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Mycophenolate
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2 weeks ago I stopped taking Methotrexate 25mg by s/c injection ( it was wearing off after 5 days ) and have switched to mycophenolate.
I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am also on pred 8mg. Have gradually become more symptomatic again, headaches, facial pain, blurry vision, achy muscles and fatigue etc. Has anyone else changed immunosuppressants and how did you manage your symptoms until
I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am also on pred 8mg. Have gradually become more symptomatic again, headaches, facial pain, blurry vision, achy muscles and fatigue etc. Has anyone else changed immunosuppressants and how did you manage your symptoms until
Hidden
in
Vasculitis UK
10 years ago
Finished 7 treatments of Cyclo' ....
.... going on
Mycophenolate
. What sort of side effects should l look out for.
.... going on
Mycophenolate
. What sort of side effects should l look out for.
Sima1952
in
Vasculitis UK
10 years ago
Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.
Do you take it with or without food? Any side effects? If you experience nausea, how long does it normally last after the dose. Any organ involvement?
Do you take it with or without food? Any side effects? If you experience nausea, how long does it normally last after the dose. Any organ involvement?
Cherylv
in
LUPUS UK
10 years ago
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Having a 'Why me?' day :-(
I have a lot to be thankful for and have had every test and treatment going to investigate and alleviate my symptoms including an Iloprost infusion, prescribed
Mycophenolate
, Prednisolone, Hydroxychloroquine, Fluoxetine, Lorsatan, Lanzaprozole, Vit D3, had CT scans, MRI of brain and cervical spine, bone
I have a lot to be thankful for and have had every test and treatment going to investigate and alleviate my symptoms including an Iloprost infusion, prescribed
Mycophenolate
, Prednisolone, Hydroxychloroquine, Fluoxetine, Lorsatan, Lanzaprozole, Vit D3, had CT scans, MRI of brain and cervical spine, bone
tcogb
in
LUPUS UK
10 years ago
I am a newby and need to lose 2 st. Am on mycophenolate, budesonide (steroid) and bp meds. Finding it difficult to lose weight :-(
I have autoimmune hepatitis which is a condition where my immune system attacks my liver. Do cycle and walk my dog but am continually tired.
I have autoimmune hepatitis which is a condition where my immune system attacks my liver. Do cycle and walk my dog but am continually tired.
dolliedaze
in
Weight Loss Support
10 years ago
Anyone had problems with mycophenolate?
I have read posts from people who have found this very useful and not had issues with it, but has anyone had problems because I feel I'm not tolerating it well, but then I think maybe that is the Lupus !?! I am having problems with feeling sick, diarrhoea, dizziness and headaches.
I have read posts from people who have found this very useful and not had issues with it, but has anyone had problems because I feel I'm not tolerating it well, but then I think maybe that is the Lupus !?! I am having problems with feeling sick, diarrhoea, dizziness and headaches.
alice_sportyauthor
in
LUPUS UK
10 years ago
Routine blood testing abroad (Italy) for Mycophenolate Mofetil drug?
I shall shortly be moving to Italy to work on a campsite for the summer, as I have SLE and have recently been prescribed Myfenax my rheumatologist has requested that I undertake regular blood testing while in Italy. Has anyone ever had to arrange blood testing abroad before? Where may I find information
I shall shortly be moving to Italy to work on a campsite for the summer, as I have SLE and have recently been prescribed Myfenax my rheumatologist has requested that I undertake regular blood testing while in Italy. Has anyone ever had to arrange blood testing abroad before? Where may I find information
zoerae25
in
LUPUS UK
10 years ago
Hi probably a really silly question but do other Itp sufferes think it will be ok to use Vicks Vaporub
She is 24 and her platelets are very stable at the moment as she is on a combination of eltrombopag and
mycophenolate
.
She is 24 and her platelets are very stable at the moment as she is on a combination of eltrombopag and
mycophenolate
.
Lindylou86
in
ITP Support Association
10 years ago
Mycophenalate and sore swollen lips!
I have been on
mycophenolate
for a few months, been working well but I keep getting really sore lips so using lip balm and Vaseline etc, woke up this morning and it's like they are burnt! So so sore.
I have been on
mycophenolate
for a few months, been working well but I keep getting really sore lips so using lip balm and Vaseline etc, woke up this morning and it's like they are burnt! So so sore.
joannebond360
in
LUPUS UK
10 years ago
Anyone on myfortic (mycophenolate sodium)?
I'm in my 3rd month on
mycophenolate
cellcept. I really really like cellcept!!!!!
I'm in my 3rd month on
mycophenolate
cellcept. I really really like cellcept!!!!!
Barnclown
in
LUPUS UK
10 years ago
What happens now?
Hi, I have tried Methotrexate and
Mycophenolate
and now Leflunomide, iI have been told by the Doctors to stop the Leflunomide now as my latest blood test has shown I have raised enzymes in my liver. I am also taking Hydroxy and diclofenac.
Hi, I have tried Methotrexate and
Mycophenolate
and now Leflunomide, iI have been told by the Doctors to stop the Leflunomide now as my latest blood test has shown I have raised enzymes in my liver. I am also taking Hydroxy and diclofenac.
Hankie
in
NRAS
10 years ago
Mycophenolate Mofetil
I've recently started taking
Mycophenolate
Mofetil and I have been getting terrible abdominal bloating. Does anyone else experience this too... any ideas to ease it?
I've recently started taking
Mycophenolate
Mofetil and I have been getting terrible abdominal bloating. Does anyone else experience this too... any ideas to ease it?
Bethb
in
Behçet's UK
10 years ago
Hot Bath
I was diagnosed as having Churg Strauss last July (2013) and am just getting to grips with treatment of 3g of
mycophenolate
per day. Do others find that taking a hot bath is beneficial? I get in the bath as I'm running it so that I can get it hotter without the initial shock of the hot water.
I was diagnosed as having Churg Strauss last July (2013) and am just getting to grips with treatment of 3g of
mycophenolate
per day. Do others find that taking a hot bath is beneficial? I get in the bath as I'm running it so that I can get it hotter without the initial shock of the hot water.
jaydub
in
Vasculitis UK
10 years ago
Itching and abdo drain post transplant
I'm on Prograf and
Mycophenolate
.
I'm on Prograf and
Mycophenolate
.
vickywaterloo
in
Kidney Transplant Patient Support
10 years ago
Anyone else who has to ask for Mycophenolate & Hydroxy every month from GP instead of having it on repeat prescription?
They then prescribed me
Mycophenolate
.
They then prescribed me
Mycophenolate
.
tcogb
in
LUPUS UK
10 years ago
Mycophenolate Mofetil & Abdominal Bloating - does anyone get abdominal bloating with this medication? if so, does anything help?
Bethb
in
Behçet's UK
10 years ago
Our son has been diagnosed with palindromic rheumatism but is not responding to treatment? Anyone able to help?
He has tried Azathioprine, Methotrexate and
Mycophenolate
Mofetil, and Amytriptilene, all without success. The only thing that helps him are high doses of steroids (which they obviously cannot maintain for long periods) and HUGE doses of morphine.
He has tried Azathioprine, Methotrexate and
Mycophenolate
Mofetil, and Amytriptilene, all without success. The only thing that helps him are high doses of steroids (which they obviously cannot maintain for long periods) and HUGE doses of morphine.
Rockhopper
in
Hughes Syndrome APS Forum
10 years ago
Newly diagnosed with Cirrohsis
I was put on
Mycophenolate
which I didn't tolerate very well so I stopped taking. Should mention I can't have Azathiaprin.
I was put on
Mycophenolate
which I didn't tolerate very well so I stopped taking. Should mention I can't have Azathiaprin.
nico111
in
British Liver Trust
10 years ago
Does anyone have trouble sleeping on mycophenolate?
I have just upped my
mycophenolate
dose to 750mg in the morning and 750mg at night. I have been suffering ever since with trouble sleeping. It's driving me crazy! Has anyone else experienced this atall? Will I get used to them after a while and be able to sleep?
I have just upped my
mycophenolate
dose to 750mg in the morning and 750mg at night. I have been suffering ever since with trouble sleeping. It's driving me crazy! Has anyone else experienced this atall? Will I get used to them after a while and be able to sleep?
joannebond360
in
LUPUS UK
10 years ago
Mycophenolate question
I have been on
mycophenolate
for two weeks, I have had a cold for weeks which seems to finally be getting better. I have swollen, really painful glands on my neck and armpits. Is this anything to worry about? Keep reading that you have to report to your gp with that, don't have a temperature.
I have been on
mycophenolate
for two weeks, I have had a cold for weeks which seems to finally be getting better. I have swollen, really painful glands on my neck and armpits. Is this anything to worry about? Keep reading that you have to report to your gp with that, don't have a temperature.
joannebond360
in
LUPUS UK
10 years ago
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