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Some important information regarding Mycophenolate Mofetil and Pregnancy.
https://www.gov.uk/drug-safety-update/
mycophenolate
-mofetil-mycophenolic-acid-new-pregnancy-prevention-advice-for-women-and-men
https://www.gov.uk/drug-safety-update/
mycophenolate
-mofetil-mycophenolic-acid-new-pregnancy-prevention-advice-for-women-and-men
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Seen the Rheumy nurse
I'm back on meds a short course of prednisone back taking hydroxychloroquineand straight after Christmas
mycophenolate
have any of you been on this drug like all of them got to have regular blood tests x
I'm back on meds a short course of prednisone back taking hydroxychloroquineand straight after Christmas
mycophenolate
have any of you been on this drug like all of them got to have regular blood tests x
Jaadee
in
NRAS
9 years ago
Can being on steroids alter thyroid test results?
I am about to have a trial of
Mycophenolate
in two weeks with the hope of reducing my steroids further. Would blood results for thyroid tests be changed by being on Prednisalone? I do worry that taking steroids all the time might mask other things that could have similar symptoms.
I am about to have a trial of
Mycophenolate
in two weeks with the hope of reducing my steroids further. Would blood results for thyroid tests be changed by being on Prednisalone? I do worry that taking steroids all the time might mask other things that could have similar symptoms.
cuttysark
in
Thyroid UK
9 years ago
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Mycophenolate
does anyone else here have Neuro BD? I am newly diagnosed and getting used to the immunosuppressants and steroids not to mention everything else that goes with it. My story is similar to everyone else's, misdiagnosis after misdiagnosis. Hospitals, consultants just a nightmare. I need someone to
does anyone else here have Neuro BD? I am newly diagnosed and getting used to the immunosuppressants and steroids not to mention everything else that goes with it. My story is similar to everyone else's, misdiagnosis after misdiagnosis. Hospitals, consultants just a nightmare. I need someone to
Papapickle
in
Behçet's UK
9 years ago
Mycophenolate Withdrawal
Its hard to work out sometimes what is causing my symptoms but I have definitely been feeling worse after stopping
mycophenolate
. My specialist thinks my vasculitis is under control but has left me on 5mg prednisolone and hydroxichloroquine as a safeguard but wanted me off
mycophenolate
.
Its hard to work out sometimes what is causing my symptoms but I have definitely been feeling worse after stopping
mycophenolate
. My specialist thinks my vasculitis is under control but has left me on 5mg prednisolone and hydroxichloroquine as a safeguard but wanted me off
mycophenolate
.
Galaxy2
in
Vasculitis UK
9 years ago
Mycophenolate
I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have bloods taken this Tues call them (Rheumy helpline) wed (yesterday) as instructed, to be told that the would have to get a doctor to look at my
I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have bloods taken this Tues call them (Rheumy helpline) wed (yesterday) as instructed, to be told that the would have to get a doctor to look at my
kazp
in
LUPUS UK
9 years ago
Flares
Do you still have 'flares' even when you are taking something like
Mycophenolate
? I ha been feeling so much better taking it but the past few days I have been exhausted with aching joints again. It's so disappointing. I also take Hydroxychloroquine.
Do you still have 'flares' even when you are taking something like
Mycophenolate
? I ha been feeling so much better taking it but the past few days I have been exhausted with aching joints again. It's so disappointing. I also take Hydroxychloroquine.
bones-bones
in
LUPUS UK
9 years ago
Mycophenolate
As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try
Mycophenolate
. Anybody else use it and do the side effects balance out with improvement in condition? Xx
As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try
Mycophenolate
. Anybody else use it and do the side effects balance out with improvement in condition? Xx
chandlermandy
in
LUPUS UK
9 years ago
Not diagnosed
At present I am not on Pred - treating the Mg with immunosuppressant
Mycophenolate
mofetil. I know autoimmune diseases come in clutches and as I was a competitive dinghy sailor in another life, sort of expected arthritis to appear in some form, at some time - fingers and knees fit.
At present I am not on Pred - treating the Mg with immunosuppressant
Mycophenolate
mofetil. I know autoimmune diseases come in clutches and as I was a competitive dinghy sailor in another life, sort of expected arthritis to appear in some form, at some time - fingers and knees fit.
CDreamer
in
NRAS
9 years ago
Drop in platelet count
She had lived quite safely on a very good count due to taking
mycophenolate
and eltrombopag. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
She had lived quite safely on a very good count due to taking
mycophenolate
and eltrombopag. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
Lindylou86
in
ITP Support Association
9 years ago
Maybe remission
I absolutely understand that this could be short lived but I am so hopeful that the MF (
Mycophenolate
Mofetil) has suppressed this disease.
I absolutely understand that this could be short lived but I am so hopeful that the MF (
Mycophenolate
Mofetil) has suppressed this disease.
SABG
in
Vasculitis UK
9 years ago
Thank you
I was worried as I am already on 10mg Prednisolone (cant get down any more) and
mycophenolate
that antibiotics wouldn't be beneficial as this is my first ever cough with breathlessness and didn't want to make a fuss. Once again many thanks Moll xx
I was worried as I am already on 10mg Prednisolone (cant get down any more) and
mycophenolate
that antibiotics wouldn't be beneficial as this is my first ever cough with breathlessness and didn't want to make a fuss. Once again many thanks Moll xx
Mollie01
in
Lung Conditions Community Forum
9 years ago
ANCA Associated Vasculitis and Proteinase 3
I will see him this Thursday for a follow up, when he says he will likely start me on 50mg of
Mycophenolate
Mofetil. He also wants me to see another ENT about my sinusitis and tinnitus. Since seeing him last week I have started to get spots similar to the ones earlier this year.
I will see him this Thursday for a follow up, when he says he will likely start me on 50mg of
Mycophenolate
Mofetil. He also wants me to see another ENT about my sinusitis and tinnitus. Since seeing him last week I have started to get spots similar to the ones earlier this year.
lollypocket
in
Vasculitis UK
9 years ago
Mycophenolate duration
Does anyone know how long a patient usually stays on
mycophenolate
after stage 4 diagnosis of lupus nephritis? It has been 2 years and my daughter is now in complete remission. Her ana is usually negative but her dr would like to see her anti dsdna at 0. She is at a 5.
Does anyone know how long a patient usually stays on
mycophenolate
after stage 4 diagnosis of lupus nephritis? It has been 2 years and my daughter is now in complete remission. Her ana is usually negative but her dr would like to see her anti dsdna at 0. She is at a 5.
Lilodog22
in
LUPUS UK
9 years ago
Can anyone advise?
Hi I have posted a couple of times about my rather vague diagnosis - namely lupus (for which I take prednisolone and
mycophenolate
), small airway narrowing (Bronchiolitis), and restrictive lung disease (weak respiratory muscles).
Hi I have posted a couple of times about my rather vague diagnosis - namely lupus (for which I take prednisolone and
mycophenolate
), small airway narrowing (Bronchiolitis), and restrictive lung disease (weak respiratory muscles).
Fennella02
in
Lung Conditions Community Forum
9 years ago
Working whilst taking Mycophenolate
Hi I'm due to start
mycophenolate
on the 4th September. I work in a special needs school as the school nurse, my Rheumatoid specialist nurse has advised me to look at a alternative post as she told me I cannot be in contact with any poorly children. Has anyone had this told or similar to that.
Hi I'm due to start
mycophenolate
on the 4th September. I work in a special needs school as the school nurse, my Rheumatoid specialist nurse has advised me to look at a alternative post as she told me I cannot be in contact with any poorly children. Has anyone had this told or similar to that.
Hidden
in
LUPUS UK
9 years ago
July's Blog - Debra's experience of changing diet
I have been on the programme for three weeks and have to say I am feeling so much better, to the point that I'm wondering if I need to go back on my
mycophenolate
.
I have been on the programme for three weeks and have to say I am feeling so much better, to the point that I'm wondering if I need to go back on my
mycophenolate
.
Paul_Howard
LUPUS UK
in
LUPUS UK
9 years ago
Lupus and the sweats
As I then started getting joint pain, fluid retention and fatigue I decided to go back on my
mycophenolate
and 10 mg of pred. But I'm still struggling to function.
As I then started getting joint pain, fluid retention and fatigue I decided to go back on my
mycophenolate
and 10 mg of pred. But I'm still struggling to function.
Shine44
in
LUPUS UK
9 years ago
Humira with mycophenolate
I'm on
mycophenolate
and was due to start th start this but I had a bad reaction to the pneumonia jab. I ended up in hospital for nearly a week with infection whipping round and they couldn't bring my temperature down.
I'm on
mycophenolate
and was due to start th start this but I had a bad reaction to the pneumonia jab. I ended up in hospital for nearly a week with infection whipping round and they couldn't bring my temperature down.
Meggy7791
in
Behçet's UK
9 years ago
Burning sensations
Hi is anyone else using
mycophenolate
and getting a ridiculous amount of burning sensations in their limbs?
Hi is anyone else using
mycophenolate
and getting a ridiculous amount of burning sensations in their limbs?
starfish69
in
Vasculitis UK
9 years ago
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