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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Update
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Sparklingsunshine
in
Thyroid UK
2 years ago
Newbie looking for advice on recent test result
I was diagnosed with an underactive thyroid in april 2022. What a rollercoaster! Do I have an autoimmune thyroid disorder? My first test was looking at reason for a change in bowel movements and fatigue. Doctor responded directly to the TSH level and placed me on 25mg levothyroxine. Serum
I was diagnosed with an underactive thyroid in april 2022. What a rollercoaster! Do I have an autoimmune thyroid disorder? My first test was looking at reason for a change in bowel movements and fatigue. Doctor responded directly to the TSH level and placed me on 25mg levothyroxine. Serum
Bambam22
in
Thyroid UK
2 years ago
confused
I have just had my co codamol 30/500 changed to dihydrocodeine 30mg along with paracetamol. My GP said to take them exactly the same way as I took my co codamol, 2 tablets 4 times a day, and also paracetamol 2 tablets 4 times a day. I was doing this for just over a week when my sisster said she thought
I have just had my co codamol 30/500 changed to dihydrocodeine 30mg along with paracetamol. My GP said to take them exactly the same way as I took my co codamol, 2 tablets 4 times a day, and also paracetamol 2 tablets 4 times a day. I was doing this for just over a week when my sisster said she thought
momander
in
Pain Concern
2 years ago
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Low iron levels
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
Maggiv
in
Thyroid UK
2 years ago
tiHellish night
hi,thankyou all for replying to me regarding Amitriptyline.took half tab.last night and the RLS was unbearable to say the least.I'm feeling so hopeless at present, no matter what I take nothing gives me ease.I'm very happy for those of you who have found a medication that works. Im very aware of augmentation
hi,thankyou all for replying to me regarding Amitriptyline.took half tab.last night and the RLS was unbearable to say the least.I'm feeling so hopeless at present, no matter what I take nothing gives me ease.I'm very happy for those of you who have found a medication that works. Im very aware of augmentation
Whymelord
in
Restless Legs Syndrome
2 years ago
a bit of good news
well I had a long chat with my GP yesterday,well as long as it is possible now a days!!! Turns out I have gall stones!!! It's been nothing but bad news since 2021 when I had my first heart attack, then the second one in June of this year. Since then I have not been allowed to take Naproxen due to
well I had a long chat with my GP yesterday,well as long as it is possible now a days!!! Turns out I have gall stones!!! It's been nothing but bad news since 2021 when I had my first heart attack, then the second one in June of this year. Since then I have not been allowed to take Naproxen due to
momander
in
British Heart Foundation
2 years ago
Methotrexate in the US
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Amkoffee
in
PMRGCAuk
2 years ago
co-trimoxazole and anaemia/folate deficiency
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
fapumpkin
in
CLL Support
2 years ago
pain medication
I have the complication of having a chronic back condition which means I am in pain all the time. I take gabapentin and co codamol and also recently ralvo patches. Last year and earlier this year, I suffered a heart attack, so now cannot take any kind of anti inflamatory. My GP worked with me last year
I have the complication of having a chronic back condition which means I am in pain all the time. I take gabapentin and co codamol and also recently ralvo patches. Last year and earlier this year, I suffered a heart attack, so now cannot take any kind of anti inflamatory. My GP worked with me last year
momander
in
British Heart Foundation
2 years ago
Additional drugs stopped. Is this other peoples experience.
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
Jake_Bullet
in
CLL Support
2 years ago
Strange iron panel results (part 2!)
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
Cookerybookaddict86
in
Thyroid UK
2 years ago
Travelling abroad with Gabapentin
hi I am due to travel to Thailand soon but am worried as I have to take my medications including co codamol, Amitriptyline and Gabapentin - I am panicking that I will be stopped by security (my panic is running away with me!) Anyone got any advice/experience of travelling with their medications…Iv seemed
hi I am due to travel to Thailand soon but am worried as I have to take my medications including co codamol, Amitriptyline and Gabapentin - I am panicking that I will be stopped by security (my panic is running away with me!) Anyone got any advice/experience of travelling with their medications…Iv seemed
Givemestrength65
in
Fibromyalgia Action UK
2 years ago
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
in
Pernicious Anaemia Society
2 years ago
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Rapid responses to daily subcutaneous B12 injections??
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
faithrenae
in
Pernicious Anaemia Society
2 years ago
Test Results after discussion on here
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
CyclingDog
in
Pernicious Anaemia Society
2 years ago
Iron advice for my sister
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Peppermints
in
Pernicious Anaemia Society
2 years ago
Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
nosleep1969
in
Restless Legs Syndrome
2 years ago
Do your oncologists ask for the CEA test with the CA15-3 or CA27.29
when I have my CA15-3 blood test, my oncologist also asks that I get the CEA test as well. But he keeps saying that the CEA is non specific. Do any of you ladies have this done regularly?
when I have my CA15-3 blood test, my oncologist also asks that I get the CEA test as well. But he keeps saying that the CEA is non specific. Do any of you ladies have this done regularly?
MyMiracle13
in
SHARE Metastatic Breast Cancer
2 years ago
Co Trimoxazole
Hope everyone is ok with this heat. I just wanted to ask if anyone is on a maintenance drug Co Trimoxazole & if so how long have you been in remission. My consultant has said that by December we will start steroid reduction & cease rituximab but carry on with the co Trimoxazole. Although i am excited
Hope everyone is ok with this heat. I just wanted to ask if anyone is on a maintenance drug Co Trimoxazole & if so how long have you been in remission. My consultant has said that by December we will start steroid reduction & cease rituximab but carry on with the co Trimoxazole. Although i am excited
juli-pa
in
Vasculitis UK
2 years ago
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