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Mycophenolate
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Drugs refused funding...
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the immunosuppressants (aza,
mycophenolate
, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the immunosuppressants (aza,
mycophenolate
, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
JElsom
in
Vasculitis UK
10 years ago
Myfenax(Mycophenolate mode till. does anyone take these.
sully14
in
Behçet's UK
10 years ago
Anyone else with SLE related pelvic girdle synovitis of sacrum & hip joints responding to mycophenolate?
exercise (Pilates, yoga etc), antiinflammation diet & supplements, meditation, pacing myself/rationing activity, mindfulness etc etc, but all that has only helped "so much"....this is why I was so thrilled by the help pred tapers do give me, and why i now have high hopes for myco I'm about to try
mycophenolate
exercise (Pilates, yoga etc), antiinflammation diet & supplements, meditation, pacing myself/rationing activity, mindfulness etc etc, but all that has only helped "so much"....this is why I was so thrilled by the help pred tapers do give me, and why i now have high hopes for myco I'm about to try
mycophenolate
Barnclown
in
LUPUS UK
10 years ago
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Mycophenolate and migraine/headaches?
Since I've upped my
mycophenolate
(CellCept) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Since I've upped my
mycophenolate
(CellCept) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Purpletop
in
LUPUS UK
11 years ago
I have been asked to share my story. Make yourself comfy and I will begin .......
On to
Mycophenolate
which helped but in 2008 I was becoming increasingly fatigued and grumbling disease was present. So I was offered Rituximab. One infusion before Christmas, one 2 weeks later.
On to
Mycophenolate
which helped but in 2008 I was becoming increasingly fatigued and grumbling disease was present. So I was offered Rituximab. One infusion before Christmas, one 2 weeks later.
Moley1
in
Vasculitis UK
11 years ago
Side effects
I've been on
Mycophenolate
for about 2 weeks now. I take 1 x 500mg in the morning and 1 in the evening both with food.
I've been on
Mycophenolate
for about 2 weeks now. I take 1 x 500mg in the morning and 1 in the evening both with food.
tcogb
in
LUPUS UK
11 years ago
When NOT in a flare, do you still have residual symptoms?
I've been on
mycophenolate
(CellCept) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
I've been on
mycophenolate
(CellCept) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
Purpletop
in
LUPUS UK
11 years ago
Rheumy recommended I consider adding mycophenolate to my other meds as lupus seems to be getting more active. Im on hydroxy and adipine,
Scared because of bad reactions to sulphasalazine and methotrexate, any advice or experiences welcome. Thanks jo
Scared because of bad reactions to sulphasalazine and methotrexate, any advice or experiences welcome. Thanks jo
jo100
in
LUPUS UK
11 years ago
Anyone: have you been diagnosed with Achenbach syndrome (paroxysmal haematoma of fingers (& toes)) or Ehlers Danlos?
She says the SLE treatment plan I'm on is appropriate (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
+ all my 'holes' have treatment plans which are more or less effective (eyes, mouth, nose, undercarriage (sorry)) and no extra treatment for my bleeds is necessary because there
She says the SLE treatment plan I'm on is appropriate (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
+ all my 'holes' have treatment plans which are more or less effective (eyes, mouth, nose, undercarriage (sorry)) and no extra treatment for my bleeds is necessary because there
Barnclown
in
The Australian Sjögren's Syndrome Association
11 years ago
Has anyone had enlarged red blood cells and/or vitamin B12 deficiency?
Had a routine blood test to establish baseline bloods prior to starting on
Mycophenolate
(I have a recent diagnosis of SLE overlapping with MCTD) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
Had a routine blood test to establish baseline bloods prior to starting on
Mycophenolate
(I have a recent diagnosis of SLE overlapping with MCTD) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
tcogb
in
LUPUS UK
11 years ago
Pain under the fingernails and toenails
I'm on Plaquenil and
mycophenolate
mofetil.
I'm on Plaquenil and
mycophenolate
mofetil.
Purpletop
in
LUPUS UK
11 years ago
Anyone: have you been diagnosed with Achenbach syndrome (paroxysmal haematoma of fingers (& toes)) or Ehlers Danlos?
She says the SLE treatment plan I'm on (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
) is appropriate, and no extra treatment for my bleeds is necessary because there is nothing serious underlying these bleeds. Phew!
She says the SLE treatment plan I'm on (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
) is appropriate, and no extra treatment for my bleeds is necessary because there is nothing serious underlying these bleeds. Phew!
Barnclown
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
does anyone know how much blood it requires in urine sample to know if the kidney isn't functioning properly.
I came clean about not taking 2000mg of
mycophenolate
/myfenax as I was only taking 1000mg. Said I should've told him.
I came clean about not taking 2000mg of
mycophenolate
/myfenax as I was only taking 1000mg. Said I should've told him.
rrahman
in
Vasculitis UK
11 years ago
Mycophenolate
Having seen the consultant last week i have been taken off MTX and put on
Mycophenolate
, does anyone know anything about this as i have not heard of it before?
Having seen the consultant last week i have been taken off MTX and put on
Mycophenolate
, does anyone know anything about this as i have not heard of it before?
Hankie
in
NRAS
11 years ago
Hair Loss
I take prednisolone, hydroxychloroquine, gabapentin, warfarin,
mycophenolate
, tramadol. Does anyone else take these meds and suffer with hair loss? I know lupus can cause hair loss but I haven't suffered with this before. Any help would be appreciated. Thank you. Samantha
I take prednisolone, hydroxychloroquine, gabapentin, warfarin,
mycophenolate
, tramadol. Does anyone else take these meds and suffer with hair loss? I know lupus can cause hair loss but I haven't suffered with this before. Any help would be appreciated. Thank you. Samantha
SammyJ
in
Hughes Syndrome APS Forum
11 years ago
Lupus and Endometriosis
I am currently taking the following medication for my lupus: Hydrixychoroquine Sulphate (200mg x 2 daily)
Mycophenolate
Mofetil (500mg x 6 daily) Prednisolone 30mg daily Tramandol 50mg (when required) And for the Endometriosis: Zoladex implant (every four weeks until February 2013) Naproxsin 250mg
I am currently taking the following medication for my lupus: Hydrixychoroquine Sulphate (200mg x 2 daily)
Mycophenolate
Mofetil (500mg x 6 daily) Prednisolone 30mg daily Tramandol 50mg (when required) And for the Endometriosis: Zoladex implant (every four weeks until February 2013) Naproxsin 250mg
Monica82
in
LUPUS UK
11 years ago
How much is Immune System "suppressed" by Steroids &/or Immuno-suppressants?
1)
Mycophenolate
(2,000mg) 2) Prednisolone (60mg) 3) Prednisolone (10mg) 4) Prednisolone (60mg) +
Mycophenolate
(2,000mg) Neil PerryMy background and medical status:- Diagnosed with Churg Strauss Syndrome on 22 April, 4.5 months ago, not reached remission yet.
1)
Mycophenolate
(2,000mg) 2) Prednisolone (60mg) 3) Prednisolone (10mg) 4) Prednisolone (60mg) +
Mycophenolate
(2,000mg) Neil PerryMy background and medical status:- Diagnosed with Churg Strauss Syndrome on 22 April, 4.5 months ago, not reached remission yet.
JontyW
in
Vasculitis UK
11 years ago
Has anyone experienced Muscle Atrophy after Transplant, Kidney or otherwise?
Prednisolone 7.5mg,
Mycophenolate
1440mg and 2mg Tacrolimus.
Prednisolone 7.5mg,
Mycophenolate
1440mg and 2mg Tacrolimus.
bigkid
in
Kidney Transplant Patient Support
11 years ago
is anybody suffering from severe hair loss as part of treatment regime?
i have been on predisnolone now at 15mg reduced from 60mg since march 2013 and had 3 months of cyclophosomide am now taking
mycophenolate
otefil - (myfenax) since july and am still losing hair. my consultant suggested i use medicated shampoo - he came up with head and shoulders?!!
i have been on predisnolone now at 15mg reduced from 60mg since march 2013 and had 3 months of cyclophosomide am now taking
mycophenolate
otefil - (myfenax) since july and am still losing hair. my consultant suggested i use medicated shampoo - he came up with head and shoulders?!!
rrahman
in
Vasculitis UK
11 years ago
Immunosuppressant question
Has anyone had
Mycophenolate
, for example? esp after having bad reaction to first two?
Has anyone had
Mycophenolate
, for example? esp after having bad reaction to first two?
witchiegirl
in
British Liver Trust
11 years ago
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