Experiences with

Pigmentation changes

I have now started my treatment journey with ibrutinib Also been given Septrin, Antiviral and folic acid tablets. I have only been on them for 2 days but feeling fine, bit of a fuzzy head. The only other problem is I seem to be urinating more especially at night. Had anyone else experienced this and

When will the evidence mount sufficiently? We see so many issues surrounding achieving adequate thyroid treatment during pregnancy. It is of little surprise that mothers reach birth with adequacy of thyroid hormones still being an issue. [i]J Clin Med. 2021 Mar; 10(5): 1120.[/i] [i]Published online

I was on Hydrea but suffered extreme fatigue. Now I am on Jakafi and have numerous side effects (stomach pain, diarrhea, fatigue). When I was on Hydrea my blood counts were normal. Which drug will keep my counts stable for the longest period of time?

Having just read a post where it was stated that beta blockers inhibit T4 to T3 conversion (I’m on Beta Blockers) I did a quick search on Nebivolol (mine). That led to this paper, which interestingly says only Propanalol affects conversion, the rest apparently not. Anyone have anything to share that

This is generally a low-risk issue, and does NOT apply to UK-produced products, but there is risk directly to those with thyroid deficiency and anemia. The first being the majority of members and the second being very common among members. We also have a number of members who have kidney issues

Not planning any major changes this close to the Op, but a few years ago I heard there was a good endo working in the Taunton area. I am so fed up as this could all delay the op. Any advice would be very welcome. Sheena X

Has anyone else experienced this on Dymista? If so, how long does it take before it returns please?

Got to have Vascular surgery in the next few weeks. Bloods showed up that T3 and T4 were out of kilter. I don't think I have been taking enough (Thyroid - S) I have now increased the dose - Do we think that will do the job or do I need something else to boost things along?

Hi all..soo i finally got a letter back from my hemo specialist and I'm triple negative bone marrow is healthy no abnormalities ..however she wants to start me on hydrea bc my plateletts are around 750 but I'm terrified bc iv read about that treatment and it kills cells in the bone marrow! Any advice

Hello It's been two months since I posted about the 2024 batch of Thyroid-S not working for me. Over the past two months, I decided to try bovine thyroid of Allergy Research Group instead. It seems to be working well so far. My condition has significantly improved, and I'm currently adjusting

I saw the rheumatologist this morning and I liked her a lot. She diagnosed shoulder impingement with a possibility of PMR. She has asked for further tests and ultrasound scans to get a full picture. She also asked me to do quite a rapid taper for 3 weeks off P before blood tests as she wants to see how

I hope you don’t mind me asking, but I follow on here as I have Hashimotos for 12 plus years and been quite poorly this year so additional bloods finally run and just told I have MGUS - still to see consultant but just wondering if anyone else has Hashimotos and MGUS? I’m a bit in shock so trying to

My husband's latest renal function test shows his creatine levels are now below the normal range. Is this significant? Is there anything he could or should do? I have read that camomile tea can reduce elevated levels of creatine; as he drinks that several times a day, should he reduce his intake?

Hello everyone. I haven’t posted for a while as I have been quietly and slowly reducing my Prednisolone using the tapering plans on this site. I am now down to 2.5mg and preparing to begin slowly reducing to 2mg. I recently had a full blood count which was all within the normal range apart from these

I was so poorly and Yellow that at times i would happily away with the Grim Reaper came knocking@The Head Homcho reckond all the time it was HepA, eventualy proved by result of liver biopsy. At worst ALT 6 500 normal40. Bilirubin v high but both tests on dow ward trend. Problem was, I didnt fit the

I have a thermograph every year (checks breast and upper back). For the first time I was asked if I have a thyroid issue.. it was showing as very obviously inflamed on the scan. That’s not happened before. I wondered if anyone else here has had a thermograph?

▶️ Also make notes of all levothyroxine products you receive, any changes (good or bad) you associate with taking them. We all tend to think we will remember everything but, very often, we don’t. These are all simple enough in themselves.

hi I get my labs drawn every 3 months. any thoughts on these? I take 112 mcg tirosint in the AM. Only uploading the labs that have resulted, some are still pending! Tsh 1.32 range 0.40-4.50 Ft4 1.2 range 0.80-1.80 Ft3 3.1 range 2.3-4.2 Folate 12.6 range >5.4 Vitamin d 47 range 30-100 Vitamin b12

Hi I'm hypothyroid, currently on 112mcg levo which hasn't really hekped, plus Pernicious Anaemia which i self inject every othrr day B12. I had a cortisol test back in mid august as I suspected cushings, it was 86nmol/L so instead very likely Addisons /AI. This was via my private endo who was about

Asking for my daughter who started them a couple of days ago to help with her low mood. . She is now on 100mcg and her last blood tests a month ago showed her TSH down to 50s from 93. Still a long way to go. Endo believes she has had a virus back in May which resulted in subacute throiditis this