Mycophenolate Mofetil

[Bethb]

Hello all! I've recently started taking Mycophenolate Mofetil and I have been getting terrible abdominal bloating. Does anyone else experience this too... any ideas to ease it?

[andreafm]

Hi Beth

I am not on Mycophenolate now but remember this when I was and it can get pretty rotten. It is a common side effect of this.

You can try some quite natural things like taking the tablets with the Bio Yoghurt Drinks that you get from the supermarket and with some food at the same time as well. I personally also used to add a probiotic to the yoghurt by breaking a capsule in it...but you could start without it to see if it helps you and add it later.

Also chrystalised ginger which you can pick up at a healthfood shop, they have some good ones now that don't have added sugar.....or ginger tea. Peppermint pearls that you get for Irritable Bowel Syndrome also help and take these an hour or so before the Mycophenolate.

The other thing I thought of is if you are taking omeprazole or lansoprazole for indigestion, this should be taken at a different time to the Mycophenolate. 2hrs before the Mycophenolate worked best for me but you can discuss this with your Doctor if you are worried.

They are all worth a try to see if any of them work for you. But I eventually had to stop the Mycophenolate because of side effects and so if it really does become unbearable it may be worth talking to your specialist about it.

Hope this helps

[Bethb]

Good morning, thank you for this. I was hoping to get a reply before taking it this morning I've taken the Operazone, and I'll wait before taking the Myco.... I hope this solves it as the Azathioprine didn't work for me and my Behcets symptoms have only just started to resolve. Fingers crossed

[Wendymoo]

Hi there, I put was on this the beginning of Jan 14 & with only just being on it for just under 2 weeks I had to stop taking it. I had severe headaches, sickness, upset tum etc etc it made me feel very poorly. I would not go back on it again but I also know that we all respond differently.

I hope this helps.

Take care

[Bethb]

Hello English Rose.

Thank you for your comments. I've been taking Mycophenoate for nearly 3 weeks, my symptoms have really improved, it's just the bloating that has worsened, although it wasn't as bad today - I took the Omeprazole about 1 hour before the other med and I think it helped thanks andreafm !

I will discuss it all with my specialist though.

hope you all have a good weekend

b X

[andreafm in reply to Bethb]

glad the timing of the Omeprazole improved things.....make sure you drink plenty of water with the Mycophenolate as well.......gosh I sound like a Doctor

[Miataman]

I've been on 2g of it a day for 3 weeks now. No trouble what soever, but I take it 2hrs after a meal and 1hr before. Thankfully it hasn't made me sick. My BD symptoms are going away too.