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Kasai
My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful? Thank you! Suzy
My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful? Thank you! Suzy
Vineyard2020
in
Children's Liver Disease Foundation
4 years ago
What to do????
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Cheryl20
in
NRAS
4 years ago
What's Normal?
Hello Learn how to read and monitor your labs according to how you feel. It takes time but Doctors dont treat the patients anymore. They treat the paperwork from the lab! They go by general standards and so called Best Pracatices. Doctors have 20 minutes to spend with you and decide what's best for
Hello Learn how to read and monitor your labs according to how you feel. It takes time but Doctors dont treat the patients anymore. They treat the paperwork from the lab! They go by general standards and so called Best Pracatices. Doctors have 20 minutes to spend with you and decide what's best for
Leuy
in
Thyroid UK
4 years ago
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Heart fluttering - strange feeling in my chest
On Friday 03/07/20 was working when I felt my heart fluttering it started in the left side of my chest. It was really strange, could not put it to words how it felt. I was heating up, so I stood up left my desk and laid down on my bed for approximately 20 minutes then after that exact time everything
On Friday 03/07/20 was working when I felt my heart fluttering it started in the left side of my chest. It was really strange, could not put it to words how it felt. I was heating up, so I stood up left my desk and laid down on my bed for approximately 20 minutes then after that exact time everything
Jam121
in
AF Association
4 years ago
Eltrombopag vs Romiplostim
Has anyone had BOTH of these drugs? I am considering asking my haematologist if I can switch (after being on eltrombopag for 3 months) to Romiplostim. I see from a table showing a summary of treatments for ITP that there is a whole long list of side effects with eltrombopag but nothing significant
Has anyone had BOTH of these drugs? I am considering asking my haematologist if I can switch (after being on eltrombopag for 3 months) to Romiplostim. I see from a table showing a summary of treatments for ITP that there is a whole long list of side effects with eltrombopag but nothing significant
Gabriella28
in
ITP Support Association
4 years ago
White patches on skin
Hi has anyone experienced vitiligo white patches on there skin since they used ether prostap or Mirena coil? Iv started getting white patches and was wondering if this was the reason? Any advice would be appreciated.
Hi has anyone experienced vitiligo white patches on there skin since they used ether prostap or Mirena coil? Iv started getting white patches and was wondering if this was the reason? Any advice would be appreciated.
N_12
in
Endometriosis UK
4 years ago
Tissue RNA expression of DIO1, DIO2, and DIO3
Another article by thyroidpatientsca published on June 25, 2020. These days, we see quite a lot of appreciation of the DIO2 gene - and why variants can affect thyroid hormones in our bodies. Albeit it mostly in the form of patients asking about it and testing. But we see next to nothing beyond that
Another article by thyroidpatientsca published on June 25, 2020. These days, we see quite a lot of appreciation of the DIO2 gene - and why variants can affect thyroid hormones in our bodies. Albeit it mostly in the form of patients asking about it and testing. But we see next to nothing beyond that
helvella
Thyroid UK
in
Thyroid UK
4 years ago
New HU pages - please follow :)
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Olivia_Bostock
in
AMN EASIER
4 years ago
Hydrea
Hi I have been taking Hydrea for three days I was exhausted in the second day a bit squirmy but today I have had all this energy in morning I know it’s early days but has this happened to anyone and does this tablet ease pain I have a pain in hip it hurts more when I lay down I had Panadol Ostio
Hi I have been taking Hydrea for three days I was exhausted in the second day a bit squirmy but today I have had all this energy in morning I know it’s early days but has this happened to anyone and does this tablet ease pain I have a pain in hip it hurts more when I lay down I had Panadol Ostio
Windy51
in
MPN Voice
4 years ago
Poikilocytosis and Burr cells
I have CLL, the slow moving type since 2013; am 68 yrs old. My blood work is not that much out of the normal range and I feel fine. Had my standard checkup last week with a new oncologist who order a standard CBC plus a couple of other new blood tests; testing for the existance of poikilocytosis cells
I have CLL, the slow moving type since 2013; am 68 yrs old. My blood work is not that much out of the normal range and I feel fine. Had my standard checkup last week with a new oncologist who order a standard CBC plus a couple of other new blood tests; testing for the existance of poikilocytosis cells
markjeep51
in
CLL Support
4 years ago
How is Armour working these days...?
According to the most recent info on the STTM, Armour is currently the only good brand of NDT available. That´s kind of surprising, given how the STTM kept saying a few years ago that reformulated Armour was no longer working... So, is this more about Armour being less bad than other brands of NDT, or
According to the most recent info on the STTM, Armour is currently the only good brand of NDT available. That´s kind of surprising, given how the STTM kept saying a few years ago that reformulated Armour was no longer working... So, is this more about Armour being less bad than other brands of NDT, or
Hidden
in
Thyroid UK
4 years ago
Morning Clots
Hi everyone hope you are keeping as well as can be expected and safe. Some mornings I have been waking up with small clots in my mouth there has been no mouth injury. I have asked about them at the warfarin clinic and asked others who are on anticoagulants but no one else has them and the clinic have
Hi everyone hope you are keeping as well as can be expected and safe. Some mornings I have been waking up with small clots in my mouth there has been no mouth injury. I have asked about them at the warfarin clinic and asked others who are on anticoagulants but no one else has them and the clinic have
AlisonT2
in
Hughes Syndrome APS Forum
4 years ago
Liquid Thyroxine
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
Hurtlocker
in
Thyroid UK
4 years ago
Hashimoto's Encephalopathy
I'm wondering how much people know about this condition?. I've had what feels like Brian inflammation for over a month. Other issues I have all seem to match up. I already thought I had viral encephalitis before testing positive for covid-19. Doctor are all pointing towards my thyroid or stress/anxiety
I'm wondering how much people know about this condition?. I've had what feels like Brian inflammation for over a month. Other issues I have all seem to match up. I already thought I had viral encephalitis before testing positive for covid-19. Doctor are all pointing towards my thyroid or stress/anxiety
pauliop81
in
Thyroid UK
4 years ago
Alternative to Pentamidine
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
Grannajan
in
CLL Support
4 years ago
Itching problem
Hi my son 6 years old with biliary atresia operated with kasai procedure and he has terrible itching problem. He wakes up during the night because of the problems please any help!!!
Hi my son 6 years old with biliary atresia operated with kasai procedure and he has terrible itching problem. He wakes up during the night because of the problems please any help!!!
Blue2211
in
Children's Liver Disease Foundation
4 years ago
Sign up to the COVIDENCE UK Study and contribute to the fight against coronavirus. - Another chance to help
A team of doctors, scientists, public health specialists and health economists from six universities – Queen Mary University & Kings College, London, The London School of Hygiene & Tropical Medicine, Edinburgh & Swansea Universities and Queen’s University, Belfast – have joined together in a national
A team of doctors, scientists, public health specialists and health economists from six universities – Queen Mary University & Kings College, London, The London School of Hygiene & Tropical Medicine, Edinburgh & Swansea Universities and Queen’s University, Belfast – have joined together in a national
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
Hello sir i'm 27 old male I have only one exposure in my life with a girl who's hiv status was unknown 5 months ago.
Hello sir i'm 27 old male I have only one exposure in my life with a girl who's hiv status was unknown 5 months ago. After two weeks of exposure I got cold and sore throat ear pain and swollen lipnods. After 30 days I have taken tri dot test which came back negative and after 34 days 4th gen duo combo
Hello sir i'm 27 old male I have only one exposure in my life with a girl who's hiv status was unknown 5 months ago. After two weeks of exposure I got cold and sore throat ear pain and swollen lipnods. After 30 days I have taken tri dot test which came back negative and after 34 days 4th gen duo combo
Aditya75675
in
HIV Partners
4 years ago
Actavis v Accord levothyroxine
I usually get the actavis brand of levothyroxine, if the pharmacy forgets and gives me Teva, I give it straight back before leaving the counter. It gives me terrible heartburn. So now the pharmacy have given me accord saying it's made by the same company as actavis. So, anyone know the difference between
I usually get the actavis brand of levothyroxine, if the pharmacy forgets and gives me Teva, I give it straight back before leaving the counter. It gives me terrible heartburn. So now the pharmacy have given me accord saying it's made by the same company as actavis. So, anyone know the difference between
Arpeggio
in
Thyroid UK
4 years ago
Despite taking tirosint my tsh is still rising
Hey guys i started tirosint back in January for hypothyroidism. I was on 13 mcg at first and my levels were t4 1.08 and tsh 13.90. After a month at 25 my levels are t4 .99. And tsh has sky rocketed to 24.50. Any ideas on why the medicine is making my levels worse?
Hey guys i started tirosint back in January for hypothyroidism. I was on 13 mcg at first and my levels were t4 1.08 and tsh 13.90. After a month at 25 my levels are t4 .99. And tsh has sky rocketed to 24.50. Any ideas on why the medicine is making my levels worse?
Bobbobby
in
Thyroid UK
4 years ago
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