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benralizumab (fasedra)
I am keen to hear of experiences with benralizumab including side-effects and the length of time it’s remained effective (or whether it stopped working after a while). Also whether it has enabled people to come off oral steroids and bronchodilators. I was diagnosed with severe eosinophilic asthma,
I am keen to hear of experiences with benralizumab including side-effects and the length of time it’s remained effective (or whether it stopped working after a while). Also whether it has enabled people to come off oral steroids and bronchodilators. I was diagnosed with severe eosinophilic asthma,
Hil101
in
Asthma Community Forum
2 years ago
Ivermectin helps me tremendously with Pfiesteria the marine parasite condition PLUS Lyme
I am beginning to understand why as I navigate your helpful site. The nerve component and the brain component. I just wonder if I can find any others out there who are battling these two conditions or who has Pfiesteria parasite infection. I want to share that ivermectin has controlled, not cured
I am beginning to understand why as I navigate your helpful site. The nerve component and the brain component. I just wonder if I can find any others out there who are battling these two conditions or who has Pfiesteria parasite infection. I want to share that ivermectin has controlled, not cured
Heartmind1
in
Cure Parkinson's
2 years ago
Hair texture changes? Hyper or hypo?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
Tomchr
in
Thyroid UK
2 years ago
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peripheral neuropathy causes!
How do we know which disease is causing it? To cut a long story short , I have been seen by a neurologist to investigate the peripheral neuropathy from my diagnosis of pernicious anaemia. He ordered a brain and neck MRI and blood tests and I got the results today . I have severe stenosis of my cervical
How do we know which disease is causing it? To cut a long story short , I have been seen by a neurologist to investigate the peripheral neuropathy from my diagnosis of pernicious anaemia. He ordered a brain and neck MRI and blood tests and I got the results today . I have severe stenosis of my cervical
Scott-rock
in
Pernicious Anaemia Society
2 years ago
EDT in right ear.
Morning all I think my eustacian tube could be causing my high tinnitus and head discomfort.I did see an ent clinician at a local clinic but unfortunately I was focused on the T and didn't mention my suspicions re ETD.I feel as if my ear has water in it and I know its okay as I hade a hearing test in
Morning all I think my eustacian tube could be causing my high tinnitus and head discomfort.I did see an ent clinician at a local clinic but unfortunately I was focused on the T and didn't mention my suspicions re ETD.I feel as if my ear has water in it and I know its okay as I hade a hearing test in
ETHEL103
in
Tinnitus UK
2 years ago
Balance, dizziness and tinnitus.
Hi all, I'm new to this part of HU.Does anyone get dizziness and balance problems with tinnitus (one sided only) Have been under the ENT department and they were not very helpful, this was 3 to 4 years ago. Wondering if a hearing aid would help and considering going private. I also have a neurological
Hi all, I'm new to this part of HU.Does anyone get dizziness and balance problems with tinnitus (one sided only) Have been under the ENT department and they were not very helpful, this was 3 to 4 years ago. Wondering if a hearing aid would help and considering going private. I also have a neurological
penelope2
in
Tinnitus UK
2 years ago
New to tinnitus
Hello all,This is my first post on this forum. I developed Tinnitus few weeks ago after an ear infection. It was difficult to deal with, but I managed to get to grips with it. Then last night, it went up massively and has now been constant for 15 hours. I am really struggling to cope with it, and am
Hello all,This is my first post on this forum. I developed Tinnitus few weeks ago after an ear infection. It was difficult to deal with, but I managed to get to grips with it. Then last night, it went up massively and has now been constant for 15 hours. I am really struggling to cope with it, and am
Vm1967
in
British Tinnitus Association
2 years ago
Air Travel and Tinnitus
I may need to fly for a few hours and am concerned about increasing tinnitus. I have flown in the past and had ear pain. In addition I suffer from motion sickness which probably has to do with inner ear issues. I travel to the mountains a couple times annually and have trouble releasing the pressure
I may need to fly for a few hours and am concerned about increasing tinnitus. I have flown in the past and had ear pain. In addition I suffer from motion sickness which probably has to do with inner ear issues. I travel to the mountains a couple times annually and have trouble releasing the pressure
OKShakespeare
in
British Tinnitus Association
2 years ago
Suspected B12 deficiency and about to start SI
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Gecko22
in
Pernicious Anaemia Society
2 years ago
Hearing loss and tinnitus
Hello, This is my first post here. Hope you’re all doing well. I’ve had repeated ear infections and persistent fluid behind the ear. I’ve got a scan coming but since losing hearing a little in that ear I’ve started to get more regular tinnitus. Any tips? All welcome! Thanks.
Hello, This is my first post here. Hope you’re all doing well. I’ve had repeated ear infections and persistent fluid behind the ear. I’ve got a scan coming but since losing hearing a little in that ear I’ve started to get more regular tinnitus. Any tips? All welcome! Thanks.
LJM15
in
British Tinnitus Association
2 years ago
Relapse after 4 years
I was diagnosed with PMR after having a Erythrocyte sedimentation rate of 31mm/hr in 2017 Went on steroids and managed to come off when the rate dropped to 19mm/hr in early 2019 I play golf and was diagnosed with a blood clot in June 2022. So on medication for 12 weeks to clear. Advised not to play
I was diagnosed with PMR after having a Erythrocyte sedimentation rate of 31mm/hr in 2017 Went on steroids and managed to come off when the rate dropped to 19mm/hr in early 2019 I play golf and was diagnosed with a blood clot in June 2022. So on medication for 12 weeks to clear. Advised not to play
Starman53
in
PMRGCAuk
2 years ago
flare up big style ,
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
Seashoreshanty
in
NRAS
2 years ago
Bad episode of Vertigo and blood tests
Hello everyone, I used to have subclinical Hashimoto for more than 10 years and was on 25 or 50 mcg of Levothyroxine. Several months ago I started to take Tirosint gel capsules 50 mcg. I did not feel the difference, just maybe my tinnitus became a bit louder and started effecting my hearing. Recently
Hello everyone, I used to have subclinical Hashimoto for more than 10 years and was on 25 or 50 mcg of Levothyroxine. Several months ago I started to take Tirosint gel capsules 50 mcg. I did not feel the difference, just maybe my tinnitus became a bit louder and started effecting my hearing. Recently
Gal_Ka
in
Thyroid UK
2 years ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
Dizziness and vertigo
Hi I've got PA and self inject for 1 year, generally 1 monthly. I have started suffering dizziness and vertigo. Laying down makes the room spin and I'm walking like I'm drunk. I'm wondering if this is a symptom or something else? I am trying to get GP Appointment as I can't drive or get to work! Any
Hi I've got PA and self inject for 1 year, generally 1 monthly. I have started suffering dizziness and vertigo. Laying down makes the room spin and I'm walking like I'm drunk. I'm wondering if this is a symptom or something else? I am trying to get GP Appointment as I can't drive or get to work! Any
Hidden
in
Pernicious Anaemia Society
2 years ago
Somatic Experiencing Success?
I'm curious if anyone has had any success utilizing somatic experiencing. In principal it makes sense, but in all honesty, my symptoms seem too "severe" to find success in such a mild approach... I am trying to stay positive. My therapist downplays the FND "diagnosis", not from a "i dont believe you
I'm curious if anyone has had any success utilizing somatic experiencing. In principal it makes sense, but in all honesty, my symptoms seem too "severe" to find success in such a mild approach... I am trying to stay positive. My therapist downplays the FND "diagnosis", not from a "i dont believe you
seamuspg
in
Functional Neurological Disorder - FND Hope
2 years ago
Tmj and tinnitus
Has anyone with tinnitus and tmj feel numbness on that side of head?
Has anyone with tinnitus and tmj feel numbness on that side of head?
Doxiemom1
in
Tinnitus UK
2 years ago
SUDDEN increase in Sed rate, or erythrocyte sedimentation rate (ESR
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
irishponies
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
SUDDEN increase in Sed rate, or erythrocyte sedimentation rate (ESR)
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
irishponies
in
PMRGCAuk
2 years ago
Sed rate, or erythrocyte sedimentation rate (ESR) SUDDEN increase
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR. This is copied directly from the Mayo Clinic web site
irishponies
in
Vasculitis UK
2 years ago
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