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Experiences with
Mycophenolate
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PIP
I am under the care of Rheumatology and I take a few medication including
Mycophenolate
(immunosuppressant), hydroxychloroquine and steroids. I wasn't aware of PIP. I wanted to know I am eligible to apply for it and if so what is the process. Maymunah x
I am under the care of Rheumatology and I take a few medication including
Mycophenolate
(immunosuppressant), hydroxychloroquine and steroids. I wasn't aware of PIP. I wanted to know I am eligible to apply for it and if so what is the process. Maymunah x
Turquoise1999
in
LUPUS UK
3 years ago
Third Covid jab as primary dose
Like many on here I take
mycophenolate
for limited systemic sclerosis (3gms/day in my case) so I am immunosuppressed. It was recently confirmed that those immunosuppressed would be given a third jab as part of their primary course due to failure to produce antibodies.
Like many on here I take
mycophenolate
for limited systemic sclerosis (3gms/day in my case) so I am immunosuppressed. It was recently confirmed that those immunosuppressed would be given a third jab as part of their primary course due to failure to produce antibodies.
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Pneumococcal vaccine and 5 year booster
Just interested to find out if others with limited systemic sclerosis (taking
mycophenolate
) have a 5 year booster for their pneumococcal vaccine. Thanks.
Just interested to find out if others with limited systemic sclerosis (taking
mycophenolate
) have a 5 year booster for their pneumococcal vaccine. Thanks.
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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Mycophenolate
I have now been on full dose for 5 weeks now, one issue I have is diarrhoea, which is hopeless when out and about. I want to give this drug a shot as its improved my skin and also hoping it will improve my lungs. Can anyone tell me if this is short term effect with just being new on it, they say
I have now been on full dose for 5 weeks now, one issue I have is diarrhoea, which is hopeless when out and about. I want to give this drug a shot as its improved my skin and also hoping it will improve my lungs. Can anyone tell me if this is short term effect with just being new on it, they say
molly19
in
LUPUS UK
3 years ago
Mycophenolate
Hi, I’be recently started taking
Mycophenolate
. I have concerns about mixing with other people and precautions I take. I try to be extremely careful, but how do you get on with family members and friends meeting up indoors.
Hi, I’be recently started taking
Mycophenolate
. I have concerns about mixing with other people and precautions I take. I try to be extremely careful, but how do you get on with family members and friends meeting up indoors.
Lichfield
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
mycophenolate mofitil
does anyone who is taking
Mycophenolate
Mofitil know if you have to stop taking it if you have an infection and are taking antibiotics
does anyone who is taking
Mycophenolate
Mofitil know if you have to stop taking it if you have an infection and are taking antibiotics
thinkhappy
in
NRAS
3 years ago
Allergic Reaction to Rituximab!What's the Alternatives?
She is now on
Mycophenolate
Mofetil 1g twice a day, 8mgs Prednisolone which she is titrating down slowly. Rheumy is waiting for approval for Ocrevus infusion for her. PH Dr mentioned Cyclophosphamide.
She is now on
Mycophenolate
Mofetil 1g twice a day, 8mgs Prednisolone which she is titrating down slowly. Rheumy is waiting for approval for Ocrevus infusion for her. PH Dr mentioned Cyclophosphamide.
Wangpaupau
in
NRAS
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
The Johns Hopkins Hospital study has already suggested that patients on
mycophenolate
mofetil, rituximab, and steroids (when combined with another immunosuppressants) have high rates of nonresponse.
The Johns Hopkins Hospital study has already suggested that patients on
mycophenolate
mofetil, rituximab, and steroids (when combined with another immunosuppressants) have high rates of nonresponse.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Dentist
Hi all,my dentist is concerned about extracting my tooth because i am taking
mycophenolate
mofetil.Does anyone have experience of this.
Hi all,my dentist is concerned about extracting my tooth because i am taking
mycophenolate
mofetil.Does anyone have experience of this.
haulotte
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Sweats
However, it may just be a coincidence but since being diagnosed with Lupus SLE back in May and starting on various medication ie Ramipril, Hydroxychloroquine,
Mycophenolate
, Prednisolone, Omeprazole and Vit D3 tablets I have started having horrendous night sweats where I am wet through from top to toe
However, it may just be a coincidence but since being diagnosed with Lupus SLE back in May and starting on various medication ie Ramipril, Hydroxychloroquine,
Mycophenolate
, Prednisolone, Omeprazole and Vit D3 tablets I have started having horrendous night sweats where I am wet through from top to toe
SamRigs
in
LUPUS UK
3 years ago
Complications from Immunosuppressants
If anyone has any experience or insight about mouth sores, low wbc and stopping
Mycophenolate
, I would sincerely appreciate any feedback at all. Thank you.
If anyone has any experience or insight about mouth sores, low wbc and stopping
Mycophenolate
, I would sincerely appreciate any feedback at all. Thank you.
Tallyn
in
Kidney Transplant
3 years ago
Stomach is bloated and big!
Also on
Mycophenolate
1g bd. In last 6 months, her stomach has increased in size, feels hard, bowel disorder, face moond shape and pimples on face. Appetite varies. All in all not in good shape. Affects breathing which doesn't help with her PH. Even though on diuretics, urinary output not loads of.
Also on
Mycophenolate
1g bd. In last 6 months, her stomach has increased in size, feels hard, bowel disorder, face moond shape and pimples on face. Appetite varies. All in all not in good shape. Affects breathing which doesn't help with her PH. Even though on diuretics, urinary output not loads of.
Wangpaupau
in
NRAS
3 years ago
White patch on tongue
I’ve had three rounds of chemo and am currently taking
mycophenolate
and pred. My dentist said that it’s not an urgent referral and try not to worry but how can you not? My mind has gone into overdrive again! Take care everyone Sue x
I’ve had three rounds of chemo and am currently taking
mycophenolate
and pred. My dentist said that it’s not an urgent referral and try not to worry but how can you not? My mind has gone into overdrive again! Take care everyone Sue x
Susieliz39
in
LUPUS UK
3 years ago
Tremors and vasculitis/Mycophenolate
Hi I take 500mg
Mycophenolate
twice a day. I have been suffering from tremors, I read that this could be a side effect. Has anyone experienced this? When I spoke to my nurse about it, it seemed to land on deaf ears. All advice very welcomed. Thanks in advance
Hi I take 500mg
Mycophenolate
twice a day. I have been suffering from tremors, I read that this could be a side effect. Has anyone experienced this? When I spoke to my nurse about it, it seemed to land on deaf ears. All advice very welcomed. Thanks in advance
Readyteddy
in
Vasculitis UK
3 years ago
Mycophenolate
I have just started on
mycophenolate
. I am having some awful side effects . Severe diarrhoea and stomach pains . I can eat very ill . I have only been on them five days . I feel l should give them a go as I can’t take steroids .
I have just started on
mycophenolate
. I am having some awful side effects . Severe diarrhoea and stomach pains . I can eat very ill . I have only been on them five days . I feel l should give them a go as I can’t take steroids .
artists
in
Vasculitis UK
3 years ago
Tested positive LFT do I stop meds?
On
mycophenolate
, Hydroxychloroquine, vitamin D (I know I can keep taking this) and currently taking naproxen and codeine for a neck problem - any advice appreciated - current symptoms - sore throat, headache, tiredness (tiredness like when I’m flaring) Thank you
On
mycophenolate
, Hydroxychloroquine, vitamin D (I know I can keep taking this) and currently taking naproxen and codeine for a neck problem - any advice appreciated - current symptoms - sore throat, headache, tiredness (tiredness like when I’m flaring) Thank you
Kelbol1
in
LUPUS UK
3 years ago
How do I reduce my cpk levels and keep them low?
I have tried high dose of steroids (started on 60mg now on 15mg) and
mycophenolate
(3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
I have tried high dose of steroids (started on 60mg now on 15mg) and
mycophenolate
(3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
Lobby123
in
PMRGCAuk
3 years ago
How do I reduce my cpk levels?
I have tried high dose of steroids (started on 60mg now on 15mg) and
mycophenolate
(3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
I have tried high dose of steroids (started on 60mg now on 15mg) and
mycophenolate
(3000mg) but the cpk levels aren’t consistently staying reduced. My consultant seems to have run out of options.
Lobby123
in
Myositis UK
3 years ago
Mycophenolate increase
Hi everyone, My rheumatologist has asked me to increase my
Mycophenolate
from 2 tablets a day to 3 tablets daily (500mg each). I’m not sure if I should add the extra tablet to my morning dose or nighttime one. What are you doing? Also, does it weaken your immune system to be on more tablets?
Hi everyone, My rheumatologist has asked me to increase my
Mycophenolate
from 2 tablets a day to 3 tablets daily (500mg each). I’m not sure if I should add the extra tablet to my morning dose or nighttime one. What are you doing? Also, does it weaken your immune system to be on more tablets?
LilyMistri2
in
LUPUS UK
3 years ago
Oral Thrush
I'm on
Mycophenolate
Mofetil 2g daily, steroids, warfarin and lots of other meds. Just recently had 3 bouts of oral thrush. Nystatin clears it up but it keeps coming back. Does anyone have a similar experience and what did you do about it?
I'm on
Mycophenolate
Mofetil 2g daily, steroids, warfarin and lots of other meds. Just recently had 3 bouts of oral thrush. Nystatin clears it up but it keeps coming back. Does anyone have a similar experience and what did you do about it?
Whitemagnum
in
LUPUS UK
3 years ago
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