Bechets support pip

[Tibz]

Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt.

And I cannot bare pain or do anything everything is a struggle 😪.

It's all flared up for me sadly my erythema nodosum has come back mouth ulcers all over legs feet hurt 😫 very sad this is.

I just don't understand why this won't stop.

If anyone can advise me on there pip and if there successful I'd be grateful thanks. X

[Mummyof7]

Hi I have my pip tribunal on the 22nd of May as I was refused when claimed so will keep u updated. Hope u feel better soon.

[Tibz in reply to Mummyof7]

Hi thanks my legs are bad I can't walk. And I was declined did you have a mandatory decision. Before hand..

[Budapest]

Have you thought of getting free PIP advice from your local Citizens Advice Centre ?

[Tibz in reply to Budapest]

Hi yhh I got a mandatory reconsideration they helped me fill im just waiting for my response. But im not sure it will go ahead.It's very annoying

[CecilyParsley]

Hi Tibz, I get PIP for care and mobility. Like you my legs are extremely painful and my balance is poor

My best advice is to get the Benefits and Work site. It will guide you through your application and provide advice for mandatory review and tribunal. It dies cost around £20 for the year but so well worth it. Good luck .

[Tibz in reply to CecilyParsley]

Hey hun.. I was declined.im going through a mandatory decision . I'm still waiting for a reply. ive got erythema nodosum currently and I'm struggling to walk or to do anything. I got My rhmetoligist to write a letter to help me not sure if that will help me regarding the situation with this.

[CecilyParsley]

It is hard to predict but worth a try. My first application for DLA 15 years ago was i2 pages altogether and I had to go to Tribunal as they kept refusing me. Then when I transferred to PIP they lowered my rate. I used the Benefits and Work site as they help you through the Manditary reviews too. Good luck with it and I really hope you get it and feel much better x

[Tibz]

Thank you it is a headache like I've git erythema nodosum which is horrible ulcers on private area..Hate going toilet as it hurts and my feet and legs killing I've got 😫 so much marks looks like someone has beaten me up.

I have tried but I think they will decline it even though I've sent loads if evidence and everything got a personal letter from specialist to..

I've got an appointment at the London bechets clinic..

Coming up let's see what they say.

Happy days just never seems to stop hope your feeling better to I know how you feel its horrible 😢 😔 😞 💔 😫 😪 x

[CuteCats in reply to Tibz]

Hi Tibz, I'm so sorry you're having such a rough time right now. Sending lots of hugs your way! Did you speak with the support worker under the Behcet's Clinic? For London it is someone called Jean, who says she helps with PIP applications.

[Tibz]

Hey im gone go on Friday hopefully.. yh its so bad my legs are both swollen 😫 😩 🙃 😭 😪.. im finding it difficult to walk and to do anything I just had enough..Thank you for your kind 🙏 messge..

I've got erythema nodosum currently and it's very bad I'm just struggling and don't know what to do anymore I wish this would go but I guess it's not.. I will ask Jean to help me as this is bad and see what she says thanks ever1 for being so kind and I truly appreciate it I just hope this goes im so sick if not being able to be normal anymore tbh x

[Mummyof7]

I had my tribunal today for my behects disease and was refused once again. Am tired of going round in circles in constant pain and getting nowhere.

[Tibz]

Thats so unfair 😒 is there anything that you can do?