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Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
9 months ago
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
4 months ago
The continuing saga of the purple toe
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
KatyB
in
Cholesterol Support
9 months ago
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Beta Alanine, okay or not okay?
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
Many pre workout supplements include beta Alanine. I used it in my pre PCA days because I felt it did help with the workout intensity, particularly those exercises that are short...I.e. weight lifting. Anyway, I liked the additional energy release and the slight tingly feeling when using this supplement
MoonRocket
in
Advanced Prostate Cancer
9 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
9 months ago
Alendronic acid and rls
I have osteoporosis, Dr's want me to go on either Alendronic acid , IV Zolendronic acid, or Subcutaneous Denosumab Does anyone know if they make RLS worse please
I have osteoporosis, Dr's want me to go on either Alendronic acid , IV Zolendronic acid, or Subcutaneous Denosumab Does anyone know if they make RLS worse please
antelope99
in
Restless Legs Syndrome
4 months ago
stomach polyps
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Bacca
in
Pernicious Anaemia Society
4 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
9 months ago
Inulin pre-biotic - bowels/stomach restoration aid
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Danielj1
in
Thyroid UK
9 months ago
PMR/Hiatus hernia and PPIs
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Lclmlbls
in
PMRGCAuk
9 months ago
Diverticulosis etc
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
Calceolaria
in
Thyroid UK
4 months ago
A&E AGAIN!!
So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on Sat night! Having almost reached the end of lots of investigations following my ambulance ride a few weeks ago, I found myself with yet
another
So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on Sat night! Having almost reached the end of lots of investigations following my ambulance ride a few weeks ago, I found myself with yet
another
Kendrew
in
PMRGCAuk
4 months ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
4 months ago
how did your GI/gut symptoms start?
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
9 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
9 months ago
potty training - difficulty pooping (2.5 yo)
my son started potty training about 2.5yo; he will be 3 in around 4 months time. He took to doing wees very well. He intially pooped on the potty but intermittently. He then became quite anxious about it and would have frequent bowel movement accidents or would hold. He goes through waves of having
my son started potty training about 2.5yo; he will be 3 in around 4 months time. He took to doing wees very well. He intially pooped on the potty but intermittently. He then became quite anxious about it and would have frequent bowel movement accidents or would hold. He goes through waves of having
Mumralalalaa
in
ERIC
7 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
9 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
9 months ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
9 months ago
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