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Medium chain acyl dehydrogenase deficiency
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Yesterday Saw My Nephrologist
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
bbeba103
in
Kidney Disease
1 year ago
How can I gain weight on Kidney friendly diet?
I have CKD Stage 3b and am working with a nutritionist and adhering to a kidney friendly diet, but keep losing weight. I have a high metabolism and have always had a problem keeping weight on, but this diet is not providing me with enough high calorie options. My nutritionist advised me to eat more nuts
I have CKD Stage 3b and am working with a nutritionist and adhering to a kidney friendly diet, but keep losing weight. I have a high metabolism and have always had a problem keeping weight on, but this diet is not providing me with enough high calorie options. My nutritionist advised me to eat more nuts
David100
in
Kidney Disease
2 years ago
Bone Marrow and blood cells
My husband has been in the hospital for a week. He had been struggling to eat and drink due to nausea. His oncologist had him come in and they gave him a liter of saline and sent him home. We are rural and live an hour from the oncologist and any hospitals. When we got home that evening, it took him
My husband has been in the hospital for a week. He had been struggling to eat and drink due to nausea. His oncologist had him come in and they gave him a liter of saline and sent him home. We are rural and live an hour from the oncologist and any hospitals. When we got home that evening, it took him
Wyldhare22
in
Advanced Prostate Cancer
1 year ago
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acid reflux
i have terrible burps mostly afternoon and evening any advice what to take have had omeprazule doesnt work or nexium or gaviscon leaves horrible taste in my mouth and my chest hurts
i have terrible burps mostly afternoon and evening any advice what to take have had omeprazule doesnt work or nexium or gaviscon leaves horrible taste in my mouth and my chest hurts
cambutdlady
in
PMRGCAuk
2 years ago
Further advice please
As mentioned in an earlier post, I will be entering into deliberations this coming week with my oncologist and our Nuclear Medicine Team to determine my next therapy steps. As previously noted, I am currently on Cabazitaxel which is suspected to be failing due to rising PSA after three cycles. Options
As mentioned in an earlier post, I will be entering into deliberations this coming week with my oncologist and our Nuclear Medicine Team to determine my next therapy steps. As previously noted, I am currently on Cabazitaxel which is suspected to be failing due to rising PSA after three cycles. Options
Univs
in
Advanced Prostate Cancer
1 year ago
Bloods results help please
I went to see my private endo 3 weeks ago and he asked for loads of bloods. I'll post them below but I'm confused as my previous tests on 07/10 showed TSH 2.89 (range 0.35-5.5 um/L) and free T4 14.3 pmol/L (range 10.5-21) - those were done by GPThe last bloods were done on 9/11 at di only a month later
I went to see my private endo 3 weeks ago and he asked for loads of bloods. I'll post them below but I'm confused as my previous tests on 07/10 showed TSH 2.89 (range 0.35-5.5 um/L) and free T4 14.3 pmol/L (range 10.5-21) - those were done by GPThe last bloods were done on 9/11 at di only a month later
bajmon
in
Thyroid UK
2 years ago
Advice Please
Currently assessing efficacy of Cabazitaxel and possible next steps. Future options could include, Radium 223, Pluvicto, other. Also, Dr has put Carbolatin on the table as a “stand alone” therapy i.e., not combined with Cabazitaxel. My question: Does anyone have experience/advice with respect to
Currently assessing efficacy of Cabazitaxel and possible next steps. Future options could include, Radium 223, Pluvicto, other. Also, Dr has put Carbolatin on the table as a “stand alone” therapy i.e., not combined with Cabazitaxel. My question: Does anyone have experience/advice with respect to
Univs
in
Advanced Prostate Cancer
1 year ago
Antidepressants and other meds
Hi all, especially Sue who I'm hoping can help. I have at last had blood tests which showed my levels were around 50, which she said wasn't that low, but I'm now on Iron 200mg a day, havibg another blood test in January. Also my sodium levels were little low so was told to use more salt on my food.
Hi all, especially Sue who I'm hoping can help. I have at last had blood tests which showed my levels were around 50, which she said wasn't that low, but I'm now on Iron 200mg a day, havibg another blood test in January. Also my sodium levels were little low so was told to use more salt on my food.
Cobobay
in
Restless Legs Syndrome
2 years ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
Ray Peat & Thyroid Wisdom
Hi all :) I've mentioned a few times on this forum that the Keto/carnivore diet is the reason for my devastating decline into overt hypothyroidism where I became unresponsive to synthetics. Since that time, I've used this forum as well as the teachings of American physiologist Ray Peat to educate myself
Hi all :) I've mentioned a few times on this forum that the Keto/carnivore diet is the reason for my devastating decline into overt hypothyroidism where I became unresponsive to synthetics. Since that time, I've used this forum as well as the teachings of American physiologist Ray Peat to educate myself
Hidden
in
Thyroid UK
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
2 years ago
Healthy normal colon at last - update on my story
Following my post nearly a year ago about the success I was having taking Sodium Butyrate I wanted to let you know that it worked! I had my colonoscopy yesterday and the whole colon is healthy with no inflammation or polyps. Seeing as I was ill for 25 yrs and was facing the prospect of having to start
Following my post nearly a year ago about the success I was having taking Sodium Butyrate I wanted to let you know that it worked! I had my colonoscopy yesterday and the whole colon is healthy with no inflammation or polyps. Seeing as I was ill for 25 yrs and was facing the prospect of having to start
Happy-hacker
in
Crohn's and Colitis Support
2 years ago
Iron Infusions
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
Joolsg
in
Restless Legs Syndrome
2 years ago
blood tests and DXA scan
Following blood tests and a DXA scan I finally have results from the Endo. Re scan it states: T-scores have been reported as -1.3 at the left neck of fear and -1.9 at the lumbar spine. The calculated 10 years probability of a major osteoporotic fracture and that of a hip fracture is below intervention
Following blood tests and a DXA scan I finally have results from the Endo. Re scan it states: T-scores have been reported as -1.3 at the left neck of fear and -1.9 at the lumbar spine. The calculated 10 years probability of a major osteoporotic fracture and that of a hip fracture is below intervention
Lottyplum
in
Thyroid UK
2 years ago
results
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
follow on from my post yesterday finally have full test results. There also full blood count results but I guess they’re not relevant Test results 9 nov 22 Thyroid ft4 13.1 (12-22) TSH 2.49 (0.27-4.20) Ferritin 9.1 (13-150) Transferrin 3.49 (2.0-3.6) Iron 12.6 (10-30) Saturation % 14.4 (<55)
jeffbird
in
Thyroid UK
2 years ago
Blood Test Results - Unusual Symptoms
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
DonEstello
in
Thyroid UK
2 years ago
New to this...waiting for diagnosis...
What to make of these numbers? No definite diagnosis yet. Creatinine 1.49 in September., 1.48 now. Efgr 58 in Sept., 59 now. A/G ratio 2.4 in Sept., 2.8 now (ref range 1.2-2.2) Bilirubin 0.6 in Sept., 1.7 now (ref range 0-1.2) Creatinine Kinase total 1.02 (ref range 0.6-1.0) Urine albumin/ creat
What to make of these numbers? No definite diagnosis yet. Creatinine 1.49 in September., 1.48 now. Efgr 58 in Sept., 59 now. A/G ratio 2.4 in Sept., 2.8 now (ref range 1.2-2.2) Bilirubin 0.6 in Sept., 1.7 now (ref range 0-1.2) Creatinine Kinase total 1.02 (ref range 0.6-1.0) Urine albumin/ creat
CN67
in
Kidney Disease
2 years ago
blood test results
hi everyone I’m just going through my last lot of blood results.. ESR 1mm/hr Neutrophils 8.10 (2.1 - 7.4) Lymphocyte count 0.98 (1 - 3.6) Sodium 128 (should be 135+). Are these anything to be concerned about? My GP wasn’t worried - but just said he’ll recheck the sodium in December 🤔 (Apparently
hi everyone I’m just going through my last lot of blood results.. ESR 1mm/hr Neutrophils 8.10 (2.1 - 7.4) Lymphocyte count 0.98 (1 - 3.6) Sodium 128 (should be 135+). Are these anything to be concerned about? My GP wasn’t worried - but just said he’ll recheck the sodium in December 🤔 (Apparently
Doraflora
in
PMRGCAuk
2 years ago
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