I'm needing some info and a reality check. I start Idelalisib rituxsan this week. I'm 90% bone marrow infiltrated (a long story) and 11q deleted. I'm scared and resigned, feel foolish and angry - lots of things. Where do I stand at this point? What does it mean to be 100% infiltrated? I'm having weekly blood transfusions, severely anemic, almost no platelets, etc and I'm too tired to find the blood count papers. Strange thing is that once I realized I needed round the clock oxygen, I can cook, small cleaning projects. Today I want to sweep the floor - somewhat, or just a path through the house. How is that possible.
From lala land,