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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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feeling useless
Hi everyone Yesterday I had a migraine made me feel quite ill . I literally ached from head to toe and did not know what to do with myself. I took some co codamol which just makes me sleep and feel groggy. I slept best part of the day and all night. My headache has gone but everything else still hurts
Hi everyone Yesterday I had a migraine made me feel quite ill . I literally ached from head to toe and did not know what to do with myself. I took some co codamol which just makes me sleep and feel groggy. I slept best part of the day and all night. My headache has gone but everything else still hurts
Jeskin
in
Fibromyalgia Action UK
2 years ago
Help!
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Lilybeans
in
Restless Legs Syndrome
2 years ago
Drs phone call and advice on buying the right supplements please
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
catpurple7
in
Thyroid UK
2 years ago
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Bisoprolol and Codiene
I have just been to the dentist and she has prescribed Amoxicillin and Co-Codamol. I take Warfarin and Bisoprolol for my Afib and wondered if any of you knew about any unsavoury interactions. I know the antibiotic affects the Warfarin and I will need an INR check in three days, but it’s the Bisoprolol
I have just been to the dentist and she has prescribed Amoxicillin and Co-Codamol. I take Warfarin and Bisoprolol for my Afib and wondered if any of you knew about any unsavoury interactions. I know the antibiotic affects the Warfarin and I will need an INR check in three days, but it’s the Bisoprolol
Tellingfibs
in
Atrial Fibrillation Support
2 years ago
2nd bloodtest in 2 weeks.
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
catpurple7
in
Thyroid UK
2 years ago
Iron infusions
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
Laura9594
in
Restless Legs Syndrome
2 years ago
A question about Thyroid blood tests.
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Bubydizer
in
Thyroid UK
2 years ago
Excessive sweating
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
Farooqji
in
Cure Parkinson's
2 years ago
Oily, flaky, or inflamed skin
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
With Parkinson’s, it’s common for the skin on your face to become very oily, especially on your forehead and on the sides of your nose (this is known as seborrhea). You may also notice that your eyebrows and scalp get oily too, resulting in flaky skin (dandruff). It’s also fairly common to experience
Farooqji
in
Cure Parkinson's
2 years ago
Soluble tablet shock
Hi all I have a problem swallowing tablets so I try to get soluble ones but not any more, I had no idea how much salt is in them. They are soluble and fizz because they are a bit like bicarbonate of soda 3 soluble co-codable or paracetamol is the equivalent to a tea spoon of salt and if you take the
Hi all I have a problem swallowing tablets so I try to get soluble ones but not any more, I had no idea how much salt is in them. They are soluble and fizz because they are a bit like bicarbonate of soda 3 soluble co-codable or paracetamol is the equivalent to a tea spoon of salt and if you take the
Jako999
in
British Heart Foundation
2 years ago
Before You Book (or recommend) That Iron Infusion
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Hidden
in
Restless Legs Syndrome
2 years ago
Has anyone come off prednisolone completely for Vasculitis GPA?
Hi everyone, I have been diagnosed for a year with GPA, I was very ill by the time I was diagnosed with an ANCA count of >177, it has just got down to 0 and I am on many medications including Methotrexate, Micophenolate Mofetil, Co-trimoxazole, 2 lots of blood pressure meds, Prednisolone and others.
Hi everyone, I have been diagnosed for a year with GPA, I was very ill by the time I was diagnosed with an ANCA count of >177, it has just got down to 0 and I am on many medications including Methotrexate, Micophenolate Mofetil, Co-trimoxazole, 2 lots of blood pressure meds, Prednisolone and others.
Wyllow
in
Vasculitis UK
2 years ago
Covid at last!
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
richardp
in
CLL Support
2 years ago
Newby on the block!
I've recently been advised my GP to increase my Pred to 15mg daily. I no sooner get over pain in one area and its starts in another. It feels like I'm being attacked. Currently I have groin pain on my left side and am sure it's going to venture to my right side very soon. I have tried everything to see
I've recently been advised my GP to increase my Pred to 15mg daily. I no sooner get over pain in one area and its starts in another. It feels like I'm being attacked. Currently I have groin pain on my left side and am sure it's going to venture to my right side very soon. I have tried everything to see
pntess
in
PMRGCAuk
2 years ago
seize up
Hi everyone, Those with arthritis in the hip, I wonder if you have any tips for me. When I try to stand up from a chair, increasingly I can only describe it as seizing up. I can not put any weight onto my bad leg and just stand there in terrible pain unable to move at all. I use one crutch but that
Hi everyone, Those with arthritis in the hip, I wonder if you have any tips for me. When I try to stand up from a chair, increasingly I can only describe it as seizing up. I can not put any weight onto my bad leg and just stand there in terrible pain unable to move at all. I use one crutch but that
cmjoyce
in
Arthritis Action
2 years ago
Advice Please, feeling a bit lost.
hello everyone, I've recently been diagnosed by the GP with Rheumatoid arthritis. This was 2 weeks ago when I went with sore hands and my bloods came back with extremely elevated CRP. Since those 2 weeks I've now got 2 painful swollen knees, an ankle I can barely walk on & 2 hands and wrists that
hello everyone, I've recently been diagnosed by the GP with Rheumatoid arthritis. This was 2 weeks ago when I went with sore hands and my bloods came back with extremely elevated CRP. Since those 2 weeks I've now got 2 painful swollen knees, an ankle I can barely walk on & 2 hands and wrists that
Nelliekel
in
NRAS
2 years ago
Reducing levothyroxine and taking HRT
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
Pooky1
in
Thyroid UK
2 years ago
How difficult is it to diagnose Adenomyosis?
Hello, I hope you are all well and surviving the heatwave! Long story, but for 6+ years I have been experiencing worsening gynaecological pain. This started during ovulation and was a fullness within the pelvis and sharp pains within the rectum and to the lower right of my back/abdomen. Gynae referred
Hello, I hope you are all well and surviving the heatwave! Long story, but for 6+ years I have been experiencing worsening gynaecological pain. This started during ovulation and was a fullness within the pelvis and sharp pains within the rectum and to the lower right of my back/abdomen. Gynae referred
Jennyjenjen01
in
Endometriosis UK
2 years ago
Mannitol and sense of Taste/Smell
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
alexask
in
Cure Parkinson's
2 years ago
Hi everyone.
Those of you taking co-codamol for your pain, what do you take to keep constipation away? Thank you CmJoyce
Those of you taking co-codamol for your pain, what do you take to keep constipation away? Thank you CmJoyce
cmjoyce
in
Arthritis Action
2 years ago
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