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COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
PaulaS
Volunteer
in
CLL Support
9 years ago
Very worried mum
Hi , me and my sister suffer from lupus but can your children be suffers to. The reason I'm asking is my teenage daughter as the symptoms to she as seen our GP and as to go for tests which she doesn't want to do as she is scared she might have it also.She as watched me struggle for years and not
Hi , me and my sister suffer from lupus but can your children be suffers to. The reason I'm asking is my teenage daughter as the symptoms to she as seen our GP and as to go for tests which she doesn't want to do as she is scared she might have it also.She as watched me struggle for years and not
bezza247
in
LUPUS UK
9 years ago
Recent Hep C diagnosis
I have been diagnosed with Hep c for 3 months now apparently its in my blood stream as well as my liver, Ive never been an IV drug user and think it was from a blood transfusion I had in the 1970s in Roma Italy.Im not being treated with medication yet as the only treatment offered by nice messes with
I have been diagnosed with Hep c for 3 months now apparently its in my blood stream as well as my liver, Ive never been an IV drug user and think it was from a blood transfusion I had in the 1970s in Roma Italy.Im not being treated with medication yet as the only treatment offered by nice messes with
simonwilde42
in
British Liver Trust
9 years ago
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To all going through liver disease and transplants
Hi i am 2 years post transplant as of April 7th. I had hep c lying undetected since a blood transfusion given in 1986 after a motorcycle accident when i also lost my spleen. The hep led to cirrhosis which eventually led to liver cancer. I am 46 now and also was in shock when told i needed a liver transplant
Hi i am 2 years post transplant as of April 7th. I had hep c lying undetected since a blood transfusion given in 1986 after a motorcycle accident when i also lost my spleen. The hep led to cirrhosis which eventually led to liver cancer. I am 46 now and also was in shock when told i needed a liver transplant
Dan68
in
British Liver Trust
9 years ago
FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)
Well I’m glad to report I’m finally into the R&R stage now of round 4, and Spring seems to have finally arrived just in time for Easter. As always please correct me on any errors/omissions and please share your own experiences. So how did round 4 go? Well, similar problems to round three to start with
Well I’m glad to report I’m finally into the R&R stage now of round 4, and Spring seems to have finally arrived just in time for Easter. As always please correct me on any errors/omissions and please share your own experiences. So how did round 4 go? Well, similar problems to round three to start with
Ernest2
in
CLL Support
9 years ago
Blood Transfusion
Has anyone else had a blood transfusion in the past, nothing sinister just a thought passing through my fuddled brain :o)
Has anyone else had a blood transfusion in the past, nothing sinister just a thought passing through my fuddled brain :o)
dollydaydreams
in
PBC Foundation
9 years ago
New to this !
I was diagnosed with cirrhosis in September 13. I became acutely unwell and was admitted to hospital. I had varices banded, blood transfusions and ascites drained and packed off home. The problems were all alcohol related and I haven't touched a drop since. Since then I have had many ups and downs. I'm
I was diagnosed with cirrhosis in September 13. I became acutely unwell and was admitted to hospital. I had varices banded, blood transfusions and ascites drained and packed off home. The problems were all alcohol related and I haven't touched a drop since. Since then I have had many ups and downs. I'm
Hopeful-1961
in
British Liver Trust
9 years ago
Angry and distressed... Zoladex rebound
Hi everyone I've got adenomyosis with very heavy periods and anaemia, my physician put me on Zoladex for 5 months to reduce it (I'm trying to get pregnant with ivf) - given that apparently there's a window of opportunity after the Zoladex when the womb lining is thinner (easier for conception/keeping
Hi everyone I've got adenomyosis with very heavy periods and anaemia, my physician put me on Zoladex for 5 months to reduce it (I'm trying to get pregnant with ivf) - given that apparently there's a window of opportunity after the Zoladex when the womb lining is thinner (easier for conception/keeping
Anna_77
in
Endometriosis UK
9 years ago
Been there, done that, so what next?
Hi, I'm a first timer on here and thought I'd run this past you all. I had a full hysterectomy in December 2011. It was a difficult surgery because I had a large calcified fibroid in my uterus plus there were 2 Spurs coming off of it. One was attached to my pelvic wall and the other to my bowel and rectum
Hi, I'm a first timer on here and thought I'd run this past you all. I had a full hysterectomy in December 2011. It was a difficult surgery because I had a large calcified fibroid in my uterus plus there were 2 Spurs coming off of it. One was attached to my pelvic wall and the other to my bowel and rectum
Nannyjules
in
Endometriosis UK
9 years ago
Original Coping strategies for Living with CLL - Part 1- Making good use of "Watch and Wait". Please read new version!
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
PaulaS
Volunteer
in
CLL Support
9 years ago
3D engineered bone marrow-like material produces functioning human platelets
I think we are all aware of how important platelets are, particularly if we've undergone treatment. They don't last long in the body, necessitating weekly transfusions if your bone marrow isn't making enough, as we've yet to find a way to boost their production. So any platelet research news towards
I think we are all aware of how important platelets are, particularly if we've undergone treatment. They don't last long in the body, necessitating weekly transfusions if your bone marrow isn't making enough, as we've yet to find a way to boost their production. So any platelet research news towards
AussieNeil
Partner
in
CLL Support
9 years ago
FLAIR Trial – ErnieUK: Red and White Cell Cytopenias before round 3 FCR
I’m happily into round 3 of the FCR arm of the FLAIR trial now, with a couple of hiccups on the way. As always please correct me on any errors/omissions and please share your own experiences. I have had problems in round 3 with both Red Cell and White Cell Cytopenias i.e. Not enough of these cells.
I’m happily into round 3 of the FCR arm of the FLAIR trial now, with a couple of hiccups on the way. As always please correct me on any errors/omissions and please share your own experiences. I have had problems in round 3 with both Red Cell and White Cell Cytopenias i.e. Not enough of these cells.
Ernest2
in
CLL Support
9 years ago
Cycle 1 of BR compared to FCR, and any advice regarding Port v. PICC line please?
I had 5 cycles of FCR four years ago, and although the nausea was dreadful, I didn’t miss a day of work as I’d timed the treatment each month to start the day before my two long days of piano teaching at the local primary school. By the time my second day's teaching was ending, the nausea would kick
I had 5 cycles of FCR four years ago, and although the nausea was dreadful, I didn’t miss a day of work as I’d timed the treatment each month to start the day before my two long days of piano teaching at the local primary school. By the time my second day's teaching was ending, the nausea would kick
Ruhi9
in
CLL Support
10 years ago
Advice please
Im 40 years old, 5 years ago i had an hysterectomy because i had aprolapse of my bladder,, rectum & vagina. They only left my 2 ovarys. 2 weeks post op i was back in hospital because i haemorrhage. I had to have a laparotomy blood transfusion & a weeks stay in hospital. But last June they found a 8cm
Im 40 years old, 5 years ago i had an hysterectomy because i had aprolapse of my bladder,, rectum & vagina. They only left my 2 ovarys. 2 weeks post op i was back in hospital because i haemorrhage. I had to have a laparotomy blood transfusion & a weeks stay in hospital. But last June they found a 8cm
gaynorwishes
in
Pelvic Pain Support Network
10 years ago
Artificial Platelets show promise
Reassuring news, considering falling
platelet
levels are a common trigger for CLL treatment and
platelet
transfusions
(the only way we can boost them now), need to be repeated weekly until your body can make enough on its own...
Reassuring news, considering falling
platelet
levels are a common trigger for CLL treatment and
platelet
transfusions
(the only way we can boost them now), need to be repeated weekly until your body can make enough on its own...
AussieNeil
Partner
in
CLL Support
10 years ago
IPT and Pregnant
Hello, I am new to this site and wondered if anyone can answer my questions. My 35 yr old daughter has ulcerative colitis which is currently active and she is 34 weeks pregnant. A month ago she went to the emergency with severe cramping and it was discovered that her platlets were at 9. She was
Hello, I am new to this site and wondered if anyone can answer my questions. My 35 yr old daughter has ulcerative colitis which is currently active and she is 34 weeks pregnant. A month ago she went to the emergency with severe cramping and it was discovered that her platlets were at 9. She was
DLawson
in
ITP Support Association
10 years ago
Patient day in Galway
I have just been looking at some of the videos mainly the patients stories which were very inspiring and if any of you are checking in on this site, just to say be proud ladies. You both did so well. I am interested in the green juices. I do juice but once a day with celery green apples, ginger root
I have just been looking at some of the videos mainly the patients stories which were very inspiring and if any of you are checking in on this site, just to say be proud ladies. You both did so well. I am interested in the green juices. I do juice but once a day with celery green apples, ginger root
Hidden
in
OvaCare
10 years ago
A bit long, but worth a giggle!
Bob Hill and his new wife Betty were vacationing in Europe.....as it happens, near Transylvania . They were driving in a rental car along a rather deserted highway. It was late and raining very hard. Bob could barely see the road in front of the car. Suddenly, the car skids out of control! Bob attempts
Bob Hill and his new wife Betty were vacationing in Europe.....as it happens, near Transylvania . They were driving in a rental car along a rather deserted highway. It was late and raining very hard. Bob could barely see the road in front of the car. Suddenly, the car skids out of control! Bob attempts
Nikkers
in
Lung Conditions Community Forum
10 years ago
Pain in the eyes
Hi, Has anyone experienced sharp pain in the eyes, which I call "pins in the eyes" because the pain is sudden, sharp and very intense. It lasts for a few seconds only but it now seems to leave a lingering discomfort for a little longer. I have MF and have asked my consultant about it but he is ignoring
Hi, Has anyone experienced sharp pain in the eyes, which I call "pins in the eyes" because the pain is sudden, sharp and very intense. It lasts for a few seconds only but it now seems to leave a lingering discomfort for a little longer. I have MF and have asked my consultant about it but he is ignoring
daisystar
in
MPN Voice
10 years ago
Anemia cause RLS
I don't know if everyone here know this, as I never but one of the biggest things to cause RLS is anemia, nobody checked me for this and I have had RLS since being very ill with Sepsis last December, only recently it has come out how low my blood levels was and I had a transfusion and am now on iron
I don't know if everyone here know this, as I never but one of the biggest things to cause RLS is anemia, nobody checked me for this and I have had RLS since being very ill with Sepsis last December, only recently it has come out how low my blood levels was and I had a transfusion and am now on iron
Pat9
in
Restless Legs Syndrome
10 years ago
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