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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Arthritis
Hi first time here. My problem is I think no one takes me seriously. I have arthritis in my big toe knees and back. I have had it about 9 years,I have been doctors I have seen physio and specialist and in all that time I’m giving exercises I’m on co codamol & gel that’s it. I try and do most exercises
Hi first time here. My problem is I think no one takes me seriously. I have arthritis in my big toe knees and back. I have had it about 9 years,I have been doctors I have seen physio and specialist and in all that time I’m giving exercises I’m on co codamol & gel that’s it. I try and do most exercises
rgarybaldi
in
Arthritis Action
5 years ago
Unsuccessful pain management
Hi everyone, Last night I ended up being taken into my local A + E by ambulance after ringing 111. I’m on the second day of my cycle and have been having my usual symptoms; sickness, headaches, fainting, diarrhoea and feeling extremely fatigued. The pain this month is the worst it’s been, it just seems
Hi everyone, Last night I ended up being taken into my local A + E by ambulance after ringing 111. I’m on the second day of my cycle and have been having my usual symptoms; sickness, headaches, fainting, diarrhoea and feeling extremely fatigued. The pain this month is the worst it’s been, it just seems
Jessicat87
in
Endometriosis UK
5 years ago
Trying to get used to Cpap mask
Hi, I’m mainly on the thyroid page of health unlocked but I saw someone had mentioned sleep apnoea and this site so I strolled over. I also suffer from polymyalgia which is inflammation of the muscles and am on pain patches and co-codamol, unfortunately the patches fall off in hot weather and co-codamol
Hi, I’m mainly on the thyroid page of health unlocked but I saw someone had mentioned sleep apnoea and this site so I strolled over. I also suffer from polymyalgia which is inflammation of the muscles and am on pain patches and co-codamol, unfortunately the patches fall off in hot weather and co-codamol
Goldengirl01
in
Sleep Matters
5 years ago
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Where do I go from here?
Hi there, having been on the Neupropatch (3 mg) and Clonazipam (0.5 mg) since June 2017 (and Pramiprexole since 2006 until I augmented), over the last month I have increasingly been needing to take 2 co-dydramol at night to help me sleep and actually I take it every night now, otherwise hours of RLS.
Hi there, having been on the Neupropatch (3 mg) and Clonazipam (0.5 mg) since June 2017 (and Pramiprexole since 2006 until I augmented), over the last month I have increasingly been needing to take 2 co-dydramol at night to help me sleep and actually I take it every night now, otherwise hours of RLS.
Felicity21
in
Restless Legs Syndrome
5 years ago
Timings of Thyroxine, B12, Floridix, D3 and probiotics
Hi Can I pls get advice on when to take the following - - Levothyroxine - B12 - methylcobalamin - Floridix for iron - D3 - can this be taken at breakfast with cod liver oil capsule? - Probiotics
Hi Can I pls get advice on when to take the following - - Levothyroxine - B12 - methylcobalamin - Floridix for iron - D3 - can this be taken at breakfast with cod liver oil capsule? - Probiotics
HashiDaz
in
Thyroid UK
5 years ago
Now what! Pain meds
Hi everyone, I take CBD capsules and probiotics and vit d as I felt awful on px medication. I take co codamol if in a big flare. I’m going to Turkey next week and guess what I can’t take any CBD or codeine with me or else I’ll be on banged up abroad. Any suggestions what to buy otc? Tia
Hi everyone, I take CBD capsules and probiotics and vit d as I felt awful on px medication. I take co codamol if in a big flare. I’m going to Turkey next week and guess what I can’t take any CBD or codeine with me or else I’ll be on banged up abroad. Any suggestions what to buy otc? Tia
Hidden
in
Fibromyalgia Action UK
5 years ago
Non dietary B12 deficiency needs B12 jabs
Hi All, New blog post on B12 Deficiency Info website. Mentions that many with non dietary B12 deficiency are not given B12 injections. https://www.b12deficiency.info/blog/2019/07/26/wherever-we-are-in-the-world-we-are-all-in-the-same-boat/#comments In UK, national guidelines specify injections where
Hi All, New blog post on B12 Deficiency Info website. Mentions that many with non dietary B12 deficiency are not given B12 injections. https://www.b12deficiency.info/blog/2019/07/26/wherever-we-are-in-the-world-we-are-all-in-the-same-boat/#comments In UK, national guidelines specify injections where
Sleepybunny
in
Pernicious Anaemia Society
5 years ago
Don't know if I've had a diagnosis
Looking for advice. I went to my doctor on monday, I've been holding off the past couple of weeks as I went downhill with my depression and anxiety but I explained to my dr about the pain I've been having and as if there is lumps under my skin and even when I touch my thighs, arms or side ect that if
Looking for advice. I went to my doctor on monday, I've been holding off the past couple of weeks as I went downhill with my depression and anxiety but I explained to my dr about the pain I've been having and as if there is lumps under my skin and even when I touch my thighs, arms or side ect that if
Staz91
in
Fibro Friends WSM
5 years ago
Osteoporosis help
My mum is 55 and has recently been diagnosed with osteoporosis in her spine and hips, she has been off work for 7 months. At first she had a lot of back pain, after various scans she had fractured her spine without any injury so was diagnosed with osteoporosis, She has got better but still struggles
My mum is 55 and has recently been diagnosed with osteoporosis in her spine and hips, she has been off work for 7 months. At first she had a lot of back pain, after various scans she had fractured her spine without any injury so was diagnosed with osteoporosis, She has got better but still struggles
Crazycatlady_101
in
Bone Health and Osteoporosis UK
5 years ago
Osteoporosis help
My mum is 55 and has recently been diagnosed with osteoporosis in her spine and hips, she has been off work for 7 months. At first she had a lot of back pain, after various scans she had fractured her spine without any injury so was diagnosed with osteoporosis, She has got better but still struggles
My mum is 55 and has recently been diagnosed with osteoporosis in her spine and hips, she has been off work for 7 months. At first she had a lot of back pain, after various scans she had fractured her spine without any injury so was diagnosed with osteoporosis, She has got better but still struggles
Crazycatlady_101
in
Ehlers-Danlos Support UK
5 years ago
Help
Hi, I am new here, I am 36 and was diagnosed with Endo in 2011, I've had 5 laparoscopy surgeries, the latest being in Jan 2019. Since the current surgery my symptoms have got so much worse and I am really struggling. Tried the Mirena Coil for pain relief which worked for around 9 months, The Pill with
Hi, I am new here, I am 36 and was diagnosed with Endo in 2011, I've had 5 laparoscopy surgeries, the latest being in Jan 2019. Since the current surgery my symptoms have got so much worse and I am really struggling. Tried the Mirena Coil for pain relief which worked for around 9 months, The Pill with
SunnyDays82
in
Endometriosis UK
5 years ago
My GP stopped my 80mg a day liquid morphine and replaced it with 10mg of slow realise....I'm lost.
Hi, I am current sat in my bed feeling lost and in a so much pain. I have been taking oral morphine for nearly 2 years now. There is a number of reasons why I have been on this but I have had 2 hip replacements (one that utterly failed and made it worse) and have chronic joint pain in most joints that
Hi, I am current sat in my bed feeling lost and in a so much pain. I have been taking oral morphine for nearly 2 years now. There is a number of reasons why I have been on this but I have had 2 hip replacements (one that utterly failed and made it worse) and have chronic joint pain in most joints that
YoungAndPainful
in
Pain Concern
5 years ago
Low ferritin and high transferrin saturation
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Julesboz
in
Thyroid UK
5 years ago
NHS website states
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
lesbud1
in
Pernicious Anaemia Society
5 years ago
Low ferritin, normal hb , has anyone had infusions
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Tootsie2468
in
Thyroid UK
5 years ago
B12 and iron deficiency link?
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Blood results
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Neverending63
in
Thyroid UK
5 years ago
Post transplant GI problems for 6 months
Hi, I am seeking advice. First transplant 1998 - on cyclosporine and azathiaprine (and prednisalone for first few years) - no significant side effects except anaemia. Second transplant 2019 February - on Tacrolimus 8mg, Myfortic 360mg twice daily, and prednisalone 5mg. Also, still on antibiotic co-trimoxazole
Hi, I am seeking advice. First transplant 1998 - on cyclosporine and azathiaprine (and prednisalone for first few years) - no significant side effects except anaemia. Second transplant 2019 February - on Tacrolimus 8mg, Myfortic 360mg twice daily, and prednisalone 5mg. Also, still on antibiotic co-trimoxazole
JackieShan
in
Kidney Transplant Patient Support
5 years ago
Mirena Coil
Hi, I had the mirena coil fitted on Tuesday. I had GA to have a hysteroscopy & biopsy. I have a 2cm fibroid. My initial consultant recommended the Mirena, but he was not the same consultant on the day. The doctor on the day said she fitted it but didnt know if it would work for me as my heavy bleeding
Hi, I had the mirena coil fitted on Tuesday. I had GA to have a hysteroscopy & biopsy. I have a 2cm fibroid. My initial consultant recommended the Mirena, but he was not the same consultant on the day. The doctor on the day said she fitted it but didnt know if it would work for me as my heavy bleeding
FiddlyDi
in
BASHH
5 years ago
Help/advice
Hello. I was diagnosed with arthritis in my left knee around 5 years ago and then last year with arthritis in a facet joint in my lower back last year. The physiotherapist gave me exercises/stretches to do and I’ve been managing it very well until last weekend. I was almost pain free most of the time
Hello. I was diagnosed with arthritis in my left knee around 5 years ago and then last year with arthritis in a facet joint in my lower back last year. The physiotherapist gave me exercises/stretches to do and I’ve been managing it very well until last weekend. I was almost pain free most of the time
sandy8922
in
Arthritis Action
5 years ago
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