Alendronic acid and rls: I have... - Restless Legs Syn...

Restless Legs Syndrome

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Alendronic acid and rls

antelope99 profile image
9 Replies

I have osteoporosis, Dr's want me to go on either Alendronic acid ,

IV Zolendronic acid,

or

Subcutaneous Denosumab

Does anyone know if they make RLS worse please

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antelope99
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9 Replies
ChrisColumbus profile image
ChrisColumbus

I've not seen adverse reports linked to RLS on any of these, but they all have various possible side effects.

Alendronic acid (Fosamax) and zoledronic acid (Zometa) are both bisphosphonates which have many common possible side effects including joint pain and dizziness (amongst many other possibilities). Denosumab (Prolia, Xgeva) has fairly common reports of pain in the arms or legs, and less common reports of cramps and itching (amongst other possibilities).

If you want to research all the possible other non-RLS side effects, as you're in the UK you can see more here:

bnf.nice.org.uk/drugs/

(But if we worry too much about all the listed *possible* side effects, we'd never take any medications!)

SueJohnson profile image
SueJohnson in reply to ChrisColumbus

But if we worry too much about all the listed *possible* side effects, we'd never take any medications! Boy that is so true.

SueJohnson profile image
SueJohnson

I agree with Chris.

Allyp69 profile image
Allyp69

Been on alendronic acid for 5 years ..twice...finish next week as 10 years max. Hasn't affected my RLS, in my opinion.

Simkin profile image
Simkin

I found alendronic acid affected my entire system and had to stop.Amazingly having zolondronic IV for 3 years (once yearly) completely eliminated my osteoporosis.

For that reason I would highly recommend it.

It did not make my RLS any better but it did not make it any worse.

antelope99 profile image
antelope99 in reply to Simkin

Thank you for your info, will give it some thought

Simkin profile image
Simkin in reply to antelope99

Good luck.

Wendy1 profile image
Wendy1

Hi, I am on Alendronic Acid for osteoporosis and have suffered for years from RLS, although I take Gentle Iron (from Holland and Barrett) and Magnesium to help relieve symptons. Alendronic acid has not exacerbated my RLS at all thank goodness. Good luck.

antelope99 profile image
antelope99

Thank you to all who have replied, I feel it is pretty safe to start this medication. It has put my mind at rest

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