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Experiences with
Mycophenolate
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Things looking up?
Got side effects from
mycophenolate
but if they are helping then so be it. Docs (specialists and my own gp) have been brilliant and I really feel for those of you who arent getting the support and help you need from your docs.
Got side effects from
mycophenolate
but if they are helping then so be it. Docs (specialists and my own gp) have been brilliant and I really feel for those of you who arent getting the support and help you need from your docs.
lucyloo023
in
LUPUS UK
13 years ago
Rituxan -v- Clinical Trials - The option given to me yesterday, Please HELP! me?
Lupus has been flaring for 8 months now clearly getting worse and I am convince the
mycophenolate
has caused discord lupus which I want to stop taking.
Lupus has been flaring for 8 months now clearly getting worse and I am convince the
mycophenolate
has caused discord lupus which I want to stop taking.
Glen1
in
LUPUS UK
12 years ago
Cardiac problems.
Since starting on
Mycophenolate
over a year ago I developed masses of palpitations. I have had lots of investigations including a cardiac MRI and they still don't seem to know what is causing it. The consultant is talking about putting in a insertable cardiac defibrillator!!! HELP!!!
Since starting on
Mycophenolate
over a year ago I developed masses of palpitations. I have had lots of investigations including a cardiac MRI and they still don't seem to know what is causing it. The consultant is talking about putting in a insertable cardiac defibrillator!!! HELP!!!
lupylupus
in
LUPUS UK
12 years ago
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I'm taking mycophenolate and have enlarged lymph nodes in my stomach, that need a biopsy anyone else had similar problem?
BevMyers
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Trying Thalidomide for cerebral vasculitis
I'm currently on Azathioprine (since 1998),
Mycophenolate
Mofetil (since 2005), Methotrexate (since 2010) and high dose steroids.
I'm currently on Azathioprine (since 1998),
Mycophenolate
Mofetil (since 2005), Methotrexate (since 2010) and high dose steroids.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
My experience with cerebral (CNS) vasculitis
Since then we've tried adding Ciclosporin,
Mycophenolate
Mofetil, Methotrexate, and now Thalidomide. I am currently on 4 different immunosuppressive drugs as well as high dose steroids. My consultant says it's as though we're treating me for cancer.
Since then we've tried adding Ciclosporin,
Mycophenolate
Mofetil, Methotrexate, and now Thalidomide. I am currently on 4 different immunosuppressive drugs as well as high dose steroids. My consultant says it's as though we're treating me for cancer.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Flu vaccines and whether to get them
My case of being on 4 immunosuppressive drugs at once (Methotrexate,
Mycophenolate
Mofetil, Azathioprine and Thalidomide) and steroids as well is very unusual. People on lower cocktails are likely to get better protection from the flu vaccine.
My case of being on 4 immunosuppressive drugs at once (Methotrexate,
Mycophenolate
Mofetil, Azathioprine and Thalidomide) and steroids as well is very unusual. People on lower cocktails are likely to get better protection from the flu vaccine.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Hi, I was diagnosed with WG approx 12 years ago and had been a nurse for over 20 years but had never heard of this condition.
So I was then started on
Mycophenolate
and was well for a few years and back at work as a nurse but then experienced Pneumonia and was taken off this as it suppressed my immune system too much leaving me prone to infections.
So I was then started on
Mycophenolate
and was well for a few years and back at work as a nurse but then experienced Pneumonia and was taken off this as it suppressed my immune system too much leaving me prone to infections.
Essex-jill
in
Vasculitis UK
13 years ago
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