Iron Infusions: An interesting article... - Restless Legs Syn...

Restless Legs Syndrome

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Iron Infusions

Joolsg profile image
16 Replies

An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption.

It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are unsafe and too risky so this might help anyone trying to push for an infusion for RLS.

codymd.com/iron_deficiency/

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Joolsg profile image
Joolsg
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SueJohnson profile image
SueJohnson

It says that the higher the inflammation, the higher the ferritin in the article referenced pubmed.ncbi.nlm.nih.gov/273...

Simkin profile image
Simkin in reply toSueJohnson

Sue, I am due my next blood test soon to check my ferritin levels.My GP says I do not need to fast beforehand but I am sure you said it is better not to eat before the test?

SueJohnson profile image
SueJohnson in reply toSimkin

Yes you want to fast after midnight.

Simkin profile image
Simkin in reply toSueJohnson

Thanks Sue and unless my ferritin levels have shot up I too will push for an iron infusion.

Felixstowe profile image
Felixstowe

Very interesting thank you Joolsg.

I’ve just been given a date to go for an iron infusion arranged by my sleep specialist. My ferritin was down to 13 and iron to 11 no wonder my RL was through the roof. I have ulcerative colitis that has been flaring up and also have Polymyalgia Rheumatica. I can’t tolerate oral iron except for Spatone so it was decided that an infusion was the answer.

Joolsg profile image
Joolsg in reply toFelixstowe

I really hope you see some improvement. It's very fast (30 mins in total).

SueJohnson profile image
SueJohnson in reply toFelixstowe

And spatone only has 5 mg of elemental iron so wouldn't help you much anyway so glad you are able to get an infusion.

Thanks Jools, some useful information there.

DataRN profile image
DataRN

I have had my 2nd of 3 doses of Venofer 300mg. Fingers crossed that I get some relief soon.

Joolsg profile image
Joolsg in reply toDataRN

sciencedirect.com/science/a... not heard of that formula being used for RLS. I know that the studies use Injectafer ( Ferinject in some countries).

Fingers & toes crossed for you.

DataRN profile image
DataRN in reply toJoolsg

Venofer is very common here in the US for RLS. It all comes down to what insurance will pay for, of course. Venofer was not Dr. Winkelman’s first choice for me. He ordered/prefers Feraheme which is typically given in 2 doses of 510mg, 1 week apart. Are you familiar with Dr. Winkelman?!

Joolsg profile image
Joolsg in reply toDataRN

Yes. I'm part of his opioid study, even though based here in UK. I think Injectafer is now the most common infusion in the UK. Hope you see benefits soon.

in reply toDataRN

You might find this interesting

healthunlocked.com/rlsuk/po...

Joolsg profile image
Joolsg in reply to

It is very interesting. There is so much more to learn. Trials involving RLS patients and different iron infusion formulas would help.But as we know, we're at the back of the queue for any research or trials.

Lola43 profile image
Lola43

brilliant piece of evidence - something else to print and take to the gp. Thanks Joolsg

Simkin profile image
Simkin

Very interesting. Thank you Joolsg.

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