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Interesting fact about B12 levels.
Just found this interesting article on how B12 helps with ME and CRF. https://www.drmyhill.co.uk/wiki/B12_-_rationale_for_using_vitamin_B12_in_CFS One sentence in the article struck me. 'The "normal" levels of B12 have been set at those levels necessary to prevent pernicious anaemia - this may not
Just found this interesting article on how B12 helps with ME and CRF. https://www.drmyhill.co.uk/wiki/B12_-_rationale_for_using_vitamin_B12_in_CFS One sentence in the article struck me. 'The "normal" levels of B12 have been set at those levels necessary to prevent pernicious anaemia - this may not
charks
in
Pernicious Anaemia Society
1 year ago
Provera for 1 week only
Hi Everyone, I started heavily bleeding on Desogestrel after 4 months so I asked to try Provera. The Dr would only give me a weeks worth, enough to try and stop the bleeding for my smear test next week. I thought you could take it for longer than that at a lower dose as an alternative to the mini
Hi Everyone, I started heavily bleeding on Desogestrel after 4 months so I asked to try Provera. The Dr would only give me a weeks worth, enough to try and stop the bleeding for my smear test next week. I thought you could take it for longer than that at a lower dose as an alternative to the mini
Sheep2
in
Endometriosis UK
1 year ago
Is it GCA?
I have recent left temple tenderness that is tender to the touch and especially hurts when I yawn or open my mouth wide. Also, my jaw gets mildly sore easily. (usually from chewing). No headaches, really, but random tender spots that come and go. SED was 45 when this first started a couple of weeks ago
I have recent left temple tenderness that is tender to the touch and especially hurts when I yawn or open my mouth wide. Also, my jaw gets mildly sore easily. (usually from chewing). No headaches, really, but random tender spots that come and go. SED was 45 when this first started a couple of weeks ago
ScaredDcat
in
PMRGCAuk
1 year ago
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Neuroprotection Cheat Sheet
Summary: Targets to impede neurodegeneration. 1. Maintain adequate levels of neuronal NAD+. 2. Use Nicotinic Riboside 5 13 3. Avoid MNM 13 4. Block NAMPT [u]a. Melatonin inhibits NAMPT 16 17[/u] [u] [/u] b. Mangostin inhibits NAMPT 18–20 5. Block SARM1 a. berberine
Summary: Targets to impede neurodegeneration. 1. Maintain adequate levels of neuronal NAD+. 2. Use Nicotinic Riboside 5 13 3. Avoid MNM 13 4. Block NAMPT [u]a. Melatonin inhibits NAMPT 16 17[/u] [u] [/u] b. Mangostin inhibits NAMPT 18–20 5. Block SARM1 a. berberine
House2
in
Cure Parkinson's
1 year ago
Spinal Stenosis
Hi folks, I’ve been posting on this platform for years, looking for answers and sharing my own experiences. I’ve had severe T for over 30 years. There have been incidences that have caused my T to increase. It’s either a bump to the head or the after affects of looking up, like when I’m painting a
Hi folks, I’ve been posting on this platform for years, looking for answers and sharing my own experiences. I’ve had severe T for over 30 years. There have been incidences that have caused my T to increase. It’s either a bump to the head or the after affects of looking up, like when I’m painting a
Wringing1212
in
Tinnitus UK
1 year ago
Worried
I had to have a CT angiogram done in October,large amount of radiation,I was very worried about so much,but recently I had to have a CT brain scan done as well as my migraines have been weekly,I'm so worried about so much radiation,now I have to have a root treatment which will involve more x-rays..really
I had to have a CT angiogram done in October,large amount of radiation,I was very worried about so much,but recently I had to have a CT brain scan done as well as my migraines have been weekly,I'm so worried about so much radiation,now I have to have a root treatment which will involve more x-rays..really
Beon
in
Anxiety Support
1 year ago
length of time for biopsy results
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hidden
in
Lung Conditions Community Forum
1 year ago
AMA positive with itchy skin
Not gonna lie, my head is still spinning since being AMA positive. I’ve recently had a fibro scan with score 4.7 which I believe is a good result. Of course with the help of Dr Google I’ve read some positive info about being diagnosed early. However, I’ve also found some articles where if diagnosed
Not gonna lie, my head is still spinning since being AMA positive. I’ve recently had a fibro scan with score 4.7 which I believe is a good result. Of course with the help of Dr Google I’ve read some positive info about being diagnosed early. However, I’ve also found some articles where if diagnosed
FarahS
in
PBC Foundation
1 year ago
5HTP for tinnitus induced insomnia
5 HTP appears to be helpful for many to improve sleep It apparently increases serotonin levels which are necessary for sleep However it appears to be a double edged sword as there is a lot of conflicting information that it aggravates tinnitus rather than ameliorating it Just wondering if anyone
5 HTP appears to be helpful for many to improve sleep It apparently increases serotonin levels which are necessary for sleep However it appears to be a double edged sword as there is a lot of conflicting information that it aggravates tinnitus rather than ameliorating it Just wondering if anyone
DR650SE
in
Cure Parkinson's
1 year ago
Inner ear problem
Since starting Prednisolone in March 2022 my hearing has worsened, particularly my right ear. I keep my ears clean so wax is not the problem. I initially thought it might be an infection that would clear in time, Nearly 12 months later the right ear is still a problem the symptoms being regular gurgling
Since starting Prednisolone in March 2022 my hearing has worsened, particularly my right ear. I keep my ears clean so wax is not the problem. I initially thought it might be an infection that would clear in time, Nearly 12 months later the right ear is still a problem the symptoms being regular gurgling
Golf-1
in
PMRGCAuk
1 year ago
mtx and adalimumab/ Idacio
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
lindyloo2018
in
NRAS
1 year ago
Dizziness, tinnitus, tingling
for about 3 weeks now I’ve been having tinnitus that comes and goes. For the last 2 weeks though it’s been constant in my left ear. I’ve been having horrid bouts of dizziness but not like the room is spinning, more like a buzzing feeling, like when you use an electric toothbrush for instance. I’ve been
for about 3 weeks now I’ve been having tinnitus that comes and goes. For the last 2 weeks though it’s been constant in my left ear. I’ve been having horrid bouts of dizziness but not like the room is spinning, more like a buzzing feeling, like when you use an electric toothbrush for instance. I’ve been
Catmum_22
in
Tinnitus UK
1 year ago
New here .
Good morning All. I’m new here. I started with tinnitus just after Christmas. I believe it was triggered by some woodwork I was doing foolishly not wearing ear protection .! I was using a multitool my ears were ringing after. Initially felt a bunged up feeling so went for ear wax clean out. A couple
Good morning All. I’m new here. I started with tinnitus just after Christmas. I believe it was triggered by some woodwork I was doing foolishly not wearing ear protection .! I was using a multitool my ears were ringing after. Initially felt a bunged up feeling so went for ear wax clean out. A couple
Marsh3l
in
Tinnitus UK
1 year ago
Prescribed Diamox, on pred, not feeling good
Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the last ozurdex injection was in December. Check up on Thursday showed no odeama and the retina is holding but pressure was up to 33. Dr prescribed Diamex, with Diffu X to protect potassium, and additional drops. I took 2 x 250mg
Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the last ozurdex injection was in December. Check up on Thursday showed no odeama and the retina is holding but pressure was up to 33. Dr prescribed Diamex, with Diffu X to protect potassium, and additional drops. I took 2 x 250mg
Nippersmum
in
PMRGCAuk
1 year ago
Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
1 year ago
Failed Back Surgery plus Cauda Equina
I had a Laminectomy forSevere Spinal Stenosis which initially worked but has now failed and is worse than before. I had a Triple Bypass and Mitral Valve Repair and have now been diagnosed with heart failure so I’m not able to take any of the normal pain relief medication. The GP has now referred me to
I had a Laminectomy forSevere Spinal Stenosis which initially worked but has now failed and is worse than before. I had a Triple Bypass and Mitral Valve Repair and have now been diagnosed with heart failure so I’m not able to take any of the normal pain relief medication. The GP has now referred me to
Davewm
in
Pain Concern
1 year ago
MS Hug
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
cljones
in
My MSAA Community
1 year ago
Hearing test
Still somewhat confused coz many t is loud for people that their sound even though isnt lower but at least the quality is worse however hearing test is fine Isnt it fair to say hearing loss is a gradual must
Still somewhat confused coz many t is loud for people that their sound even though isnt lower but at least the quality is worse however hearing test is fine Isnt it fair to say hearing loss is a gradual must
Toughmathew
in
Tinnitus UK
1 year ago
GCA OR TMJ?
Well after going through all the GCA tests, including biopsy which shows a 3 cm piece of the temporal artery with no extra wear and tear, it would seem that Rheumie cannot definitely say it is or isn't GCA and so has begun reducing the Pred. She wanted to go from 60 mg to 50 this morning, but this morning
Well after going through all the GCA tests, including biopsy which shows a 3 cm piece of the temporal artery with no extra wear and tear, it would seem that Rheumie cannot definitely say it is or isn't GCA and so has begun reducing the Pred. She wanted to go from 60 mg to 50 this morning, but this morning
Missus835
in
PMRGCAuk
1 year ago
New Diagnosis of Acoustic Neuroma
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
Nikzstew
in
Acoustic Neuroma Support
1 year ago
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