Another consultant cancellation

[Diamondbabe]

My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time.

He has been waiting 12 months now for this appointment.

I am so angry.

I am going to ring the Secretary tomorrow to ask if they can please reconsider.

He is very poorly now.

Sleeping mostly, not eating, still drinking, shuffling around on a walking frame.

His now has acute kidney disease. Been in hospital in February with dangerously low sodium and raised potassium.

I am so worried and need him to be soon.

Does anybody know what I should say to get them to understand my concerns please?

Sorry for the rant but so frustrated.

The GP has left him because he should be in the care of the upper GI consultant.

Thank you

[Ewife]

I'm so sorry for you. If he is well enough to push for referral to a proper Hepatology clinic at a Hospital a bit further away, you would both benefit immensely. You are always entitled to a second opinion

[RugbyMama]

I am so sorry to hear this. I recall your husband has been very poorly for some time.

Could you contact your hospital's PALS? They have been exceptional for me in the past - I raised a concern with them on a Monday and had a letter confirming an appointment for my son that I had been told would be 8 months away by the end of the week.

Keep us posted. Xxx

[user2021a]

I would agree with Ewife - he needs a hepatology doctor - ask for referral to liver specialist centre. Try speaking to the nurse helpline for advice

[Diamondbabe]

Morning,I have spoken with the Secretary and explained my concerns.

She has suggested I contact our gp to expediate an appointment.

I have emailed our gp and wait in hope.

Apparently the cancellation is due to doctors strike.

3 times, really!!!

Thank you all for your support it is priceless knowing we have each other to try and navigate through the fog.

Take care all

Dawn x

[Dogbot]

Hi Dawn it is very frustrating when appointments are cancelled I do feel for you and your family, but possibly if your husband will stop drinking it may help your case 🤔. I also understand how difficult it is to stop I also had to do it . I wish you and your husband all the best, with the stopping and getting an appointment that they stick to 🤞💕💕

Stay safe All

Dogbot 🐶🌈Dave

[Diamondbabe in reply to Dogbot]

Thank you for your kind words.Unfortunately he doesnt want to stop drinking.

Not much hope of He continued down this route.

X

[Dogbot]

I was unfortunate enough to have a spell of HE but luckily I was in Kings College Hospital, and I can tell you it was the most horrible time of my life, I was rude to the nurses and my wife which I would never be to ether party’s. My wife was travelling 3/4 hours a day to see me and the nurses not only saved my life but were fantastic. This was all due to drinking, so if you’re husband ever wants to communicate I would be happy to give him the benefits of my journey, I’m 20 years of the drink and it was very difficult.just in case you’re wondering I’m not a preacher just an alcoholic that managed to give up.

Dave

[Aotea2012]

Dogbot is right, he must stop drinking. If he does manage to do it then it’s likely his health will dramatically improve. Hope he gets his re appointment soon.

[Roy1955]

Unfortunately if he continues drinking there's not a lot they can do to repair his diseased body.He could see 100 Dr's a week and not one of them could make him well.

[Readlots]

Hi Dawn, when you talk to the GP about bringing forward the referral for a liver consultant, also talk to them about a palliative care referral. If he’s not going to stop drinking, you’re going to need support at home to care for him as his health deteriorates.

PALs is a great suggestion from RugbyMama and calling the BLT helpline from User2121a.

Failing all else, write to your MP. Mine’s Matt Hancock so it really is an act of desperation!

[Diamondbabe]

Result today.The Secretary called and the consultant is calling him in thursday. GP must have expeditted the appointment.

He's bad today. Struggling to breath and feeling sick and faint. Started having pains in his left shoulder and kneck.

He has stripped down to his boxers to try and cool down.

His tummy is very swollen and veins showing and little circles allover.

He is more confused than usual.

I am on alert and worried for him.

Dawn x

[BritishLiverTrust8 Moderator British Liver Trust]

Dear Diamondbabe

If you are concerned that he is deteriorating, please don’t wait until your appointment on Thursday before seeking medical assistance via 111 or A&E.

Best wishes

British Liver Trust

[Diamondbabe in reply to BritishLiverTrust8]

I am keeping a close eye on him.He doesn't want to go to hospital.

The only way I will get him there is if he's unconscious or something traumatic happens.

So frightening to watch .

Thank you

Dawn x

[Diamondbabe in reply to BritishLiverTrust8]

I am keeping a close eye on him.He doesn't want to go to hospital.

The only way I will get him there is if he's unconscious or something traumatic happens.

So frightening to watch .

Thank you

Dawn x