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Mycophenolate
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Hair falling out and ringing in my ears?
I have recently been put on
Mycophenolate
having had 9 IV infusions of Cyclophamide (Sept-March) but I have noticed that over the past few weeks my hair has started to fall out more and I have noticed an occasional ringing in my ears - I have phoned my Rheumatologist but have not had the chance to speak
I have recently been put on
Mycophenolate
having had 9 IV infusions of Cyclophamide (Sept-March) but I have noticed that over the past few weeks my hair has started to fall out more and I have noticed an occasional ringing in my ears - I have phoned my Rheumatologist but have not had the chance to speak
ShortSarah
in
Vasculitis UK
12 years ago
Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
But when I started on
Mycophenolate
Mofetil I insisted that I couldn't go on with this, and got permanent anti-nausea pills prescribed. So hopefully they will help protect me. My hair has thinned a lot since starting Azathioprine in 1998, and other drugs since.
But when I started on
Mycophenolate
Mofetil I insisted that I couldn't go on with this, and got permanent anti-nausea pills prescribed. So hopefully they will help protect me. My hair has thinned a lot since starting Azathioprine in 1998, and other drugs since.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
SLE/UCTD and now developed lung problems.
I'm no longer on methotrexate, I've been put on 30mg day presnisolone which has helped my breathing a little and am due to start on
Mycophenolate
shortly. Had very little joy with the Respiritory Consultant I've been sent to.
I'm no longer on methotrexate, I've been put on 30mg day presnisolone which has helped my breathing a little and am due to start on
Mycophenolate
shortly. Had very little joy with the Respiritory Consultant I've been sent to.
AngelaW
in
LUPUS UK
12 years ago
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Mycophenolate side effects
I have been taking
Mycophenolate
Mofetil for 4 years on a dose of 2000mg per day in a split dose. 2 years ago I started to get extreme pain in my shin bones everyone said it was not related to the drug but probably the vasculitis and connective tissue disease.
I have been taking
Mycophenolate
Mofetil for 4 years on a dose of 2000mg per day in a split dose. 2 years ago I started to get extreme pain in my shin bones everyone said it was not related to the drug but probably the vasculitis and connective tissue disease.
tracynoe
in
Vasculitis UK
12 years ago
Mycophenolate and methotrexate?
Just wondering of anyone is taking both
mycophenolate
and methotrexate?
Mycophenolate
helping kidneys but not joints so rheumy wants me to start methotrexate as well. Wanted to know how people cope with both of them and their side effects. Thanks
Just wondering of anyone is taking both
mycophenolate
and methotrexate?
Mycophenolate
helping kidneys but not joints so rheumy wants me to start methotrexate as well. Wanted to know how people cope with both of them and their side effects. Thanks
lucyloo023
in
LUPUS UK
12 years ago
Is anyone on Methotrexate?
Hi, I have just had my meds changed from
Mycophenolate
(been on for the last 3 years from my Neurologist) to Methotrexate (put on by my Rheumatologist) and my Rheumatologist stopped the
Mycophenolate
completely and 2 weeks later I am to start the Methotrexate.
Hi, I have just had my meds changed from
Mycophenolate
(been on for the last 3 years from my Neurologist) to Methotrexate (put on by my Rheumatologist) and my Rheumatologist stopped the
Mycophenolate
completely and 2 weeks later I am to start the Methotrexate.
milliewin
in
Vasculitis UK
12 years ago
Class iv Lupus Nephritis
I've been put on 40mg prednisolone as well as
mycophenolate
& ramipril. Does anyone have any experience of this?
I've been put on 40mg prednisolone as well as
mycophenolate
& ramipril. Does anyone have any experience of this?
Dusty
in
LUPUS UK
12 years ago
does anyone get the feeling of light headed and get the shakes.
i keep feeling lightheaded during the day & my hands can start shaking even when im just sitting down it comes & goes i am on hydroxychloroquine 200mg x 2,
mycophenolate
4 x 500g , ramipril 10mg & simvastatin 40mg daily i have come off steriods about a month & half . my doctor keeps saying my sugar
i keep feeling lightheaded during the day & my hands can start shaking even when im just sitting down it comes & goes i am on hydroxychloroquine 200mg x 2,
mycophenolate
4 x 500g , ramipril 10mg & simvastatin 40mg daily i have come off steriods about a month & half . my doctor keeps saying my sugar
charmaineholmes
in
LUPUS UK
12 years ago
Vasculitis
Doctor Put me on 3000 mg
mycophenolate
to be taken 3 tablets at morning and 3 at night and 80 mg prednisolone . I feel really tired all over the day with a very strange mouth taste and blurred vision . Has anyone got the same side effects from the same medicines ?
Doctor Put me on 3000 mg
mycophenolate
to be taken 3 tablets at morning and 3 at night and 80 mg prednisolone . I feel really tired all over the day with a very strange mouth taste and blurred vision . Has anyone got the same side effects from the same medicines ?
Abdul
in
Vasculitis UK
12 years ago
On 60mg prednisolone and 2g mycophenolate mofetil daily - anyone else on similar and what side effects should I expect other than moon face?
lucyloo023
in
LUPUS UK
13 years ago
Magic word "remission"
Also been told on
mycophenolate
for next couple of years but that's ok. Only down side is beginning to feel very sore all over as steroids are being reduced and can't take antiflammatories so popping paracetamol instead.
Also been told on
mycophenolate
for next couple of years but that's ok. Only down side is beginning to feel very sore all over as steroids are being reduced and can't take antiflammatories so popping paracetamol instead.
lucyloo023
in
LUPUS UK
13 years ago
Things looking up?
Got side effects from
mycophenolate
but if they are helping then so be it. Docs (specialists and my own gp) have been brilliant and I really feel for those of you who arent getting the support and help you need from your docs.
Got side effects from
mycophenolate
but if they are helping then so be it. Docs (specialists and my own gp) have been brilliant and I really feel for those of you who arent getting the support and help you need from your docs.
lucyloo023
in
LUPUS UK
13 years ago
Is anybody taking Mycophenolate Mofetil (MMF) ?
We've been asked about people's experiences taking MMF Cellcept. If you have taken it could you please share? Thank you.
We've been asked about people's experiences taking MMF Cellcept. If you have taken it could you please share? Thank you.
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Rituxan -v- Clinical Trials - The option given to me yesterday, Please HELP! me?
Lupus has been flaring for 8 months now clearly getting worse and I am convince the
mycophenolate
has caused discord lupus which I want to stop taking.
Lupus has been flaring for 8 months now clearly getting worse and I am convince the
mycophenolate
has caused discord lupus which I want to stop taking.
Glen1
in
LUPUS UK
13 years ago
Cardiac problems.
Since starting on
Mycophenolate
over a year ago I developed masses of palpitations. I have had lots of investigations including a cardiac MRI and they still don't seem to know what is causing it. The consultant is talking about putting in a insertable cardiac defibrillator!!! HELP!!!
Since starting on
Mycophenolate
over a year ago I developed masses of palpitations. I have had lots of investigations including a cardiac MRI and they still don't seem to know what is causing it. The consultant is talking about putting in a insertable cardiac defibrillator!!! HELP!!!
lupylupus
in
LUPUS UK
13 years ago
Anyone on Mycophenolate?
lupylupus
in
LUPUS UK
12 years ago
I'm taking mycophenolate and have enlarged lymph nodes in my stomach, that need a biopsy anyone else had similar problem?
BevMyers
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Has anyone had a bad reaction to the flu jab?
Because I have MPA and am on steroids and
mycophenolate
mofetil, which compromises the immune system, (as we all know) I have had several long lasting viral infections since mid July.
Because I have MPA and am on steroids and
mycophenolate
mofetil, which compromises the immune system, (as we all know) I have had several long lasting viral infections since mid July.
Ayla
Volunteer
in
Vasculitis UK
13 years ago
Does anyone have diffuse scleroderma?
I'm on
mycophenolate
, nifedipine, ramipril and aspirin....so far....and iloprost (infusing as I speak!). Would be good to say hello to anyone in a similar position.
I'm on
mycophenolate
, nifedipine, ramipril and aspirin....so far....and iloprost (infusing as I speak!). Would be good to say hello to anyone in a similar position.
Roamer
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Has anyone taking prednisilone and/or mycophenolate (I take both) found the medication starts to have less effect.
I've been on both for over a year and have started reacting and I am very tired all the time. Changes have been over the past month and getting worse. Thanks Sarah
I've been on both for over a year and have started reacting and I am very tired all the time. Changes have been over the past month and getting worse. Thanks Sarah
Sarahjh2004
in
Vasculitis UK
13 years ago
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