Experiences with

Occupational back conditions

Hi, I couldn't tolerate inhaled Colomycin which I used for about 3 months five years ago. It was a scary, time dark days and nights with extreme breathlessness etc. Under the care of a different hospital and consultant now, he wants to me try inhaled Gentamicin - I know it's less commonly used

My EP wants me to try digoxin for AF. I have read that digoxin may be best avoided when either hypo or hyperthyroid. Does anyone on this forum have experience of taking it?

I don’t know if anyone else who lives in the North West region of England saw the news report this evening on ‘Granada Reports’ about a middle aged woman from Southport who suffers with severe hyperacusis and Tinnitus? It was a sad report, the poor thing has to wear defenders all the time, can’t leave

My EP wants me to try digoxin for AF. I have read that digoxin may be best avoided when either hypo or hyperthyroid. Does anyone on this forum have experience of taking it?

I don't expect to ever have silence but just to go back to how it was would be amazing for me. I have the occasional day of quiet followed by through the roof screeching again and there doesnt seem to be much rhyme or reason to it.

I have recently been diagnosed with mpn thrombocytosis I would like to add I was suffering with very high blood pressure and am on 5 separate blood pressure pills to control it now I now it is the mpn hang in there

It’s my way of giving back to this amazing community—because I know firsthand how much we all need support. Tinnitus can make us feel isolated, but we are in this together. Every step forward, no matter how small, matters. Keep pushing, keep trying, and never give up.

Having had Bronchiectasis for 13 yrs for the last couple i have experienced pseudomonas on & off. Consultant has put me on trial of colomycin(inhaled) & though it started well at Xmas i had a strep pneumoniae infection & now really suffering with excessive mucus & a really bad sounding chest. Continuing

Trihexyphenidyl (Artane)Chemotherapy and hormonal medicines: Antiandrogens (Casodex, Flutamide, Nilutamide) Busulfan (Myleran) Cyclophosphamide (Cytoxan) Ketoconazole LHRH agonists (Lupron, Zoladex) LHRH antagonist (Firmagon) Other medicines: Aminocaproic acid (Amicar) Atropine Clofibrate (Atromid-S

Has anyone had Eustachian Tube Dysfunction diagnosed as a cause of tinnitus? Via a very long route I have finally got into a hospital (community ENT were, to be frank, useless). I've had the scary things excluded via CT and MRI and the working diagnosis is now Eustachian Tube Dysfunction. At the moment

Hi all, Just wondering if the Trionic Veloped is right for people with SCA whose main concern is stability due to severe balance issues? I was diagnosed decades ago with SCA15 and while for many many years I have been largely ignored by the medical profession because once diagnosed there was very little

As a follow up to a recent post on high intensity training I forgot to add one important point i have been working on with my sports nutritionist - supplements. Like all the well informed souls here who no doubt are regularly taking their magnesium glycinate, choline/inositol, B complex and high strength

Hi this follows problems with areas of skin on my face which I just wonder is a side effect of my RA medications as it’s due to sun damaged skin and I’ve always worn sun screen!! Am aware that some medications increase your sensitivity to the uv rays of the sun anybody else have this skin problem ?

Hi Just been prescribed eff NAC to replace carbocysteine .. just wondering if this works almost straight away or do I have to run with the carbocysteine in tandem for a short while? Any advice on this would be greatly appreciated 🙏

Hi...I've posted before about my husband whose had severe tinnitus and hyperacusis, following a 12 mth battle for help a CT scan showed problem in left ear which was where predominantly tinnitus was. Hyperacusis that bad couldn't go out house. He had exploratory op on Wednesday and a tympanoplasty was

Hello everyone! I will be grateful if you share your experience of combining anesthetics and Jakavi. I have myelofibrosis and take Jakavi 15 mg 2 times a day. I will have an open surgery for an inguinal hernia with anesthesia with novocaine (procaine) very soon. I wanted to see if there is an interaction

But they won't fund anything, as they will only authorise treatments for curable conditions. Feels great to be told that about my T. So, they won't fund CBT. Supposedly CBT is recommended via NICE. But no GP will prescribe it. No support groups near me etc etc.....

Although I have severe copd ,my rheaumy specialists team were reluctant to give me Adalimumab fear of chest infections ,but have now give it the go ahead the firt lot will be delivered tomorrow wondering if anyone else uses this medication who has copd, if so has it affected there chest

After 4 weeks I went back to the doctors and they said they wanted to up it to 100mg so I tried it and again it seemed to make it worse. After 4 weeks I went back to say I was worried it was getting worse and they told me the better does is 150mg. So again I tried it.

GCA and ask advice he came back to me and said I must come back tomorrow to the right department they will do bloods and a scan and further tests if need be.