As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down.
Recent test results: B12=651(187-883), vit D=92(50-200), folate=7.1(3.1-20), ferritin =13(5-204)
Haemoglobin concentration 130 (115-160),
Total white blood count 6.85(4.0-11.0)
Platelet count 327(150-450)
Red cell count 4.45(3.8-5.8)
Haematocrit 0.407(0.35-0.47)
Mean cell volume 91.5(84-102)
Mean cell haemoglobin level 29.2(27.0-38.0)
Haemoglobin concentration 319(300-350)
RDW-CV13.0(11.0-15.0)
Total thyroidectomy in January, last bloods TSH 2.7 (0.35-4.9), T4 12.3(9.1-17.6), T3 3.4(2.4-6).
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Pennypingu
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I don't understand iron - and am upset reading how you have and are being treated -
You have IBS and absorption issues so would have thought it sensible to prescribe you liquid T4 ?
All I know is that when my ferritin was down at 22 - and I was very unwell -
before supplementing anything -
I was around 70 and I had to have a colonoscopy and endoscopy to rule anything else out -
and everywhere I researched suggested ferritin needed to be at least over 70 for any thyroid hormone replacement to work well :
When with known IBS and absorption issues -
When with primary hypothyroidism and low stomach acid - you will struggle to extract and break down nutrient dense foods -
and your ferritin is not going to build to a decent level any time soon -
It took me over year supplementing ferritin to tip over 70 - and I was refused an iron infusion.
I'm with Graves post RAI thyroid ablation 2005 at age 58 and my issues started when around 65 as my dose of T4 was reduced due to TSH readings and I believe probably age related -
I remember replying to you when you first posted on this patient to patient forum -
You can find all your previous posts and all your replies by pressing the icon top right facing me on my laptop - where you also find - MyHub - Chat - Post - Alerts and Menu icons.
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