Kasai: My son had a Kasai procedure... - Children's Liver ...

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Kasai

Vineyard2020 profile image
3 Replies

My son had a Kasai procedure performed at 60 days old. He just had his 2 weeks labs and his bilirubin is a little higher than right after surgery. Did anyone have this happen and go on to have kasai be successful?

Thank you!

Suzy

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Vineyard2020
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PowerOfAnEagle profile image
PowerOfAnEagle

Unfortunately it happen to my son he was one of the kids that kasai did not work he started with a 14 before surgery left the hospital on a 9 but it never went more down his first labs were high and stool was pale after that it just kept going up and up. I

I have heard in some cases it does take time for the numbers to go down but I’m not sure how much.

SELVARAJA profile image
SELVARAJA

What is your son's progress now brother?

Vineyard2020 profile image
Vineyard2020 in reply to SELVARAJA

His bilirubin levels are still the same (elevated) he goes to the hospital on Wednesday to have an ultrasound. He still has jaundice so I don’t think the Kasai is working. Drs say could still kick in?

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