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My husband, 62, was diag. with chronic lymphocytic leukemia w/13q deletion and significant adenopathy/severe autoimmune hemolytic anemia.
Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three chemo treatments since with "Retuximab/Bendamustine (Trenda)" combination. After the second treatment, fevers- he ended up in the hospital for a week (low wbcs-4). Neutropenic I believe. They gave him a shot daily in his
Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three chemo treatments since with "Retuximab/Bendamustine (Trenda)" combination. After the second treatment, fevers- he ended up in the hospital for a week (low wbcs-4). Neutropenic I believe. They gave him a shot daily in his
deb1610
in
CLL Support
10 years ago
New here, first post.
I have mrkh. I have a womb and ovaries but no cervix. I have severe deep intra abdominal endometriosis, all my organs are fused together with adhesions, my ovaries are stuck to my pelvis which are putting pressure on my kidneys causing intense back pain. Mine is a very long story starting when I was
I have mrkh. I have a womb and ovaries but no cervix. I have severe deep intra abdominal endometriosis, all my organs are fused together with adhesions, my ovaries are stuck to my pelvis which are putting pressure on my kidneys causing intense back pain. Mine is a very long story starting when I was
andie68
in
Endometriosis UK
10 years ago
Has anyone had an endometrial cyst on their womb?
Hey I'm new to all this forum stuff and still getting to grips with all of the terminology... About 3 weeks ago I was rushed Into hospital after a blood test as my blood count was 6.2 (normal is around 12-14 I believe in women) I'd experience consistent heavy, clotting bleeding and was in excruciating
Hey I'm new to all this forum stuff and still getting to grips with all of the terminology... About 3 weeks ago I was rushed Into hospital after a blood test as my blood count was 6.2 (normal is around 12-14 I believe in women) I'd experience consistent heavy, clotting bleeding and was in excruciating
Lamartin92
in
Endometriosis UK
10 years ago
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Bladder problems after laproscopy
Hi everyone. I had my laproscopy early Tuesday morning. I was told id be in and out. I had 2 large cysts removed and a small amount of old edometriosis was found which i think shows taking the pill back to back has worked. When I woke up I had a drain fitted through my tummy and a catheter inserted.
Hi everyone. I had my laproscopy early Tuesday morning. I was told id be in and out. I had 2 large cysts removed and a small amount of old edometriosis was found which i think shows taking the pill back to back has worked. When I woke up I had a drain fitted through my tummy and a catheter inserted.
stacks89
in
Endometriosis UK
10 years ago
Breastfeeding through critical illness and recovery
This is the story of my journey to breastfeed my son. Writing it down has helped me with my recovery. It's going to be published in breastfeeding Matters Magazine later this year. La Leche League is an international charity encouraging mother to mother support for breastfeeding mums and provides all
This is the story of my journey to breastfeed my son. Writing it down has helped me with my recovery. It's going to be published in breastfeeding Matters Magazine later this year. La Leche League is an international charity encouraging mother to mother support for breastfeeding mums and provides all
summerwine
in
ICUsteps
10 years ago
On my 3rd week of Rituxan and Nplate, every week my plates and red white counts drop. Is this not working?
It seems I should have had improvement by now. WBC - 2.4, RBC - 2.38, Platelets 9k. I had steroids and that didn't work either. In 2012 I had a 6 day nosebleed in the hospital Had several transfusions, nplate and cyclosporin, My platelets went to 80,000 for a brief period. Now I am back to this again
It seems I should have had improvement by now. WBC - 2.4, RBC - 2.38, Platelets 9k. I had steroids and that didn't work either. In 2012 I had a 6 day nosebleed in the hospital Had several transfusions, nplate and cyclosporin, My platelets went to 80,000 for a brief period. Now I am back to this again
Pilily
in
ITP Support Association
10 years ago
Heart Bypass Imminent at Last
Hi there, Just thought I would provide an update 'cause I have been absent for some time. Firstly, it is great to be back and secondly I hope everyone as is well as they can be or at peace with themselves. If not we are here to support as much as is possible. Two years ago I was diagnosed with a
Hi there, Just thought I would provide an update 'cause I have been absent for some time. Firstly, it is great to be back and secondly I hope everyone as is well as they can be or at peace with themselves. If not we are here to support as much as is possible. Two years ago I was diagnosed with a
LinDonaldson
in
Thyroid UK
10 years ago
Chronic pelvic pain and pelvic congestion...
It all started for me while giving birth to my daughter 12 years ago. My uterus ruptured and I lost more than half the blood in my body, I almost didn't make it. I needed an emergency blood transfusion. Within 2 years all my pelvic issues popped up. I had 14 pelvis surgeries and 5 of them were within
It all started for me while giving birth to my daughter 12 years ago. My uterus ruptured and I lost more than half the blood in my body, I almost didn't make it. I needed an emergency blood transfusion. Within 2 years all my pelvic issues popped up. I had 14 pelvis surgeries and 5 of them were within
Gezabella
in
Pelvic Pain Support Network
10 years ago
possible hysterectomy after retained placenta due to adenomyosis
hello I have had a really traumatic birth experience and now may need a hysterectomy and looking our or advice. I have endo and adenomyosis. I recently had a c-section but had a morbidly adhered placenta which resulted in 2litres of blood loss and transfusion. During the op they did not remove all of
hello I have had a really traumatic birth experience and now may need a hysterectomy and looking our or advice. I have endo and adenomyosis. I recently had a c-section but had a morbidly adhered placenta which resulted in 2litres of blood loss and transfusion. During the op they did not remove all of
Miwa
in
Endometriosis UK
10 years ago
Igg testing ---food allergies. Does anyone know about this. Is there different Igg antibodies? I searched but was unable to find that info.
I saw a Allergist yesterday. Unbelievable, the only dr. I found in the United States to try to help me. She listened to everything I had to say and she believed me. She had some answers, to why i felt so much pain after a blood transfusion, bad bug bite, etc... But guess what she trained in Europe &
I saw a Allergist yesterday. Unbelievable, the only dr. I found in the United States to try to help me. She listened to everything I had to say and she believed me. She had some answers, to why i felt so much pain after a blood transfusion, bad bug bite, etc... But guess what she trained in Europe &
designer16
in
Hughes Syndrome APS Forum
10 years ago
pick me up!
Recently i found an article on hughes syndrome in pick me up magazine issue 12, 20th march. I'm so pleased that hughes is becoming recognised more and more. I have recently been in hospital for a couple of iron transfusions and feel i am not on my own as everyone i spoke to was aware and knew about hughes
Recently i found an article on hughes syndrome in pick me up magazine issue 12, 20th march. I'm so pleased that hughes is becoming recognised more and more. I have recently been in hospital for a couple of iron transfusions and feel i am not on my own as everyone i spoke to was aware and knew about hughes
leyton
in
Hughes Syndrome APS Forum
10 years ago
We always assume any symptom is fibro........but not always the case!
Hi, Just thought I would share with you what happened to me over the last few days. I walked into my doctors surgery last Thursday. To cut a long story short, my GP ( who is so supportive and helpful regarding my fibro), said she thought I looked a bad colour. I said I had just been feeling really sick
Hi, Just thought I would share with you what happened to me over the last few days. I walked into my doctors surgery last Thursday. To cut a long story short, my GP ( who is so supportive and helpful regarding my fibro), said she thought I looked a bad colour. I said I had just been feeling really sick
Lizzyear
in
Fibromyalgia Action UK
10 years ago
From one extreme to the next! Does anyone feel like their body is letting them down :/
Hi, I'm new to this site, so I thought I would share my experience. I'm now 28 years old. I was diagnosed with ITP in 2009. My count wasn't too bad sitting normally between 70-90. I then fell pregnant in 2013, within the first two months my count had dropped to 9. I then began treatment with ivig every
Hi, I'm new to this site, so I thought I would share my experience. I'm now 28 years old. I was diagnosed with ITP in 2009. My count wasn't too bad sitting normally between 70-90. I then fell pregnant in 2013, within the first two months my count had dropped to 9. I then began treatment with ivig every
Bubbygio
in
ITP Support Association
10 years ago
Which HRT to try?Help needed, I am 39, and went into early menopause shortly after my son was 2 years old he is now 6 years :)
Hi my story is a long one I will try and make it as short as possible, i had severe endometriosis and had it all obliterated in 2006 and was told the chance of conceiving a child would be near on impossible, anyway a miracle happened and I became pregnant with our one and only little prince who is the
Hi my story is a long one I will try and make it as short as possible, i had severe endometriosis and had it all obliterated in 2006 and was told the chance of conceiving a child would be near on impossible, anyway a miracle happened and I became pregnant with our one and only little prince who is the
Harrysmummy2007
in
Fertility Network UK
10 years ago
Can surgeon delay operation for heart bi pass because I take T3?
Diagnosed with sever aortic stenosis and small amount of plaque around heart vessels. cardiologist recommended bi pass. It was found that I was anaemic as well and also had small ulcer. Tests and procedures have been set up to identify type of anaemia and I have had a blood transfusion. Ulcer to be
Diagnosed with sever aortic stenosis and small amount of plaque around heart vessels. cardiologist recommended bi pass. It was found that I was anaemic as well and also had small ulcer. Tests and procedures have been set up to identify type of anaemia and I have had a blood transfusion. Ulcer to be
LinDonaldson
in
Thyroid UK
10 years ago
January's Blog - Lisa's Journey to Diagnosis
Hi everyone. This month's blog has been written by Lisa about her experiences in getting diagnosed with lupus. We'd like to say a big thank you to Lisa for taking the time to share her story.
My name is Lisa and I am 52yrs old. I am married with two children and one grandchild. I was predominately
Hi everyone. This month's blog has been written by Lisa about her experiences in getting diagnosed with lupus. We'd like to say a big thank you to Lisa for taking the time to share her story.
My name is Lisa and I am 52yrs old. I am married with two children and one grandchild. I was predominately
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
Help with normal blood ranges when taking T3
Hello there, I have not posted or responded for quite some time. About a year ago I switched to T3 and my doctor is concerned that my thyroid function blood test are all over the place. Can anyone help me to work out which are the best blood tests to have a) toshow that my T3 levels are good and
Hello there, I have not posted or responded for quite some time. About a year ago I switched to T3 and my doctor is concerned that my thyroid function blood test are all over the place. Can anyone help me to work out which are the best blood tests to have a) toshow that my T3 levels are good and
LinDonaldson
in
Thyroid UK
10 years ago
Hopping mad, furious, about to burst a blood vessel: ultrasound scan, fibroids, oestrogen dominance associated with Hashimoto's,
Need to vent, fellow Thyroid People: Off my own back - because i have an uncaring, revenue focused, obstructive, disinterested, hostile NHS GP, i wrote to her (cannot stomach seeing her - she has the gluten effect on me) and asked for another scan as she had not bothered to monitor my fibroids since
Need to vent, fellow Thyroid People: Off my own back - because i have an uncaring, revenue focused, obstructive, disinterested, hostile NHS GP, i wrote to her (cannot stomach seeing her - she has the gluten effect on me) and asked for another scan as she had not bothered to monitor my fibroids since
Hidden
in
Thyroid UK
10 years ago
So fed up... is it all doom and gloom? Please send me some positive vibes!!
Hi all the lovely mummies and mummies to be! First of all I'd like to say I love reading all your posts and have been following what goes on here with interest for months even though I have not contributed. Feeling a bit shy and like no one would answer me, really, I suppose. I am a mother of two and
Hi all the lovely mummies and mummies to be! First of all I'd like to say I love reading all your posts and have been following what goes on here with interest for months even though I have not contributed. Feeling a bit shy and like no one would answer me, really, I suppose. I am a mother of two and
Hidden
in
Pregnancy and Parenting Support
10 years ago
So so so so SO FED UP!!!!
Rant alert guys! Im 39 weeks today, suppose to be due on monday (excited/nervous) and tbh i just wanna see my baby already! But the past few weeks have been stressful. My last appointment with the midwife, she said i was going to havd a sweep yesterday, which i thought was too early anyway but i went
Rant alert guys! Im 39 weeks today, suppose to be due on monday (excited/nervous) and tbh i just wanna see my baby already! But the past few weeks have been stressful. My last appointment with the midwife, she said i was going to havd a sweep yesterday, which i thought was too early anyway but i went
Baby_j
in
Pregnancy and Parenting Support
10 years ago
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