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Mycophenolate
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throat pain?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Mycophenolate
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
tinkey
in
LUPUS UK
10 years ago
Nasal flu Vaccine - mycophenolate
I don't think live vaccines and
mycophenolate
mix. Advice/discussion please.
I don't think live vaccines and
mycophenolate
mix. Advice/discussion please.
jo100
in
LUPUS UK
10 years ago
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Mycophenolate - how do you know it's working?
I started it a fortnight ago and my hands are swollen itchy and achy again...is it expected to relieve those symptoms? I realise it takes a while to kick in :)
I started it a fortnight ago and my hands are swollen itchy and achy again...is it expected to relieve those symptoms? I realise it takes a while to kick in :)
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
rare complication bowel
I did in fact have pseudo bowel obstruction and am being successfully treated with
Mycophenolate
. I am tolerating the drug- I am unsure that I could have tolerated many more laparotomies. All the surgery and the functional bowel problem caused by Lupus mean that my bowel wont empty on its own.
I did in fact have pseudo bowel obstruction and am being successfully treated with
Mycophenolate
. I am tolerating the drug- I am unsure that I could have tolerated many more laparotomies. All the surgery and the functional bowel problem caused by Lupus mean that my bowel wont empty on its own.
Versailles
in
LUPUS UK
10 years ago
Mycophenolate question
I have been on
mycophenolate
mofetil for 6 months and it's worked well for my lupus but I am having really bad problems with sore throat and esophigitus, I had a fungal infection in my mouth which they thought had gone down to my esophigus tube, had two lots of fungal treatments and had to stop the
mycophenolate
I have been on
mycophenolate
mofetil for 6 months and it's worked well for my lupus but I am having really bad problems with sore throat and esophigitus, I had a fungal infection in my mouth which they thought had gone down to my esophigus tube, had two lots of fungal treatments and had to stop the
mycophenolate
joannebond360
in
LUPUS UK
10 years ago
Low platelet count.
My local nhs (not liver transplant team) has diagnosed that this is caused by the use of my anti-rejection medication ( cyclosporin/
mycophenolate
). I am puzzled that if the cause was as indicated then why has it taken 18 months before a reaction.
My local nhs (not liver transplant team) has diagnosed that this is caused by the use of my anti-rejection medication ( cyclosporin/
mycophenolate
). I am puzzled that if the cause was as indicated then why has it taken 18 months before a reaction.
ancientadolescent
in
British Liver Trust
10 years ago
Work, side effects & fatigue
Started the
mycophenolate
! No side effects! (Other than a random taste of blood in my mouth every so often?!) yey!
Started the
mycophenolate
! No side effects! (Other than a random taste of blood in my mouth every so often?!) yey!
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
It's all so confusing !!
Am on a lot off meds at the minute - steroids X3, fluoxetine, Hydroxychloroquine , irbesartan,
mycophenolate
mofetil and omeprazole. The docs now are planning on sitting down to have a meeting to see where to go from here. Everyday tasks ie a shower is getting so much like hard work.
Am on a lot off meds at the minute - steroids X3, fluoxetine, Hydroxychloroquine , irbesartan,
mycophenolate
mofetil and omeprazole. The docs now are planning on sitting down to have a meeting to see where to go from here. Everyday tasks ie a shower is getting so much like hard work.
Ruth_lderry
in
LUPUS UK
10 years ago
Low red blood cell counts
My consultant does not consider that there is much to worry about and I think it may be as a result of taking 4g.of
Mycophenolate
motefil daily which is the cause. My diet and appetite are very good with a broad range of fruit and vegetables, cereals including bread, meat and dairy products.
My consultant does not consider that there is much to worry about and I think it may be as a result of taking 4g.of
Mycophenolate
motefil daily which is the cause. My diet and appetite are very good with a broad range of fruit and vegetables, cereals including bread, meat and dairy products.
Albasain
in
Vasculitis UK
10 years ago
Low lymphocyte count and mycophenolate mofetil
Just wanted to see if anyone on
mycophenolate
has a low lymphocyte count. Mine has been getting lower and lower, now on 0.6. I am so worried that they will take me off the
mycophenolate
, it is working so well for me. Has anyone experienced this?
Just wanted to see if anyone on
mycophenolate
has a low lymphocyte count. Mine has been getting lower and lower, now on 0.6. I am so worried that they will take me off the
mycophenolate
, it is working so well for me. Has anyone experienced this?
joannebond360
in
LUPUS UK
10 years ago
Mycophenolate mofetil
Have taken so many antibiotics since starting
mycophenolate
. Should this settle down? Bloods have come back fine apart from lymphocytes borderline too low. Jo
Have taken so many antibiotics since starting
mycophenolate
. Should this settle down? Bloods have come back fine apart from lymphocytes borderline too low. Jo
joannebond360
in
LUPUS UK
10 years ago
Hair Loss - My daughter is on 1grm mycophenolate and 75mg Eltrombopag daily, been on this for about 18 months now.
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
Lindylou86
in
ITP Support Association
10 years ago
Hi I am a first timer user of this site,I have RA with 28 yrs,sjogrens with 20yrs MCTD for 10 yrs.I am currently taking Mycophenolate with
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
aggieb
in
NRAS
10 years ago
I don't have a definitive diagnosis but have ongoing problems with headache, blurry vision, jaw/facial pain, myalgia, arthralgia etc.
I am currently taking 8mg of prednisolone and 750mg twice daily of
mycophenolate
motefil. 3 months ago I developed an intermitent red rash on my face, it flares up and down over the course of the day, is worse at work ( hot and stressful environment ) and isn't particularly painful or itchy.
I am currently taking 8mg of prednisolone and 750mg twice daily of
mycophenolate
motefil. 3 months ago I developed an intermitent red rash on my face, it flares up and down over the course of the day, is worse at work ( hot and stressful environment ) and isn't particularly painful or itchy.
Hidden
in
PMRGCAuk
10 years ago
What dose Mycophenolate is "normal"?
My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total). I was put on this dose today as my antibodies were raised. Is this an average dose? Just wondering what other folk took.
My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total). I was put on this dose today as my antibodies were raised. Is this an average dose? Just wondering what other folk took.
DaleDiva
in
LUPUS UK
10 years ago
Dall is on the loose again
I am already on
mycophenolate
to suppress my immune system and steroids so no changes in treatment needed as yet. Anyway with all that sorted I headed back to Malvern and obviously had to much time to dream up a challenge for the day as the weather was looking good and I had energy to spare.
I am already on
mycophenolate
to suppress my immune system and steroids so no changes in treatment needed as yet. Anyway with all that sorted I headed back to Malvern and obviously had to much time to dream up a challenge for the day as the weather was looking good and I had energy to spare.
dall05
in
Lung Conditions Community Forum
10 years ago
Dose anyone find it easy working I do a 16hours job a week but finding it hard at the minute I am on mycophenolate 500mg 2 twice a day
diane46
in
LUPUS UK
10 years ago
Does anyone have night sweats and aches and pains tapering steroids?
Been on
mycophenolate
mofetil 2mg a day for 3 months, felt the best I have felt in a long time. Since tapering down last Thursday I am waking up with night sweats and fluey feelings like I used to get with lupus, panicking it's a flare! Does anyone else experience this coming off steroids?
Been on
mycophenolate
mofetil 2mg a day for 3 months, felt the best I have felt in a long time. Since tapering down last Thursday I am waking up with night sweats and fluey feelings like I used to get with lupus, panicking it's a flare! Does anyone else experience this coming off steroids?
joannebond360
in
LUPUS UK
10 years ago
Saying ""hello
I am currently on hydrocortisone bd via a midline, terbutaline sub cut pump and
Mycophenolate
Mofetil.
I am currently on hydrocortisone bd via a midline, terbutaline sub cut pump and
Mycophenolate
Mofetil.
Hidden
in
Asthma Community Forum
10 years ago
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