Search
Search
About
Log in
Join
Experiences with
Medium chain acyl dehydrogenase deficiency
Posts
Communities
4,480 public posts
Filter results
IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
Anemia
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
SouthernBell50
in
Pernicious Anaemia Society
2 years ago
Low Sodium
Yesterday I had my usual blood test as I’m on methotrexate, today I had a phone call from the Doctors Surgery to say they have made me a Doctors Appointment for tomorrow as they needed to see me urgently as apparently it showed I have low sodium levels which was fine on my last blood test in September
Yesterday I had my usual blood test as I’m on methotrexate, today I had a phone call from the Doctors Surgery to say they have made me a Doctors Appointment for tomorrow as they needed to see me urgently as apparently it showed I have low sodium levels which was fine on my last blood test in September
Phed
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Iron Info Heme vs Non Heme
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
DicCarlson
in
Restless Legs Syndrome
2 years ago
Blood Test Results, Help please... Second Cortisol test still showing as borderline Cushing's .
Apologies, I posted earlier, to the wrong forum... I'm just not with it. Sorry 😞 It's been a long, long time since I posted.Much as happened; too much. After years of asking about a Cortisol test and being constantly denied by the male GPs who said it was only the remit of a consultant to authorise
Apologies, I posted earlier, to the wrong forum... I'm just not with it. Sorry 😞 It's been a long, long time since I posted.Much as happened; too much. After years of asking about a Cortisol test and being constantly denied by the male GPs who said it was only the remit of a consultant to authorise
Poppy_the_cat
in
Thyroid UK
2 years ago
radium 223
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
Mcrpca
in
Advanced Prostate Cancer
2 years ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
Can probiotics ease diarrhoea and daily loose stools?
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
rustydog
in
IBS Network
2 years ago
B12 ferritin connection??
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
gypsy_child
in
Pernicious Anaemia Society
2 years ago
Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
IBS after eating evening meal
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
PayPal
in
IBS Network
2 years ago
Gaviscon dilemma
Earlier this week I had a call from the pharmacist at my GP practice. He was calling to review my meds which seems to be the latest practise at my docs. I told him I had stopped Omeprazole and was just using Gaviscon at night to control acid reflux as it wasn't too bad at the moment and that I thought
Earlier this week I had a call from the pharmacist at my GP practice. He was calling to review my meds which seems to be the latest practise at my docs. I told him I had stopped Omeprazole and was just using Gaviscon at night to control acid reflux as it wasn't too bad at the moment and that I thought
hjskev
in
Acid Reflux Support
2 years ago
back in hospital
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
lonmallin50
in
British Liver Trust
2 years ago
Practical Advice for having a social life with IBS-D
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
MeliHere2
in
IBS Network
2 years ago
Trying to understand appetite / cravings
I have an advanced background in human nutrition but am totally new to thyroid issues and am trying to understand something. I've noticed since I've been treated (T4 and T3 split tid) that at times I am hungrier than usual. I understand the increased metabolism from thyroid correction, but is there anything
I have an advanced background in human nutrition but am totally new to thyroid issues and am trying to understand something. I've noticed since I've been treated (T4 and T3 split tid) that at times I am hungrier than usual. I understand the increased metabolism from thyroid correction, but is there anything
Joyya
in
Thyroid UK
2 years ago
Lost, confused, worried - trying to conceive and thyroid/lining/progesterone issues
Looking for some help/guidance/support. Apologies in advance for the long post. My husband and I, both 31 and healthy, have been trying to conceive for a year now with no success. We've both had a number of tests and through my own reading and persistent private re-testing have identified my thyroid
Looking for some help/guidance/support. Apologies in advance for the long post. My husband and I, both 31 and healthy, have been trying to conceive for a year now with no success. We've both had a number of tests and through my own reading and persistent private re-testing have identified my thyroid
er2012
in
Fertility Network UK
2 years ago
Lost/confused/worried - trying to conceive and thyroid function
Looking for some help/guidance/support. Apologies in advance for the long post. My husband and I, both 31 and healthy, have been trying to conceive for a year now with no success. We've both had a number of tests and through my own reading and persistent private re-testing have identified my thyroid
Looking for some help/guidance/support. Apologies in advance for the long post. My husband and I, both 31 and healthy, have been trying to conceive for a year now with no success. We've both had a number of tests and through my own reading and persistent private re-testing have identified my thyroid
er2012
in
Thyroid UK
2 years ago
Any positive experiences with TIPSS
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
Crooktele79
in
British Liver Trust
2 years ago
Coolness in feet, legs and one side of neck - Could it be nerve healing?
Hi and thanks for reading my post! I'm approaching 1 year of B12 injections and in the last week or two I've been having some occasional coolness in my feet, and sometimes in my lower legs up to my knee. The coolness in my feet sometimes starts as an almost burning pain in my right outer toes. It
Hi and thanks for reading my post! I'm approaching 1 year of B12 injections and in the last week or two I've been having some occasional coolness in my feet, and sometimes in my lower legs up to my knee. The coolness in my feet sometimes starts as an almost burning pain in my right outer toes. It
Cobalt1312
in
Pernicious Anaemia Society
2 years ago
1
...
36
37
38
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
1459 results
Pernicious Anaemia Society
390 results
IBS Network
355 results
View top 10 communities
Sort by
Most Relevant
Newest