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Experiences with
Medium chain acyl dehydrogenase deficiency
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Treatment options for 82 year old
My father who is hormone resistant had the go ahead for Radium 223, but has only been able to have 1 injection as his white blood cells and platelets are too low to continue currently. He feels like it has made things worse, am wondering how long this could affect his levels? Worrying with the current
My father who is hormone resistant had the go ahead for Radium 223, but has only been able to have 1 injection as his white blood cells and platelets are too low to continue currently. He feels like it has made things worse, am wondering how long this could affect his levels? Worrying with the current
Luucy
in
Advanced Prostate Cancer
4 years ago
SNAC and B12 (and other absorption enhancers)
Eligen B12 claims improved absorption due to SNAC. The testing was done on a small number of "normal" subjects - and the paper is from 2011. Any opinions on whether it has any role whatsoever in confirmed Pernicious Anaemia? Or even just B12 defiency that does not appear to resolve by using standard
Eligen B12 claims improved absorption due to SNAC. The testing was done on a small number of "normal" subjects - and the paper is from 2011. Any opinions on whether it has any role whatsoever in confirmed Pernicious Anaemia? Or even just B12 defiency that does not appear to resolve by using standard
helvella
in
Pernicious Anaemia Society
4 years ago
Finally getting somewhere... hopefully
So I haven't posted in 4 months as I was waiting until I had something more to report. I had my 12 week lupus anticoagulant follow up test and this came back positive again with a note that if this is not caused by lupus then it needs following up. The luoys unit have signed me off so haven't looked
So I haven't posted in 4 months as I was waiting until I had something more to report. I had my 12 week lupus anticoagulant follow up test and this came back positive again with a note that if this is not caused by lupus then it needs following up. The luoys unit have signed me off so haven't looked
Mifford
in
Hughes Syndrome APS Forum
4 years ago
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I have been taking nexium 40mg for 20 years and now omeperole 40mg for 2 years. Heart burn is becoming unbearable.
I have been taking nexium 40mg for 20 years ands now omeperole 40mg for 2 years. Heart burn is becoming unbearable. Anybody else having simular issues?
I have been taking nexium 40mg for 20 years ands now omeperole 40mg for 2 years. Heart burn is becoming unbearable. Anybody else having simular issues?
sanding
in
AF Association
4 years ago
DCM &LVEF
Dear colleagues, Diagnosed with dilated cardiomyopathy for the past one year & 8 months. Administered with carvedilol 3.125 mg twice daily, atorovastatin 10 mg, clopidegril 75mg, spironolactone plus toresemide 5mg once daily. CAG done with no blocks. On half salt and 1 to 1.5 litres of fluid restriction
Dear colleagues, Diagnosed with dilated cardiomyopathy for the past one year & 8 months. Administered with carvedilol 3.125 mg twice daily, atorovastatin 10 mg, clopidegril 75mg, spironolactone plus toresemide 5mg once daily. CAG done with no blocks. On half salt and 1 to 1.5 litres of fluid restriction
Vivi2711
in
British Heart Foundation
4 years ago
NHS website - Blood tests for iron deficiency anaemia
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
helvella
in
Pernicious Anaemia Society
4 years ago
Alternative therapies: what I've learned
I've been on the PMR journey since 2014, and the pred episode since 2015. In that time I've also had an osteoporosis scare. Those interested in what I did about that can read https://healthunlocked.com/pmrgcauk/posts/137578304/my-osteoporosis-journey - a bit dated now, but successful anyway.... When
I've been on the PMR journey since 2014, and the pred episode since 2015. In that time I've also had an osteoporosis scare. Those interested in what I did about that can read https://healthunlocked.com/pmrgcauk/posts/137578304/my-osteoporosis-journey - a bit dated now, but successful anyway.... When
HeronNS
in
PMRGCAuk
4 years ago
Radium 223 Side Effects?
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Luv2fish
in
Prostate Cancer Network
4 years ago
TRANSPLANT EVAL FRUSTRATION AS WELL AS RISING BMI
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting to
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting to
SadMad
in
Kidney Transplant
4 years ago
Frustrated by Kidney Transplant Evaluation
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
SadMad
in
Kidney Disease
4 years ago
Novothyral
Hey could any one tell me that if I was taking 100 levothyroxine and was not doing any good and my t4 was high and tsh suppressed, also t3 low , so my doctor has given my 50mcg levothyroxine and 10 lithyronine sodium will this help and is it equivalent to 100mcg please could some guide me please Shall
Hey could any one tell me that if I was taking 100 levothyroxine and was not doing any good and my t4 was high and tsh suppressed, also t3 low , so my doctor has given my 50mcg levothyroxine and 10 lithyronine sodium will this help and is it equivalent to 100mcg please could some guide me please Shall
tamina786
in
Thyroid UK
4 years ago
Help with medication for Endo diarrhoea
Hi can anyone tell me if Buscopan will help ease diarrhoea with Endo. Had it for a week now , cramps are awful and every time I eat it’s going straight threw me. I have been taking Imodium but I know your not supposed to take them for more than a few days. Any suggestions will be welcome so sick of this
Hi can anyone tell me if Buscopan will help ease diarrhoea with Endo. Had it for a week now , cramps are awful and every time I eat it’s going straight threw me. I have been taking Imodium but I know your not supposed to take them for more than a few days. Any suggestions will be welcome so sick of this
Pollypot
in
Endometriosis UK
4 years ago
Need advice on what to do
Hi, I'm new here and seeking for advice. Last month, I had blood and urine test, my creatinine went up, from 0.92 (taken Aug 21 2018) to 1.38 (Jan 22 2020), 17 months apart. And my gfr went down, from 98 to 60. All other tests were normal, potassium, sugar, sodium, etc. I am 30 years old, 140lbs and
Hi, I'm new here and seeking for advice. Last month, I had blood and urine test, my creatinine went up, from 0.92 (taken Aug 21 2018) to 1.38 (Jan 22 2020), 17 months apart. And my gfr went down, from 98 to 60. All other tests were normal, potassium, sugar, sodium, etc. I am 30 years old, 140lbs and
Gfr60
in
Kidney Disease
4 years ago
Naproxen instead of Prednisolone
Has anyone else been told to come of steroids and take Naproxen instead? I have been told to reduce from 5mg to zero (4mg this week then 3 then 2 etc )and use Naproxen instead as I’ve got low sodium I’ve had it before when I was first on Prednisolone and have had it since January it despite adding salt
Has anyone else been told to come of steroids and take Naproxen instead? I have been told to reduce from 5mg to zero (4mg this week then 3 then 2 etc )and use Naproxen instead as I’ve got low sodium I’ve had it before when I was first on Prednisolone and have had it since January it despite adding salt
JanetT58
in
PMRGCAuk
4 years ago
Cancer alert over nitrates in Rocket.
Hello everyone, There is a warning from the FSA that some Rocket spinach and salad products contain nitrates from fertilisers that exceed safe levels which can be carcinogenic.And Rocket in particular seems to absorb and store nitrates from fertilisers. Here's an article in todays Daily Mail please
Hello everyone, There is a warning from the FSA that some Rocket spinach and salad products contain nitrates from fertilisers that exceed safe levels which can be carcinogenic.And Rocket in particular seems to absorb and store nitrates from fertilisers. Here's an article in todays Daily Mail please
Hidden
Administrator
in
Healthy Eating
4 years ago
Fatigue, Pain & Other Fun Stuff
Good Morning Everyone.... I have a couple of questions and I know you can help me out. Hubby’s PC recurred at the end of 2016. Since then he’s had casodex, lupron, 6 of taxotere, Zytiga, 9 of cabazitazel + carboplatin, Xtandi, Keytruda, 6 more of cabazitazel + carboplatin, 5 days of radiation for pain
Good Morning Everyone.... I have a couple of questions and I know you can help me out. Hubby’s PC recurred at the end of 2016. Since then he’s had casodex, lupron, 6 of taxotere, Zytiga, 9 of cabazitazel + carboplatin, Xtandi, Keytruda, 6 more of cabazitazel + carboplatin, 5 days of radiation for pain
Luv2fish
in
Advanced Prostate Cancer
4 years ago
Best Iron Supplement to up Iron & Ferritin levels
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
mistygrey
in
Pernicious Anaemia Society
4 years ago
Can you help with iron panel blood test please
Ferritin. 67. Range 30-470 RBC. 3.7. 3.80-5.30 Haemoglobin 117. 120-150 Haematacrit 0.36. 0.37-0.45 I had been told in the past it was anaemia of a chronic illness. But with my ferritin level where it is surely I could improve this with some treatment. (
Ferritin. 67. Range 30-470 RBC. 3.7. 3.80-5.30 Haemoglobin 117. 120-150 Haematacrit 0.36. 0.37-0.45 I had been told in the past it was anaemia of a chronic illness. But with my ferritin level where it is surely I could improve this with some treatment. (
Gcart
in
Thyroid UK
4 years ago
Endo and diarrhoea
Hi does anyone experience bad diarrhoea with endometriosis. I had a colonoscopy 2 years ago due to having diarrhoea for 8 weeks but nothing was found on the test. Always suffered painful periods October 2019 I had a laporoscopy and was diagnosed with endometriosis and cyst on my right ovary. I’ve had
Hi does anyone experience bad diarrhoea with endometriosis. I had a colonoscopy 2 years ago due to having diarrhoea for 8 weeks but nothing was found on the test. Always suffered painful periods October 2019 I had a laporoscopy and was diagnosed with endometriosis and cyst on my right ovary. I’ve had
Pollypot
in
Endometriosis UK
4 years ago
Another Gp
Saw a different Gp on purpose. Only one available anyhow reason 3 x strange 'turns last one last night. He said I should only be having 3 monthly b12 injections. Didnt need to take tablets. I politely said the neurologist said to follow the bnf guidelines and I wasnt there today to discuss my b12 regime
Saw a different Gp on purpose. Only one available anyhow reason 3 x strange 'turns last one last night. He said I should only be having 3 monthly b12 injections. Didnt need to take tablets. I politely said the neurologist said to follow the bnf guidelines and I wasnt there today to discuss my b12 regime
Nackapan
in
Pernicious Anaemia Society
4 years ago
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