Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are:
Leukodystrophy Carriers: healthunlocked.com/leukodys...
Leukodystrophy Support: healthunlocked.com/leukodys...
The Leukodystrophy Support page is for all those affected by a leukodystrophy, for example: those directly affected by a leukodystrophy, carers, loved ones of someone affected.
Leukodystrophy Carriers is a brand-new page for all carriers of leukodystrophy, whether symptomatic or asymptomatic, old or young, to use this space to share your experiences, feelings and worries, with the aim that you will be able to support each other.