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Prescribed Diamox, on pred, not feeling good
Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the last ozurdex injection was in December. Check up on Thursday showed no odeama and the retina is holding but pressure was up to 33. Dr prescribed Diamex, with Diffu X to protect potassium, and additional drops. I took 2 x 250mg
Hi. I’m currently stable for PMR on 8mg. I have macula odeama in one eye, the last ozurdex injection was in December. Check up on Thursday showed no odeama and the retina is holding but pressure was up to 33. Dr prescribed Diamex, with Diffu X to protect potassium, and additional drops. I took 2 x 250mg
Nippersmum
in
PMRGCAuk
1 year ago
Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
1 year ago
Failed Back Surgery plus Cauda Equina
I had a Laminectomy forSevere Spinal Stenosis which initially worked but has now failed and is worse than before. I had a Triple Bypass and Mitral Valve Repair and have now been diagnosed with heart failure so I’m not able to take any of the normal pain relief medication. The GP has now referred me to
I had a Laminectomy forSevere Spinal Stenosis which initially worked but has now failed and is worse than before. I had a Triple Bypass and Mitral Valve Repair and have now been diagnosed with heart failure so I’m not able to take any of the normal pain relief medication. The GP has now referred me to
Davewm
in
Pain Concern
1 year ago
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MS Hug
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
cljones
in
My MSAA Community
1 year ago
Hearing test
Still somewhat confused coz many t is loud for people that their sound even though isnt lower but at least the quality is worse however hearing test is fine Isnt it fair to say hearing loss is a gradual must
Still somewhat confused coz many t is loud for people that their sound even though isnt lower but at least the quality is worse however hearing test is fine Isnt it fair to say hearing loss is a gradual must
Toughmathew
in
Tinnitus UK
1 year ago
GCA OR TMJ?
Well after going through all the GCA tests, including biopsy which shows a 3 cm piece of the temporal artery with no extra wear and tear, it would seem that Rheumie cannot definitely say it is or isn't GCA and so has begun reducing the Pred. She wanted to go from 60 mg to 50 this morning, but this morning
Well after going through all the GCA tests, including biopsy which shows a 3 cm piece of the temporal artery with no extra wear and tear, it would seem that Rheumie cannot definitely say it is or isn't GCA and so has begun reducing the Pred. She wanted to go from 60 mg to 50 this morning, but this morning
Missus835
in
PMRGCAuk
1 year ago
New Diagnosis of Acoustic Neuroma
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he
Nikzstew
in
Acoustic Neuroma Support
1 year ago
Not yet diagnosed....AN
Hi, I'm 37 and woke up 3 weeks ago with complete hearing loss in 1 ear, severe tinnitus and vertigo. I've been in the slow process of having hearing tests at ENT which show almost complete deafness 😔 The vertigo seems to have subsided which I am thankful for but am just hoping it's not an AN so I
Hi, I'm 37 and woke up 3 weeks ago with complete hearing loss in 1 ear, severe tinnitus and vertigo. I've been in the slow process of having hearing tests at ENT which show almost complete deafness 😔 The vertigo seems to have subsided which I am thankful for but am just hoping it's not an AN so I
KawasakiZ650
in
Acoustic Neuroma Support
1 year ago
New to PMR and hopefully its on its way out!
I started suffering bad neck stiffness and then back and eventually hip stiffness about 6 weeks ago (early March 2023). I'm 56 and a very keen cyclist (normally 8-12 hours of cycling a week), and so am not used to feeling like an invalid! I find cycling OK, although my legs feel very heavy, but walking
I started suffering bad neck stiffness and then back and eventually hip stiffness about 6 weeks ago (early March 2023). I'm 56 and a very keen cyclist (normally 8-12 hours of cycling a week), and so am not used to feeling like an invalid! I find cycling OK, although my legs feel very heavy, but walking
fast_peddler
in
PMRGCAuk
1 year ago
Vertigo and PD?
I found a 2021 study with this: Conclusion: Prodromal otological symptoms might be associated with a reduced risk of motor progression in PD. Anyone know how often vertigo is a sign of PD? Last few days I've had small bouts of vertigo. Without warning the room begins to swim. Or rather it rotates
I found a 2021 study with this: Conclusion: Prodromal otological symptoms might be associated with a reduced risk of motor progression in PD. Anyone know how often vertigo is a sign of PD? Last few days I've had small bouts of vertigo. Without warning the room begins to swim. Or rather it rotates
kaypeeoh
in
Cure Parkinson's
1 year ago
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide levels: A systematic review and meta-analysis
Papers regarding the impact of inappropriate thyroid hormone levels keep coming out. It would be a miracle if endocrinologists showed any evidence of having read them. And incorporated the lessons into their practices. [i]
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide
Papers regarding the impact of inappropriate thyroid hormone levels keep coming out. It would be a miracle if endocrinologists showed any evidence of having read them. And incorporated the lessons into their practices. [i]
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Eustachian tube
An ent doctor told me I had Eustachian Tube Dysfunction possibly causing the tinnitus. On a course of nasal drops. Anyone else?
An ent doctor told me I had Eustachian Tube Dysfunction possibly causing the tinnitus. On a course of nasal drops. Anyone else?
Nasturtium50
in
Tinnitus UK
1 year ago
Tinnitus dismissed by GP
This is the second doctor in my practice I have seen.. I was told to contact Tinnitus UK as they might be able to offer advice. First doctor suggested ear drops and when I returned they gave me a prescription for more ear drops . When I explained the symptoms of Tinnitus I was told not to call it Tinnitus
This is the second doctor in my practice I have seen.. I was told to contact Tinnitus UK as they might be able to offer advice. First doctor suggested ear drops and when I returned they gave me a prescription for more ear drops . When I explained the symptoms of Tinnitus I was told not to call it Tinnitus
Catalkoy
in
Tinnitus UK
1 year ago
Jaw pain
I have been having pain in my jaw and wondered if this could be another symptom of my RA I am due to have an ultrasound on the muscles but I also had a bad infection after toothe extraction and was taken off my meds as they are worried in case I get another infection as I ended up with sepsis.
I have been having pain in my jaw and wondered if this could be another symptom of my RA I am due to have an ultrasound on the muscles but I also had a bad infection after toothe extraction and was taken off my meds as they are worried in case I get another infection as I ended up with sepsis.
Jlwgsw
in
NRAS
1 year ago
Shaking when I stretch…
I’m curious if others with PA have ever experienced this symptom: when I wake up in the morning and stretch, my muscles seem to shake for a few moments, especially in my hands. It also happens to a lesser degree when I have a deep yawn. Subsequent to my PA diagnosis, I was diagnosed with hyperreflexia
I’m curious if others with PA have ever experienced this symptom: when I wake up in the morning and stretch, my muscles seem to shake for a few moments, especially in my hands. It also happens to a lesser degree when I have a deep yawn. Subsequent to my PA diagnosis, I was diagnosed with hyperreflexia
Bellmore2089
in
Pernicious Anaemia Society
2 years ago
ALD and zieve syndrome
Hiya name is linz I haven't posted before but read alot on here. Does anyone have any experience of zieve syndrome? I've recently been diagnosed. Alot of it makes sense but I'm struggling to understand I have been sober 6 months now and thought you only experienced zieve on a short term basis TIA for
Hiya name is linz I haven't posted before but read alot on here. Does anyone have any experience of zieve syndrome? I've recently been diagnosed. Alot of it makes sense but I'm struggling to understand I have been sober 6 months now and thought you only experienced zieve on a short term basis TIA for
Quirckychick
in
British Liver Trust
2 years ago
Hearing Aids
Hi guys wondered if anyone had any advice on hearing aids. I have an AN, had gamma knife in 2021, doing ok but hearing pretty much gone on affected side. Tinnitus too. Have basic NHS aid which can't say does much. I know there are 'pens', blue tooth/ wifi aids and tools but not sure if our issue on the
Hi guys wondered if anyone had any advice on hearing aids. I have an AN, had gamma knife in 2021, doing ok but hearing pretty much gone on affected side. Tinnitus too. Have basic NHS aid which can't say does much. I know there are 'pens', blue tooth/ wifi aids and tools but not sure if our issue on the
PLTM
in
Acoustic Neuroma Support
2 years ago
introduction
Hi All Just a quick introduction and saying helllo My Name is Rob I’m approaching my 60th birthday at the end of February and live in North Nottinghamshire in the Uk, 17 miles from Sheffield, I think this site is fab and have learned a lot from other contributors experiences and comments , my story
Hi All Just a quick introduction and saying helllo My Name is Rob I’m approaching my 60th birthday at the end of February and live in North Nottinghamshire in the Uk, 17 miles from Sheffield, I think this site is fab and have learned a lot from other contributors experiences and comments , my story
Rob2563
in
Acoustic Neuroma Support
2 years ago
Jaw Pain: UPDATE
So, I took everyone's advice and saw my doctor about the pain I have in my jaw. The good news is that it isn't GCA. It's TMD (temporomandibular joint disorder). I have started on gabapentin so hopefully, I will get better soon.
So, I took everyone's advice and saw my doctor about the pain I have in my jaw. The good news is that it isn't GCA. It's TMD (temporomandibular joint disorder). I have started on gabapentin so hopefully, I will get better soon.
SpuddyVM
in
PMRGCAuk
2 years ago
Waiting game!
Hearing loss and first hearing aid in 2018 following an ear infection and a perforated ear drum in 2014. I had a re assessment in 2022 where it was determined that my hearing loss had become severe in the left ear. I now have tinnitus, headaches, loss of balance and dizziness on occasion and a general
Hearing loss and first hearing aid in 2018 following an ear infection and a perforated ear drum in 2014. I had a re assessment in 2022 where it was determined that my hearing loss had become severe in the left ear. I now have tinnitus, headaches, loss of balance and dizziness on occasion and a general
Itsallabitcrazy
in
Acoustic Neuroma Support
2 years ago
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