My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful?
Thank you!
Suzy
My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful?
Thank you!
Suzy
Unfortunately it happen to my son he was one of the kids that kasai did not work he started with a 14 before surgery left the hospital on a 9 but it never went more down his first labs were high and stool was pale after that it just kept going up and up. I
I have heard in some cases it does take time for the numbers to go down but I’m not sure how much.
What is your son's progress now brother?