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Experiences with
Mycophenolate
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Stopping Limited SSc meds temporarily
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
I’ve been googling and see if you can stop
Mycophenolate
and Hydroxychloroquine suddenly and it looks like you can. The effects of Hydroxy seem to stay in your system for some time but not so sure about
Mycophenolate
.
ECGordon
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Ataxia medication
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
Hi is anyone on a medication called CellCept
mycophenolate
mofeti?
boxerattims
in
Ataxia UK
6 years ago
Sjogren's and Breast Cancer.
As I was having Chemo I had to stop taking
Mycophenolate
which was fine.
As I was having Chemo I had to stop taking
Mycophenolate
which was fine.
bones-bones
in
LUPUS UK
6 years ago
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Mycophenolate and pregnancy
To the ladies taking
mycophenolate
, does this medication make it harder to become pregnant
To the ladies taking
mycophenolate
, does this medication make it harder to become pregnant
Tash1987
in
LUPUS UK
6 years ago
Mycophenolate mophetil
Iam a scleroderma patient and I started
mycophenolate
2 days ago. Is it possible that it causes abdominal pain? Of course it is very soon to talk side effects, but I would like to know if anyone had this experience. Also I find it hard to swallow the pills. Had anyone had the sirop instead ?
Iam a scleroderma patient and I started
mycophenolate
2 days ago. Is it possible that it causes abdominal pain? Of course it is very soon to talk side effects, but I would like to know if anyone had this experience. Also I find it hard to swallow the pills. Had anyone had the sirop instead ?
boome
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate Mofetil–Induced Neutropenic Sepsis
Hi all, on the 18th June, I went to me GP for a routine checkup, and he was not happy with my breathing. He referred my, as a precaution direct to the local combined assessment centre for tests etc, and he wanted to rule out a blood clot on my Lung. I blamed it on my anti rejection meds Advagraf and
Hi all, on the 18th June, I went to me GP for a routine checkup, and he was not happy with my breathing. He referred my, as a precaution direct to the local combined assessment centre for tests etc, and he wanted to rule out a blood clot on my Lung. I blamed it on my anti rejection meds Advagraf and
George_2017
in
British Liver Trust
6 years ago
Improve your condition
If taking
mycophenolate
- try to take 5/6 tablets daily as research has shown this can stabilise your condition and in some cases improve it. 4.
If taking
mycophenolate
- try to take 5/6 tablets daily as research has shown this can stabilise your condition and in some cases improve it. 4.
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate and periods
I wonder if anyone has experienced a change in their cycle after starting
mycophenolate
. I have had troublesome periods for years, more so in the last two years as disease activity increased prior to diagnosis.
I wonder if anyone has experienced a change in their cycle after starting
mycophenolate
. I have had troublesome periods for years, more so in the last two years as disease activity increased prior to diagnosis.
flap7
in
LUPUS UK
6 years ago
Shingles jab
Hi All, I’ve been on
Mycophenolate
for almost 6 months and have been offered the shingles jab by my GP. I checked with my Rheumatologist and he said to go ahead. On checking the information leaflet about taking
Mycophenolate
, it says to avoid anything with a live vaccine.
Hi All, I’ve been on
Mycophenolate
for almost 6 months and have been offered the shingles jab by my GP. I checked with my Rheumatologist and he said to go ahead. On checking the information leaflet about taking
Mycophenolate
, it says to avoid anything with a live vaccine.
Misty2552017
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate update after Rheumy appt
I saw my Rheumatologist earlier today to review my experience on
Mycophenolate
. I was feeling quite bright as I'd had encouraging results since a few weeks after starting it. My sun sensitivity went way down, which was the biggest and best surprise. The fatigue seemed to dry up -- amazing.
I saw my Rheumatologist earlier today to review my experience on
Mycophenolate
. I was feeling quite bright as I'd had encouraging results since a few weeks after starting it. My sun sensitivity went way down, which was the biggest and best surprise. The fatigue seemed to dry up -- amazing.
panda2
in
LUPUS UK
6 years ago
Nothing gained by rheumy appointment
Last month she said I would restart
mycophenolate
, today she said that it was poison ?????? (All medications are basically poison though are they not?) she said that as I've been having a lot of infections since last September (9 altogether) she thought my body wasn't coping.
Last month she said I would restart
mycophenolate
, today she said that it was poison ?????? (All medications are basically poison though are they not?) she said that as I've been having a lot of infections since last September (9 altogether) she thought my body wasn't coping.
Bronn
in
LUPUS UK
6 years ago
Productive GP appointment today
Back to hospital on Thursday to discuss
Mycophenolate
tolerance with nurse/pharmacist then back to see rheumy at the end of the month. I am glad that things are being taken care of but am also exhausted!
Back to hospital on Thursday to discuss
Mycophenolate
tolerance with nurse/pharmacist then back to see rheumy at the end of the month. I am glad that things are being taken care of but am also exhausted!
flap7
in
LUPUS UK
6 years ago
Mycophenolate and feeling awful after a month -- normal??
I started
Mycophenolate
early May, without issue at first, just a little rolling about in the belly. But in the last week I am getting such nausea. It is waking me and being an ugly presence without stopping for hours. I had only one bout of diahrrea a couple weeks ago.
I started
Mycophenolate
early May, without issue at first, just a little rolling about in the belly. But in the last week I am getting such nausea. It is waking me and being an ugly presence without stopping for hours. I had only one bout of diahrrea a couple weeks ago.
panda2
in
LUPUS UK
6 years ago
Rituximab or Mycophenolate
I've found out today that my lupus/cerebral vasculitis is active again and they're looking to put me on
Mycophenolate
(again) or Rituximab. Seeing the Consultant again on Tuesday and it would be good to get the advice of lupies using Rituximab. I know lots about
Mycophenolate
already. Thanks xx
I've found out today that my lupus/cerebral vasculitis is active again and they're looking to put me on
Mycophenolate
(again) or Rituximab. Seeing the Consultant again on Tuesday and it would be good to get the advice of lupies using Rituximab. I know lots about
Mycophenolate
already. Thanks xx
Lorska1
in
LUPUS UK
6 years ago
Rheumy appointment sidetracked
She did say once my chest infection cleared (ye tell me about it, out of hospital with 1 infection cleared to get another) I can go back on
Mycophenolate
Mofetil then if everything ok I might be able to come off prednisolone 🤞🏻 But.... has nobody any tips on handling the sweats please, they're worse
She did say once my chest infection cleared (ye tell me about it, out of hospital with 1 infection cleared to get another) I can go back on
Mycophenolate
Mofetil then if everything ok I might be able to come off prednisolone 🤞🏻 But.... has nobody any tips on handling the sweats please, they're worse
Bronn
in
LUPUS UK
6 years ago
cerebellar ataxia and thyroid
My neurologist tried me on
mycophenolate
but it did not agree with me. It's am autoimmune drug .It would be interesting to hear what others have to say
My neurologist tried me on
mycophenolate
but it did not agree with me. It's am autoimmune drug .It would be interesting to hear what others have to say
patsyday
in
Ataxia UK
6 years ago
Uncomfortable Bladder /infections
He seemed pleasant but made no impact at all by saying just stay in
Mycophenolate
and return in six months! He also said it wasn't really necessary to have monthly blood tests and every two months will do. I feel there's nobody there now that can help or in fact is interested - what to do?
He seemed pleasant but made no impact at all by saying just stay in
Mycophenolate
and return in six months! He also said it wasn't really necessary to have monthly blood tests and every two months will do. I feel there's nobody there now that can help or in fact is interested - what to do?
Jetxav
in
NRAS
6 years ago
Mycophenolate
Hi everybody I may be prescribed
mycophenolate
soon. The side effects sound awful. I'd like to know the experience you've had with it. The respiratory doctor seemed to think I should be getting some treatment for my lungs.
Hi everybody I may be prescribed
mycophenolate
soon. The side effects sound awful. I'd like to know the experience you've had with it. The respiratory doctor seemed to think I should be getting some treatment for my lungs.
Phyll
in
Lung Conditions Community Forum
6 years ago
Pro-biotic
I've been on
mycophenolate
since July. Rhumotologist is going try and take me off them at the end of the month. I'm hoping I can do without them. I'm also on hydroxychoroquine (maximum dose I can have for my weight). Long story short I have had a terrible 7 months I've been very anxious.
I've been on
mycophenolate
since July. Rhumotologist is going try and take me off them at the end of the month. I'm hoping I can do without them. I'm also on hydroxychoroquine (maximum dose I can have for my weight). Long story short I have had a terrible 7 months I've been very anxious.
nutler
in
LUPUS UK
6 years ago
Taking mycophenolate mofetil abroad
Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a) on a plane and b) into Spain? None of my family have ever travelled with medication so I am new to this! Thanks and Happy Easter to you all!
Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a) on a plane and b) into Spain? None of my family have ever travelled with medication so I am new to this! Thanks and Happy Easter to you all!
Deegraham
in
LUPUS UK
6 years ago
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