Alternative to Pentamidine : I am currently on... - CLL Support

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Alternative to Pentamidine

Grannajan profile image
2 Replies

I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?

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Grannajan
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Floxxy profile image
Floxxy

I was having Pentamidine as some of the drugs I was taking made me neutropenic. This was stopped when I couldn't visit the hospital because I am shielding. I disliked Pentamidine intensely as it gave me a severe sore throat and cough and I felt very unwell for days. I'm now back on reduced doses of the drugs.

Grannajan profile image
Grannajan in reply to Floxxy

I’ve been told that I must continue with the Pentamidine even though I’m shielding.

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