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Mycophenolate
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stiff persons syndrome
stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof thinks i have stiff persons syndrome as my legs are getting so stiff.i am on
Mycophenolate
for 2 1/2 months now but made no difference at all but prof says it can take upto 6 months.Is there anyone else with the same diagnoses.or
stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof thinks i have stiff persons syndrome as my legs are getting so stiff.i am on
Mycophenolate
for 2 1/2 months now but made no difference at all but prof says it can take upto 6 months.Is there anyone else with the same diagnoses.or
golfingsue
in
Ataxia UK
6 years ago
Whats up?
Still on low dosage of
mycophenolate
. A few months ago I started getting pain in my fingers. This pain now in my feet, my back, my hips and my elbows. I was on statins but came off them 5 weeks ago in case they were causing the issue. Any idea what could be causing the pains?
Still on low dosage of
mycophenolate
. A few months ago I started getting pain in my fingers. This pain now in my feet, my back, my hips and my elbows. I was on statins but came off them 5 weeks ago in case they were causing the issue. Any idea what could be causing the pains?
RMC101
in
Diabetes & Hypertension Help Society
6 years ago
Coping with a vasculitis relapse
Or using other immunosuppressive agents at increased doses, like steroids, Methotrexate,
Mycophenolate
Mofetil (=Cellcept) and Azathioprine. Basically yes, there are lots the medics can do. And there is no obvious reason why this treatment shouldn’t be successful.
Or using other immunosuppressive agents at increased doses, like steroids, Methotrexate,
Mycophenolate
Mofetil (=Cellcept) and Azathioprine. Basically yes, there are lots the medics can do. And there is no obvious reason why this treatment shouldn’t be successful.
vivdunstan
Volunteer
in
Vasculitis UK
6 years ago
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Anyone tried Abatacept to replace methotrexate and prednisolone?
The methotrexate was replaced by fluminomide and I've been taking prednisone and
mycophenolate
for the lung problem. A different rheumatologist has recommended that I change treatment to a biological agent called Abatecept. Has anyone any experience of this? Thanks.
The methotrexate was replaced by fluminomide and I've been taking prednisone and
mycophenolate
for the lung problem. A different rheumatologist has recommended that I change treatment to a biological agent called Abatecept. Has anyone any experience of this? Thanks.
SteveDW
in
Lung Conditions Community Forum
6 years ago
Transition from Cyclophosphamide to Mycophenolate
My rheumatologist proposes to then start me on
mycophenolate
. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring? Any experiences you may be able to share would be appreciated.
My rheumatologist proposes to then start me on
mycophenolate
. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring? Any experiences you may be able to share would be appreciated.
Hidden
in
Vasculitis UK
6 years ago
Headache
Taking
mycophenolate
, ranatidine, omoperazole and Pentasa. Had a head MRI and had back of my eyes checked out but nothing revealed cause for headaches. It’s like a dull ache at back of head and cones and gies during the day and is worse in evening and is getting hard to cope with.
Taking
mycophenolate
, ranatidine, omoperazole and Pentasa. Had a head MRI and had back of my eyes checked out but nothing revealed cause for headaches. It’s like a dull ache at back of head and cones and gies during the day and is worse in evening and is getting hard to cope with.
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Results from Mycophenolate tablets
Hi I would be interested to hear from anyone who suffers from IPF who are taking or have taken
Mycophenolate
tablets and what results you have experienced and also if you have had any side effects. Also how you cope with IPF.
Hi I would be interested to hear from anyone who suffers from IPF who are taking or have taken
Mycophenolate
tablets and what results you have experienced and also if you have had any side effects. Also how you cope with IPF.
Piperava
in
Lung Conditions Community Forum
6 years ago
Prolapsed uterus - bowel movement?
She has said that this is more likely to be the reason for my recurrent uti's and not
mycophenolate
and she will help me with my overactive bladder.
She has said that this is more likely to be the reason for my recurrent uti's and not
mycophenolate
and she will help me with my overactive bladder.
Bronn
in
LUPUS UK
6 years ago
Looking for advice please
I have tried and been on a combination of Methotrexate,
mycophenolate
, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum dose) and currently cannabis oil. I have yet to find an effective medication that combats all of the symptoms.
I have tried and been on a combination of Methotrexate,
mycophenolate
, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum dose) and currently cannabis oil. I have yet to find an effective medication that combats all of the symptoms.
Lisagill
in
LUPUS UK
6 years ago
HP
I take 3000 mg of CellCept /
Mycophenolate
daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.
I take 3000 mg of CellCept /
Mycophenolate
daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.
C0life18
in
Asthma Community Forum
6 years ago
Headaches aps and sle
So I know it’s not that and the only thing that’s changed recently is my steroid dose and
mycophenolate
had been increased as I’ve suffered a flare this last 6 wks and still off work from it. Any ideas as I’m getting so drained so quickly and I also get the headache in the night or wake with it.
So I know it’s not that and the only thing that’s changed recently is my steroid dose and
mycophenolate
had been increased as I’ve suffered a flare this last 6 wks and still off work from it. Any ideas as I’m getting so drained so quickly and I also get the headache in the night or wake with it.
Sara_A
in
LUPUS UK
6 years ago
mycophenolate
has anyone had
mycophenolate
suggested as a medication after a course of steroids to do with immflamation/sjogrens disease. x
has anyone had
mycophenolate
suggested as a medication after a course of steroids to do with immflamation/sjogrens disease. x
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
Your experiences of Mycophenolate
Are you taking this drug? I have high hopes when I start it within the next month for my interstitial lung disease. I also hope it will help improve my crippling osteoarthritis of my spine. I would love to hear your experiences, good or bad. Thank you. Jayne
Are you taking this drug? I have high hopes when I start it within the next month for my interstitial lung disease. I also hope it will help improve my crippling osteoarthritis of my spine. I would love to hear your experiences, good or bad. Thank you. Jayne
GingerCatJayne
in
Lung Conditions Community Forum
6 years ago
idiopathic cerebellar ataxia
Sheffield where I am being treated tried
mycophenolate
in January but I couldn't handle it . jt made me sick and I was told there is nothing else. have you been there I sometimes feel whats the use. let me know how you feel
Sheffield where I am being treated tried
mycophenolate
in January but I couldn't handle it . jt made me sick and I was told there is nothing else. have you been there I sometimes feel whats the use. let me know how you feel
patsyday
in
Ataxia UK
6 years ago
Dribbling/steroids/mycophenolate
I don't like the sound of the
mycophenolate
and neither does my mum. I have also been increased on gabapentin to 500mg 3 X a day from 400mg a day.
I don't like the sound of the
mycophenolate
and neither does my mum. I have also been increased on gabapentin to 500mg 3 X a day from 400mg a day.
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
lupus or/and fibromialgia?
I was told by rheumy to keep a pain diary and if the steroids helped that he would put me on
mycophenolate
which I don't like the sound of with the side effects. I am just wondering if it could be both lupus and fibromialgia.
I was told by rheumy to keep a pain diary and if the steroids helped that he would put me on
mycophenolate
which I don't like the sound of with the side effects. I am just wondering if it could be both lupus and fibromialgia.
Mandypandy1969
in
LUPUS UK
6 years ago
The good and the bad of taking steroids
It looks as though taking the immune suppresent drug
Mycophenolate
has turned a benign sore on my cheek to a low level skin cancer (very treatable accoring to my doctor ) Ah well if all this what it takes to keep me alive so be it.
It looks as though taking the immune suppresent drug
Mycophenolate
has turned a benign sore on my cheek to a low level skin cancer (very treatable accoring to my doctor ) Ah well if all this what it takes to keep me alive so be it.
Anneinoxon
in
Lung Conditions Community Forum
6 years ago
Aortitis, now might have to start cyclophosphamide
I didnt realise that
mycophenolate
was the strongest immunosuppressant, as informed by my consultant.
I didnt realise that
mycophenolate
was the strongest immunosuppressant, as informed by my consultant.
Suzycat
in
Vasculitis UK
6 years ago
Stopping Limited SSc meds temporarily
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
ECGordon
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Ataxia medication
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
boxerattims
in
Ataxia UK
6 years ago
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