I saw my GP yesterday to discuss various tests & treatments I have been having recently (I was diagnosed with MCTD with 'lupus like symptoms' according to consultant in April 2013) and to go over my medication. I am under the shared care of my local rheumatologist and The Royal Free n London. My local rheumatologist prescribed me Hydroxychloroquine but thought I was having a reaction to it so stopped it. They then prescribed me Mycophenolate. When I saw the consultant at the Royal Free they didn't think I had had a reaction to the Hydroxy (rather a flare) so prescribed me Hydroxy again and told me to remain on the lower dose of Mycophenolate 1g rather than increase it to 2mg as I had been about to do. All good so far but I have now run out of the Mycophenolate and Hydroxy that the hospitals gave me so I asked my GP to add both medications to my repeat prescription. Basically I was told I could not have the drugs on repeat prescription and that I would have to request them every month. I don't understand this but as I had already been with the GP for nearly 40 minutes I didn't have time to go over it there and then. I will contact my GP and ask why I can't have the drugs on repeat prescription and if I have any further problems I'll contact my consultant for advice but I wanted to know if anyone else has this problem with their GP and these particular drugs? What I don't get is that my GP will prescribe the drugs but not on repeat prescription but as I have problems with memory and brain fog the onus will be on me to remember to ask for the drugs and in good time to make sure the surgery gets them in on time (it's a country practice with their own pharmacy). I guess I'm just concerned that I will forget and I don't understand why if I can have the drugs and as long as my consultants feel I should have the medication I should have to request it every month.
Last edited by tcogb
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