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Medium chain acyl dehydrogenase deficiency
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Low sodium levels in bloodwork
My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant feature. His sodium levels have been trending downward since his dx. He experiences frequent periods of confusion throughout the day and I always attributed this to severe blood pressure swings but now wonder if it is low
My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant feature. His sodium levels have been trending downward since his dx. He experiences frequent periods of confusion throughout the day and I always attributed this to severe blood pressure swings but now wonder if it is low
Ruffner
in
Multiple System Atrophy Trust
10 months ago
increase my natural thyroid dosage?
My wife( female) is 70yrs old, she has had hypothyroidism for 15/20 yrs, but still battling to get thing’s right, because GP’s don’t have the time. She weighs in the 9 stone range, about 5’3” Could not get on with just Levothyroxine, has been purchasing earfa thyroid privately for a number of years
My wife( female) is 70yrs old, she has had hypothyroidism for 15/20 yrs, but still battling to get thing’s right, because GP’s don’t have the time. She weighs in the 9 stone range, about 5’3” Could not get on with just Levothyroxine, has been purchasing earfa thyroid privately for a number of years
Decaston
in
Thyroid UK
10 months ago
finding Answers
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
LadyHash
in
IBS Network
10 months ago
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Sick from Ozempic
I started on Ozempic in May of 2023 with .25 for 1month. Then to .50 for a month, and finally to 1 mg against my better judgment for a month. Told my Endo that I wanted to go back to .50 dose per week. I gave myself one dose. Five days later, I started feeling sick to my stomach, and had a dull pain
I started on Ozempic in May of 2023 with .25 for 1month. Then to .50 for a month, and finally to 1 mg against my better judgment for a month. Told my Endo that I wanted to go back to .50 dose per week. I gave myself one dose. Five days later, I started feeling sick to my stomach, and had a dull pain
CuriousCKD
in
Kidney Disease
10 months ago
anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
10 months ago
Influences of sleep and the circadian rhythm on iron-status indices
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Brukinsa/Zanubrutinib slow working at present time
I started treatment in early May with Zanubrutinib but because of severe stomach pain with it and acyclovir stopped it after 6 weeks so that an endoscopy could be done. Wbc started at 212,000 and went up to 300,000 in 2 1/2 weeks. 2 weeks later down to 165,000. The time off was almost 3 weeks. Started
I started treatment in early May with Zanubrutinib but because of severe stomach pain with it and acyclovir stopped it after 6 weeks so that an endoscopy could be done. Wbc started at 212,000 and went up to 300,000 in 2 1/2 weeks. 2 weeks later down to 165,000. The time off was almost 3 weeks. Started
Bethsaida
in
CLL Support
10 months ago
Ketogenic/Paleo diet
I have been following a ketogenic diet with very little dairy. It is very low carb and I've lost weight and generally feel better on it. However, a recent blood test showed that I have a low sodium level. Whilst I do season food I don't eat any processed food, so no crisps, savoury snacks etc. that
I have been following a ketogenic diet with very little dairy. It is very low carb and I've lost weight and generally feel better on it. However, a recent blood test showed that I have a low sodium level. Whilst I do season food I don't eat any processed food, so no crisps, savoury snacks etc. that
Miserere
in
PMRGCAuk
10 months ago
Over range copper and zinc
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
Noelnoel
in
Thyroid UK
10 months ago
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels in patients with thyroid tumors
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Unexplained lack of PMR pains!
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Comben
in
PMRGCAuk
10 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
7 months ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
11 months ago
Letting people down because of IBS
I'd made arrangements to go on a 250 mile train ride to help family members with a really difficult family problem. I knew it was a risk booking tickets and making commitments, but I gambled on it. The stress has been awful the past 3 weeks to a month now. I kept "positive-talking" myself and saying
I'd made arrangements to go on a 250 mile train ride to help family members with a really difficult family problem. I knew it was a risk booking tickets and making commitments, but I gambled on it. The stress has been awful the past 3 weeks to a month now. I kept "positive-talking" myself and saying
Luisa22
in
IBS Network
10 months ago
Active b12 result
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hullaballop
in
Pernicious Anaemia Society
11 months ago
What TSH level is too low on NDT + low sodium
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Juliet_22
in
Thyroid UK
10 months ago
Provenge
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
dhccpa
in
Advanced Prostate Cancer
7 months ago
does this sound like IBS??
7 weeks ago i went to the toilet and just happened to see the toilet before i flushed, it was pink, toilet roll on top of stool so couldn’t investigate, next day i went to the toilet again and there was red mucus all over a darkish stool, i went docts straight away! had a physical examination and
7 weeks ago i went to the toilet and just happened to see the toilet before i flushed, it was pink, toilet roll on top of stool so couldn’t investigate, next day i went to the toilet again and there was red mucus all over a darkish stool, i went docts straight away! had a physical examination and
Hidden
in
IBS Network
10 months ago
Order of treatment?
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
NLondon43
in
Advanced Prostate Cancer
7 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
7 months ago
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