to 10 mg but it had no effect. My doctor (from a telephone conversation
I am a bit befuddled so thought I would turn to The Oracle. Apologies for the epistle. I have been in gradually increasing pain (the air has become blue) in my groin, right hip and leg since July. I increased my Pred from 5 mg to 10 mg but it had no effect. My doctor (from a telephone conversation
SusyTe
in
PMRGCAuk
2 years ago
Acidophilus
can anyone tell me whether acidophilus tabs aggrevate RLS. I have recently started back on these tabs to help my Cauda Equina problems and the RLS has now gone through the floor. I am awaiting a private video consultation with Prof Walker in the next two weeks as my GP totally ignores my requests for
can anyone tell me whether acidophilus tabs aggrevate RLS. I have recently started back on these tabs to help my Cauda Equina problems and the RLS has now gone through the floor. I am awaiting a private video consultation with Prof Walker in the next two weeks as my GP totally ignores my requests for
0rangetulip
in
Restless Legs Syndrome
1 year ago
Anyone taking lexapro and seroquel
Dr. just adjusted my meds, upped me to 20mg of lexapro and 50mg of seroquel. Hoping to have better sleep with the increase of the seroquel. Just changed from Zoloft to Lexapro and I am hoping the increase of lexapro will help balance out the anxiety and decrease the side effects, I read the increase
Dr. just adjusted my meds, upped me to 20mg of lexapro and 50mg of seroquel. Hoping to have better sleep with the increase of the seroquel. Just changed from Zoloft to Lexapro and I am hoping the increase of lexapro will help balance out the anxiety and decrease the side effects, I read the increase
Chinaadventure
in
Anxiety and Depression Support
1 year ago
PTSD and anxiety after flood
In December my house flooded, we moved to a hotel for a month, caught COVID/bad dose of flu, had daily stress trying to find alternative accom, endless frustration with estate agents and insurance. Now in an apartment, transfering items from the house and been told it will be 6 months till return. I've
In December my house flooded, we moved to a hotel for a month, caught COVID/bad dose of flu, had daily stress trying to find alternative accom, endless frustration with estate agents and insurance. Now in an apartment, transfering items from the house and been told it will be 6 months till return. I've
celticlady
in
Anxiety and Depression Support
1 year ago
Found this in Waitrose (Bit pricey!) Lovely creamy Oat Kefir. Dairy, soya and gluten free... Edit ** Found a recipe they use milk grains**
£3!! and rather annoyingly really nice... heck I'm worth it! I only went in for a sneaky sushi treat 😏 Edit... actually cheaper in Waitrose as they sell the 500g where as the other only sell 250g £1.85 Oat Base (Water, Gluten-Free Oats (11%), Sunflower Oil, Salt), Coconut Cream, Stabilisers (Tapioca
£3!! and rather annoyingly really nice... heck I'm worth it! I only went in for a sneaky sushi treat 😏 Edit... actually cheaper in Waitrose as they sell the 500g where as the other only sell 250g £1.85 Oat Base (Water, Gluten-Free Oats (11%), Sunflower Oil, Salt), Coconut Cream, Stabilisers (Tapioca
TiggerMe
in
Thyroid UK
2 years ago
Analysis please on my sister’s results from Ireland - Hashimoto’s and cognitive issues - mainly short term memory
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Butterflycake1
in
Thyroid UK
1 year ago
Intrusive thoughts
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Raindropsonroses44
in
Action on Postpartum Psychosis
2 years ago
Severe heart anxiety
I have severe heart anxiety.. Have been thinking almost everyday that I would get heart attack until five years have passed.. But, here I'm well and truly alive though in fear with many panic attacks
I have severe heart anxiety.. Have been thinking almost everyday that I would get heart attack until five years have passed.. But, here I'm well and truly alive though in fear with many panic attacks
Ishfaq-bashir
in
Anxiety and Depression Support
1 year ago
Sacrum tumor
Anyone have experience with a Sacrum tumor? Onc. wants to do a needle biopsy, then radiation but reading up on this, IF it shows a Chordoma, radiation is only done AFTER surgery and a surgical team should be standing by ready to go if it is a chordoma as the needle will spread it immediately and it's
Anyone have experience with a Sacrum tumor? Onc. wants to do a needle biopsy, then radiation but reading up on this, IF it shows a Chordoma, radiation is only done AFTER surgery and a surgical team should be standing by ready to go if it is a chordoma as the needle will spread it immediately and it's
Pops78
in
Advanced Prostate Cancer
2 years ago
under active Thyroid with vitamins
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
Peggymae-18
in
Thyroid UK
1 year ago
never ending period
I’ve recently been diagnosed with endometriosis in POD. Have very bad rectal pain and extremely heavy periods. Taking mefanamic acid and tranaxemic acid along with otc painkillers. Period will not stop! I’m on day 13 of my period and second round of TA. Every time I think it has stopped and stop the
I’ve recently been diagnosed with endometriosis in POD. Have very bad rectal pain and extremely heavy periods. Taking mefanamic acid and tranaxemic acid along with otc painkillers. Period will not stop! I’m on day 13 of my period and second round of TA. Every time I think it has stopped and stop the
MSLMQ
in
Endometriosis UK
2 years ago
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