I have RV endo stage 4, polyps & fibroids; the endo is a large growth into bowel wall; I'm with Cathy Dean (endo specialist nurse) and Mr Burn (consultant) in Cornwall at the moment.
Attempted to manage this without operating for a little over a year since surgery was proposed, but my symptoms have changed and I'm now reconsidering. I have severe anaemia as a result of blood loss, while the endo grows, 1 x blood transfusion & iron injections regularly.
Have you had surgery to remove endo & bowel section resulting in ileostomy/stoma? Good and bad experiences please, particularly with anyone at the Cornwall endo centre.
Looking for any tips on planning surgery and recovery time and advice about financial and physical support following surgery as I'm without dependants.