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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Tips for living with endo & fibromyalgia?
Wondering if anyone has any tips on how to live with both! I’m going through the process of getting diagnosed with fibro (although it is very likely as it runs in my family) and I am looking for some advise on how to manage the pain. Seems like my endo pain is setting off fibro flares too 🙃 I am in
Wondering if anyone has any tips on how to live with both! I’m going through the process of getting diagnosed with fibro (although it is very likely as it runs in my family) and I am looking for some advise on how to manage the pain. Seems like my endo pain is setting off fibro flares too 🙃 I am in
puzzleprincess
in
Endometriosis UK
2 years ago
Husband’s recent iron panel labs show dire ferritin but other levels appear to say he shouldn’t supplement. Unless I’ve misunderstood
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
Noelnoel
in
Thyroid UK
2 years ago
Should I be taking an iron supplement?
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
WhyAmISoTired
in
Thyroid UK
2 years ago
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Is it RA?
Hi everyone, just looking some advice. Over the past two year I have been having recurrent sore throats, seem to be nearly every other week but haven't needed medication treatment. Since having my two children I have always had 'stiff hips' and any time I took up running had to stop after a few runs
Hi everyone, just looking some advice. Over the past two year I have been having recurrent sore throats, seem to be nearly every other week but haven't needed medication treatment. Since having my two children I have always had 'stiff hips' and any time I took up running had to stop after a few runs
Livesoncoffee
in
NRAS
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
Leg pain and Taxol
I'm on 3 weekly taxol with 1 week off and this is my week off and I'm still feeling absolutely awful. Not helped by the fact I've got really bad catarrah and a cough. Last night i woke up with horrible nerve pains in my legs. The pain was awful to the point I didnt know what to do with myself. Co-codamol
I'm on 3 weekly taxol with 1 week off and this is my week off and I'm still feeling absolutely awful. Not helped by the fact I've got really bad catarrah and a cough. Last night i woke up with horrible nerve pains in my legs. The pain was awful to the point I didnt know what to do with myself. Co-codamol
doodoolatrice
in
My Ovacome
2 years ago
B12 deficiency post cholecystectomy
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
B12life
in
Pernicious Anaemia Society
2 years ago
Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
RLS restlessness vs electric shock feeling
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
RC723
in
Restless Legs Syndrome
2 years ago
Advice on latest bloods
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Spangle15
in
Thyroid UK
2 years ago
SEVERE LOWER BACK PAIN
SEVERE BACK PAIN I am 83 and have been suffering from GCA/PMR for about 6 years. I am on 7mgms prednisolone. Co codamol helps pain a bit but obviously cant take too many. I was advised to try physiotherapy, They gave me some exercises to do and go back in three weeks but they have not helped and
SEVERE BACK PAIN I am 83 and have been suffering from GCA/PMR for about 6 years. I am on 7mgms prednisolone. Co codamol helps pain a bit but obviously cant take too many. I was advised to try physiotherapy, They gave me some exercises to do and go back in three weeks but they have not helped and
astley123
in
PMRGCAuk
2 years ago
Relief
I adked my GP if I could go on dehydracodeine instead of co codamol. Ive been on co codamol 30//00 for years for chronic pain, with no constipation at all, but since starting the dehydracodeine ive been really constipated. I spoke to my GP and was told that it was because it was a mote concentrated
I adked my GP if I could go on dehydracodeine instead of co codamol. Ive been on co codamol 30//00 for years for chronic pain, with no constipation at all, but since starting the dehydracodeine ive been really constipated. I spoke to my GP and was told that it was because it was a mote concentrated
momander
in
Pain Concern
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Pickle500
in
Pernicious Anaemia Society
2 years ago
More about Dexascan / AA / Adcal
I opened up intending to post about my latest AA Prescription dilemma - and still would like some advice. I wasn't sure whether to add to Blackcat1M's post - but it seemed a bit rude to invade her space! Anyhow, my GP prescribed me AA and Adcal -D3 early May on basis I had been on Pred since PMR arrived
I opened up intending to post about my latest AA Prescription dilemma - and still would like some advice. I wasn't sure whether to add to Blackcat1M's post - but it seemed a bit rude to invade her space! Anyhow, my GP prescribed me AA and Adcal -D3 early May on basis I had been on Pred since PMR arrived
Hopingsail
in
PMRGCAuk
2 years ago
Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
Is this a start of a flare
Been slow tapering for a long time and down to 7 going down to 6.5 mg. Took my 7 two days ago so had two days of 6.5. This morning work up with stiff right neck. Became this afternoon a painful right neck. Have taken Co Codamol, as that is what I am on for painful knee. Have put heated pad on
Been slow tapering for a long time and down to 7 going down to 6.5 mg. Took my 7 two days ago so had two days of 6.5. This morning work up with stiff right neck. Became this afternoon a painful right neck. Have taken Co Codamol, as that is what I am on for painful knee. Have put heated pad on
Maudie19
in
PMRGCAuk
2 years ago
OFF TOPIC:,20 year old daughter in acute psychiatric clinic today due to increasing intrusive and suicidal thoughts.
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Swissgirl
in
Thyroid UK
2 years ago
Probiotics? Good or bad for us. Anyone know the answer?
Hi Everyone, Well I'm 6 months post treatment with O&V and all going well. I recently had a review with my consultant and she has taken me off the antibiotics Co-Trimoxazole which I was taking morning and night on Mon Wed and Fri. I was on these throughout the year of treatment and for 6 months after
Hi Everyone, Well I'm 6 months post treatment with O&V and all going well. I recently had a review with my consultant and she has taken me off the antibiotics Co-Trimoxazole which I was taking morning and night on Mon Wed and Fri. I was on these throughout the year of treatment and for 6 months after
prbs2707
in
CLL Support
2 years ago
Migraines after ablation
Had my 2nd ablation last week and since immediately afterwards have been plagued with migraines almost every day. So much so have to lie down every day to sleep. Been taking co-codamol but they not helping. Went to see someone but because of my cardiac issues can only take the co-codamol. Was just wondering
Had my 2nd ablation last week and since immediately afterwards have been plagued with migraines almost every day. So much so have to lie down every day to sleep. Been taking co-codamol but they not helping. Went to see someone but because of my cardiac issues can only take the co-codamol. Was just wondering
julesp
in
AF Association
2 years ago
Hypothyroid and Anemia
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
MightyMay
in
Thyroid UK
2 years ago
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