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Medium chain acyl dehydrogenase deficiency
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BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
High Dose Niacin (Nicotinic Acid) and Hashimoto's?
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Bolt_Upright
in
Thyroid UK
2 years ago
Advice, if possible please, on Sodium Chloride 0.9% nebuliser Liquid.
Hello again. I feel such an idiot. With the cold weather, I have been nebulising with Sodium Chloride 0.9% Nebuliser liquid 2.5ml unit doses. They are in box stating Saline Steri-Neb. Sterile until opened.I had several boxes over from last year. I feel such an idiot. It never occurred to me to check
Hello again. I feel such an idiot. With the cold weather, I have been nebulising with Sodium Chloride 0.9% Nebuliser liquid 2.5ml unit doses. They are in box stating Saline Steri-Neb. Sterile until opened.I had several boxes over from last year. I feel such an idiot. It never occurred to me to check
Frustrated12
in
Lung Conditions Community Forum
2 years ago
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pants poopers president
who knew I’d be so popular here admitting I poop myself. I’m humbled by the honor and achievement. I promise to represent my people with … pads, Imodium and anti-depressants! Huzzah!
who knew I’d be so popular here admitting I poop myself. I’m humbled by the honor and achievement. I promise to represent my people with … pads, Imodium and anti-depressants! Huzzah!
Penny-dumped-Leonard
in
Anxiety and Depression Support
2 years ago
Ferinject to correct iron deficiency and strange clicking in throat when swollowing
So I had very bad iron deficiency anemia for some time now. Iron tablets did not work well. So an internist decided to give me ferinject 1000 to correct it. I had 30 minutes of iron infusion and I was fine. Then after couple of days my throat was swollen and I start to have strange sensations. It's like
So I had very bad iron deficiency anemia for some time now. Iron tablets did not work well. So an internist decided to give me ferinject 1000 to correct it. I had 30 minutes of iron infusion and I was fine. Then after couple of days my throat was swollen and I start to have strange sensations. It's like
NatDeer
in
Thyroid UK
2 years ago
good blood test results
I was dreading these last blood tests as I’d been not feeling 100% of late for no particular reason. However: I was over the moon to learn that my bloods were ‘normal’. Kidney function even better: sodium going in the right direction and ferritin serum level significantly improved. just one fly
I was dreading these last blood tests as I’d been not feeling 100% of late for no particular reason. However: I was over the moon to learn that my bloods were ‘normal’. Kidney function even better: sodium going in the right direction and ferritin serum level significantly improved. just one fly
Doraflora
in
PMRGCAuk
2 years ago
Iron Infusion in the U.S.
Hello wise RLS colleagues!Has anyone had Medicare pay for an iron infusion for their RLS? I meet the RLS guidelines for iron infusion, but I have been told that Medicare will not cover it because I am not anemic. If it was covered, can you share with me what code was used? I have had RLS for 20 years
Hello wise RLS colleagues!Has anyone had Medicare pay for an iron infusion for their RLS? I meet the RLS guidelines for iron infusion, but I have been told that Medicare will not cover it because I am not anemic. If it was covered, can you share with me what code was used? I have had RLS for 20 years
Qalba
in
Restless Legs Syndrome
2 years ago
Results
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Pheebs93
in
Pernicious Anaemia Society
2 years ago
Dietary restrictions and the workplace...
Hi all,I am wondering what your experiences with working and your diet? My department got rewarded with a pizza party. I requested a salad to accommodate low sodium diet. I was told no special treatment. Won't be showing up to that lunch despite being the team lead. Thoughts? Am I being the unreasonable
Hi all,I am wondering what your experiences with working and your diet? My department got rewarded with a pizza party. I requested a salad to accommodate low sodium diet. I was told no special treatment. Won't be showing up to that lunch despite being the team lead. Thoughts? Am I being the unreasonable
Bananas2007
in
Kidney Disease
1 year ago
Nexium Control
I wanted to find something to try and ease my acid reflux and indigestion. (Worries the hell out of me since the HA). I went to the pharmacy which dispenses my prescriptions to ask which over the counter medication would be best and was advised to try Omeprazole or Nexium Control (Esomeprazole). I opted
I wanted to find something to try and ease my acid reflux and indigestion. (Worries the hell out of me since the HA). I went to the pharmacy which dispenses my prescriptions to ask which over the counter medication would be best and was advised to try Omeprazole or Nexium Control (Esomeprazole). I opted
Becdan
in
British Heart Foundation
2 years ago
Allergy testing
Has anyone had allergy/intolerance testing to get a reason to what is causing the constipation? My doctors keep telling us she will grow out of it and to keep giving her laxido sodium phosphate and senikot which is no longer working
Has anyone had allergy/intolerance testing to get a reason to what is causing the constipation? My doctors keep telling us she will grow out of it and to keep giving her laxido sodium phosphate and senikot which is no longer working
Tink_84
in
ERIC
2 years ago
Timing of XGeva & Radium 223.
My husband is due to start Radium 223 treatments at Stanford. His oncologist wants him to also start XGeva. The XGeva injections were postponed until after he had dental crown work done. He had an appointment for that on 2/6 which has been delayed because he tested + for Covid. His rescheduled appointment
My husband is due to start Radium 223 treatments at Stanford. His oncologist wants him to also start XGeva. The XGeva injections were postponed until after he had dental crown work done. He had an appointment for that on 2/6 which has been delayed because he tested + for Covid. His rescheduled appointment
Mcrpca
in
Advanced Prostate Cancer
1 year ago
change of T3 brand
Hi. My GP finally agreed to give me Liothyronine on the nhs after l bought it for several years on a private prescription. He included Thybon Henning on the computer, l checked online when l got home. However when l ordered them the brand had been removed and l received Mercury Pharma . I called the
Hi. My GP finally agreed to give me Liothyronine on the nhs after l bought it for several years on a private prescription. He included Thybon Henning on the computer, l checked online when l got home. However when l ordered them the brand had been removed and l received Mercury Pharma . I called the
YSpencer
in
Thyroid UK
2 years ago
Substitute Eplerenone for Prednisone with Zytiga?
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
garyjp9
in
Advanced Prostate Cancer
2 years ago
Treating anaemia alongside thyroid medication
Having been on T3 only for about 8 months, I have made some massive strides in terms of my general health. Most of the symptoms that had me at my absolute lowest ebb, have gone. However, if one remains it is a general feeling of weakness. I used to weight lift 4 - 5 times a week before thyroid illness
Having been on T3 only for about 8 months, I have made some massive strides in terms of my general health. Most of the symptoms that had me at my absolute lowest ebb, have gone. However, if one remains it is a general feeling of weakness. I used to weight lift 4 - 5 times a week before thyroid illness
JonnyA
in
Thyroid UK
2 years ago
NEW MEMBER
Hi everyone, I've just joined and going through posts and comments. I have had CKD for a while now, have epilepsy, am on low sodium chloride daily and suffer from SIADH. I look forward to getting tips from others. Happy Christmas!
Hi everyone, I've just joined and going through posts and comments. I have had CKD for a while now, have epilepsy, am on low sodium chloride daily and suffer from SIADH. I look forward to getting tips from others. Happy Christmas!
lgd333
in
Kidney Disease
2 years ago
Thanks for support and great information
Apparently my blood counts have gotten so low that there's no treatment available for me I've done the LU177 and the radium 223 but the doctor told me yesterday 3 to 6 months you all take care love you all treat each other with respeit's back and keep helping each other
Apparently my blood counts have gotten so low that there's no treatment available for me I've done the LU177 and the radium 223 but the doctor told me yesterday 3 to 6 months you all take care love you all treat each other with respeit's back and keep helping each other
Devtony8
in
Advanced Prostate Cancer
1 year ago
Sodium cromoglicate capsules by KinedexE
Hi, does anyone know where i can buy Sodium cromoglicate capsules by the manufacturer KinedexE? Im in the UK. They work better than the others by eg sanofi
Hi, does anyone know where i can buy Sodium cromoglicate capsules by the manufacturer KinedexE? Im in the UK. They work better than the others by eg sanofi
haris89
in
The UK Mastocytosis Support Group
1 year ago
[b]Vinpocetine regulates levels of circulating TLRs in Parkinson's disease patients[/b] 2018
Vinpocetine regulates levels of circulating TLRs in Parkinson's disease patients
2018 https://sci-hub.se/10.1007/s10072-018-3592-y I get 30 mg capsules from Swanson and take one a day with food. Per this article: https://nootropicsexpert.com/vinpocetine/ Vinpocetine helps: • Cerebral Circulation
Vinpocetine regulates levels of circulating TLRs in Parkinson's disease patients
2018 https://sci-hub.se/10.1007/s10072-018-3592-y I get 30 mg capsules from Swanson and take one a day with food. Per this article: https://nootropicsexpert.com/vinpocetine/ Vinpocetine helps: • Cerebral Circulation
Bolt_Upright
in
Cure Parkinson's
2 years ago
Association Between Antiepileptic Drugs and Incident Parkinson Disease in the UK Biobank
I am unable to post full text article, this is the summary with one comment regarding gabapentin. Interestingly my husband takes gabapentin for back/nerve pain. Prior to his diagnosis he was on a a dose about (600mg), taxes (900mg now) max for pain threshold is (2400-3600). Makes me wonder if we cut
I am unable to post full text article, this is the summary with one comment regarding gabapentin. Interestingly my husband takes gabapentin for back/nerve pain. Prior to his diagnosis he was on a a dose about (600mg), taxes (900mg now) max for pain threshold is (2400-3600). Makes me wonder if we cut
Sydney75
in
Cure Parkinson's
2 years ago
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