Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
789 public posts
Filter results
mycophenolate
Hi everyone. I’m about to start this meditation I’m currently on 23mg steroids plus loads other meds. I have long standing pleural/pericardial effusion’s caused by Serositis. My daughter asked for advice from rheumatologist yesterday but just got a leaflet shoved at her. I am on Lowe dose antibiotics
Hi everyone. I’m about to start this meditation I’m currently on 23mg steroids plus loads other meds. I have long standing pleural/pericardial effusion’s caused by Serositis. My daughter asked for advice from rheumatologist yesterday but just got a leaflet shoved at her. I am on Lowe dose antibiotics
Numptybrain
in
Lung Conditions Community Forum
1 month ago
stopping mycophenolate starting azathropine - any experience/ tips?
Did you feel worse when coming off
mycophenolate
before the azathropine kicks in? My Dr said next step was biologics but as I’ve only tried
mycophenolate
I can’t be prescribed them till I try azathropine. So I’m really hoping it helps!
Did you feel worse when coming off
mycophenolate
before the azathropine kicks in? My Dr said next step was biologics but as I’ve only tried
mycophenolate
I can’t be prescribed them till I try azathropine. So I’m really hoping it helps!
Beau2016
in
LUPUS UK
1 month ago
Mycophenolate Mofetil Anyone?
He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me
Mycophenolate
Mofetil as a DMARD to get me off steroids. Has anyone had experience of this treatment ?
He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me
Mycophenolate
Mofetil as a DMARD to get me off steroids. Has anyone had experience of this treatment ?
Katiecatweazel
in
PMRGCAuk
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
AIH/PBC
I am intolerant of the drugs azathioprine and
mycophenolate
, as I am intolerant of drugs containing thiopurines. I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms.
I am intolerant of the drugs azathioprine and
mycophenolate
, as I am intolerant of drugs containing thiopurines. I am 72 and have been told I am too old for tacrolimus. I am currently on prednisone. I want to come of these as I feel really unwell with various symptoms.
Rupeedoo
in
British Liver Trust
2 months ago
in remission and stable
I am still on 3mg budesonide,
mycophenolate
and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with this numerous times and do they have any self help tips? Thanks
I am still on 3mg budesonide,
mycophenolate
and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with this numerous times and do they have any self help tips? Thanks
Suecong
in
British Liver Trust
1 month ago
Starting methotrexate tips
Hi I posted last week about decision to stop
Mycophenolate
after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now the plan is to start Methotrexate next month. Just wondering if anyone had any tips to manage side effects?
Hi I posted last week about decision to stop
Mycophenolate
after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now the plan is to start Methotrexate next month. Just wondering if anyone had any tips to manage side effects?
Beau2016
in
LUPUS UK
1 month ago
Imnusupressants Post Transplant
He is currently on 3mg Tacrolimus x 2, 1000mg
mycophenolate
x 2, 5mg pred. Thanks Ewife
He is currently on 3mg Tacrolimus x 2, 1000mg
mycophenolate
x 2, 5mg pred. Thanks Ewife
Ewife
in
British Liver Trust
2 months ago
Definitive diagnosis of GCA after 7 years
I was on prednisone and lefludomide and
mycophenolate
were added in as steroid sparers which finally bought down the CRPs.
I was on prednisone and lefludomide and
mycophenolate
were added in as steroid sparers which finally bought down the CRPs.
Manihiki
in
PMRGCAuk
1 month ago
Update
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start
Mycophenolate
on 20th of this month, I’m starting on a low dose gradually increasing.
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start
Mycophenolate
on 20th of this month, I’m starting on a low dose gradually increasing.
Numptybrain
in
PMRGCAuk
8 days ago
leg trouble
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on
Mycophenolate
to but after a year I had to come of it as it wasn’t suiting me.
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on
Mycophenolate
to but after a year I had to come of it as it wasn’t suiting me.
Tellyblue
in
Vasculitis UK
3 months ago
high temperatures?
On
Mycophenolate
still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later. I feel back to normal but my temperature won’t go down, 37-5* - 38.5*.
On
Mycophenolate
still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later. I feel back to normal but my temperature won’t go down, 37-5* - 38.5*.
Sanddeckchairs
in
British Liver Trust
4 months ago
decisions, decisions, help !!!
He also requested that I have an MRI scan of my cervical spine, He has given me two booklets to read with a view to starting another drug, I already take Hydroxychloroquine, the drugs are
Mycophenolate
and Azathioprine I have read these booklets over and over and the side effects frighten me.
He also requested that I have an MRI scan of my cervical spine, He has given me two booklets to read with a view to starting another drug, I already take Hydroxychloroquine, the drugs are
Mycophenolate
and Azathioprine I have read these booklets over and over and the side effects frighten me.
Wonderfullifeandmore
in
NRAS
3 months ago
Methotrexate and Prednisolone GPA
I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on
Mycophenolate
for first 2 years. I have been told Rituximab not suitable for me.
I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on
Mycophenolate
for first 2 years. I have been told Rituximab not suitable for me.
Wyllow
in
Vasculitis UK
3 months ago
Physiotherapy
I have finished that course and am now on
mycophenolate
tablets. I have severe lower back pain and am getting no where trying to get a physio referral. Does anyone think that this may work or do i need a change of treatment? I hope someone can give me some advise...
I have finished that course and am now on
mycophenolate
tablets. I have severe lower back pain and am getting no where trying to get a physio referral. Does anyone think that this may work or do i need a change of treatment? I hope someone can give me some advise...
CotswoldOx
in
Myositis UK
6 months ago
Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?
My rheumatologist doesn't want to increase my Hydroxychloroquine so has prescribed
Mycophenolate
. Has anyone else been prescribed it for reasons other than interstitial lung disease?
My rheumatologist doesn't want to increase my Hydroxychloroquine so has prescribed
Mycophenolate
. Has anyone else been prescribed it for reasons other than interstitial lung disease?
lynntregaron
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
+100 Days post transplant
I've not had any other issues so I'm now off the
Mycophenolate
and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out.
I've not had any other issues so I'm now off the
Mycophenolate
and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out.
Flyingsteamer
in
MPN Voice
2 months ago
NCGS/Celiac disease
The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from
Mycophenolate
Motifil. However, the switch has not made much of a difference. The abdominal pain I experience mostly post-eating has affected my quality of life.
The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from
Mycophenolate
Motifil. However, the switch has not made much of a difference. The abdominal pain I experience mostly post-eating has affected my quality of life.
6821green
in
Kidney Transplant
3 months ago
Struggling with Mycophenolate
My consultant has been trying to get me onto
Mycophenolate
before starting me on Nintedanib , as it is steroid sparing,but I hate feeling the way I do on this drug. Constant nausea, low mood ( I don’t feel like me at all) disrupted sleep and low dull back pain. All of my bloods are fine.
My consultant has been trying to get me onto
Mycophenolate
before starting me on Nintedanib , as it is steroid sparing,but I hate feeling the way I do on this drug. Constant nausea, low mood ( I don’t feel like me at all) disrupted sleep and low dull back pain. All of my bloods are fine.
Blyth1
in
Lung Conditions Community Forum
7 months ago
Mycophenolate?
Hi, started on
Mycophenolate
this week. So far, so good apart from a nagging headache. Anyone on this drug and able to tell me what side effects and benefits to expect? TIA
Hi, started on
Mycophenolate
this week. So far, so good apart from a nagging headache. Anyone on this drug and able to tell me what side effects and benefits to expect? TIA
Wheezysister
in
Lung Conditions Community Forum
9 months ago
Rutiximub infusion.
Rheum then changed medication to
mycophenolate
but it doesn't seem to be working even after increasing dose to 1500mg per day and in conjunction with prednisolone. I've still bad wrist and thumb pain. Can't even make a sandwich. My rheum has now mentioned rutiximub infusions.
Rheum then changed medication to
mycophenolate
but it doesn't seem to be working even after increasing dose to 1500mg per day and in conjunction with prednisolone. I've still bad wrist and thumb pain. Can't even make a sandwich. My rheum has now mentioned rutiximub infusions.
mitty
in
LUPUS UK
5 months ago
1
2
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
290 results
Vasculitis UK
104 results
Scleroderma & Raynaud's UK (SRUK)
92 results
View top 10 communities
Sort by
Most Relevant
Newest