Purpletop9 years ago

No, I haven't experienced this. It must be so painful but I wouldn't put hydrocortisone cream on lips, the skin is so sensitive, it could go worse.

joannebond360 in reply to Purpletop9 years ago

Thanks purpletop. Oh ok won't use that then. Just realised I used a new mouthwash the last few days, wondering if it could be that, feel burnt! Will soon see what happens after I stop using it.

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Purpletop in reply to joannebond3609 years ago

You'll probably need to reduce the dose, just speak to the lupus nurse about trialling a reduction for 1 month to see if it makes a difference. Better than let this get too bad that you need to be moved onto a different drug.

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Barnclown9 years ago

I do tend to get an inflammed mouth (verything: lips, + tissues in the mouth) when i'm flaring.

I agree with Purpletop. On Monday I saw my specialist lupus nurse or my first long myco monitoring appt in clinic. (i'm on 1000mg, which is now considered my therapeutic ose). And I had a long chat with another lupus friend who was in for her myco appt. we've both been on myco for months, and the way we're reacting to myco is very individualistic...the SLN was totally open to seriously considering the problematic aspect of my reaction to myco. I'd like to think your rheumatology clinic is too.

And i totally agree with you: Do be vvvvv cautious about new oral care products. Try stopping the new mouthwash & see how you are, etc. My mouth inflammation has flared due to these ort of products at times

Good luck

misty14 in reply to Barnclown9 years ago

Hi Barnclown

I can recommend Difflam Oral Rinse for mouth inflammation. It works a treat. You can get it on prescription or buy it over the counter but it's quite expensive!. Take Care X

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Barnclown in reply to misty149 years ago

Thanks!!! I didn't realise i could get it on prescrip: great tip! Will ask my gp..... i only just learned about diflam this week, and now it's on my shopping list...got to give it a trial.....I feel so reassured every time I discover a decent new product...this is one of the lovely things about being older...to me, there seems to be more on offer - more that can really help us...

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joannebond3609 years ago

Thanks everyone. Think it was the mouth wash much better today! Will keep an eye on it!

Jo xx

MargaretGail9 years ago

I take Betnesol mouth wash it is a mild localised steroid on prescription and it really makes a difference