What to do????: Hi I was initially on Benepali biologic... - NRAS

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What to do????

Cheryl20 profile image
9 Replies

Hi

I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me to consider Baricitinib 4mg oral. Not sure what to do, is this a biologic or not, in oral form, i am yet to establish. The other worrying thing is the risk of DVT and clots in the lungs, please advise, would appreciate

Cheryl

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AgedCrone profile image
AgedCrone

I’m afraid we can’t give you clinical advice Cheryl...but my layman's advice from20+ years of RA ....is to listen to your rheumatologist.

All the drugs we take interact with each other ....& there’s no way we can possibly know what your doctor has in mind.

If I were you, I would make an appointment with your rheumatology nurse and go through all your options with her.

Cheryl20 profile image
Cheryl20 in reply to AgedCrone

Thankyou🙂

Hi Cheryl

Baricitinib is a biologic. It's a new type called Jak 2 inhibitors. I started it in April. All drugs have side effects and it would be nice not to have to take any. Can you trust your rheumatologist to make the right clinical decision for you?

Cheryl20 profile image
Cheryl20 in reply to

I can indeed, she gave me a choice of 3 to choose from, that being no.1, on her list. I am aware there are SE with all, thats why i am so appreciative of your support, thankyou 🙂

in reply to Cheryl20

Good luck making your decision.

Neonkittie17 profile image
Neonkittie17 in reply to

Good luck on Baricitinib Kiki x

in reply to Neonkittie17

Thanks darling x

oldtimer profile image
oldtimer

Information on this on the NRAS website treatments pages. Also previous posts if you put it in the search box top right.

Neonkittie17 profile image
Neonkittie17

Even if people can’t recommend medication etc .. you can see those who have benefitted from it via a search on here. We do often say what has worked and hasn’t for us personally and why. When I was undecided re Rituximab infusions in 2014 I phoned the NRAS helpline and they gave me excellent advice and reassurance. Good luck, Cheryl.

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