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Experiences with
Mixed connective tissue disease (MCTD)
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Low Dose Tetrahydrocannabinol and Melatonin for Better Sleep and Cognitive Function
Hello HealthUnlocked Members, I have been on ADT continuously since February 2016 and in general I have tolerated Lupron fairly well to date. The hot flashes have diminished in frequency and intensity over time and bone density is normal for my age (65 years). I have found that exercise, keeping cool
Hello HealthUnlocked Members, I have been on ADT continuously since February 2016 and in general I have tolerated Lupron fairly well to date. The hot flashes have diminished in frequency and intensity over time and bone density is normal for my age (65 years). I have found that exercise, keeping cool
PhilipSZacarias
in
Advanced Prostate Cancer
4 years ago
Dr. Reddy’s Labs Hydroxychloroquine
I live in the U.S. and I’ve had a
MCTD
diagnosis since June 2019. I’ve been on 400 mg Hydroxychloroquine since then and doing well. Previously, my pills were brand name Plaquenil (even though my doctor didn’t specify that) but my pharmacy just switched to a generic by Dr.
I live in the U.S. and I’ve had a
MCTD
diagnosis since June 2019. I’ve been on 400 mg Hydroxychloroquine since then and doing well. Previously, my pills were brand name Plaquenil (even though my doctor didn’t specify that) but my pharmacy just switched to a generic by Dr.
TollerTime
in
LUPUS UK
4 years ago
Another diagnosis - GCA confirmed
A couple of questions for you - does anyone on here or from the PMRGCA site have other autoimmune conditions such as Lupus,
MCTD
, UCTD, Raynaud’s, Sjogrens etc? I am UCTD and wondered how common it was to have other AI conditions in conjunction with GCA?
A couple of questions for you - does anyone on here or from the PMRGCA site have other autoimmune conditions such as Lupus,
MCTD
, UCTD, Raynaud’s, Sjogrens etc? I am UCTD and wondered how common it was to have other AI conditions in conjunction with GCA?
Horsewhisper
in
LUPUS UK
4 years ago
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High ESR - Previous Post
Re my previous Post my text was changed and should have read that I have
MCTD
, Sjorgens and Raynaud's. Richer2
Re my previous Post my text was changed and should have read that I have
MCTD
, Sjorgens and Raynaud's. Richer2
Richer
in
LUPUS UK
5 years ago
MCT Oil(Power) & Marine Collagen
Has a) anyone been taking (on Drs advice) MCT Oil and/or Marine Collagen; as an adjunct to health, and b) does anyone know of contra-indications for either of these products when one has NAFLD? Thank you.
Has a) anyone been taking (on Drs advice) MCT Oil and/or Marine Collagen; as an adjunct to health, and b) does anyone know of contra-indications for either of these products when one has NAFLD? Thank you.
FoodIsLife
in
Living with Fatty Liver and NASH
4 years ago
Just wondering if itchy scalp/head is a common symptom?
Diagnosed overlap
mctd
. Have had itchy head for years really but not dandruff. I have read comments on internet re itchy scalp but not really sure if it’s related or not? It’s currently driving me nuts!? Is this a common complaint?! How do you treat it? Thanks all xx
Diagnosed overlap
mctd
. Have had itchy head for years really but not dandruff. I have read comments on internet re itchy scalp but not really sure if it’s related or not? It’s currently driving me nuts!? Is this a common complaint?! How do you treat it? Thanks all xx
Melarky
in
LUPUS UK
5 years ago
Coconut Oil for Coronavirus - Anti Viral Strategy?
Hi I'm w&w diagnosed 18 months ago, I'm using coconut oil due to its strong anti virus abilities. Coconut oil contains medium chain triglycerides that have strong antiviral, antifungal, and antibiotic properties, all of which can promote healing and help prevent secondary infections in wounds caused
Hi I'm w&w diagnosed 18 months ago, I'm using coconut oil due to its strong anti virus abilities. Coconut oil contains medium chain triglycerides that have strong antiviral, antifungal, and antibiotic properties, all of which can promote healing and help prevent secondary infections in wounds caused
Hidden
in
CLL Support
4 years ago
Itching
I also have
MCTD
I also have
MCTD
loretta1106
in
Hughes Syndrome APS Forum
5 years ago
A BONUS EPISODE FROM SUPPLEMENTS REVEALED
I think we often feel lost and alone when our symptoms flare and no one to turn to. This series has been comforting and offers us hope because these doctors who are also biochemists or microbiologists are trying to find ways to help us in this journey and search for our best life. https://supplementsrevealed.com
I think we often feel lost and alone when our symptoms flare and no one to turn to. This series has been comforting and offers us hope because these doctors who are also biochemists or microbiologists are trying to find ways to help us in this journey and search for our best life. https://supplementsrevealed.com
Heloise
in
Thyroid UK
4 years ago
Painful Hands
Hi all, my hands are hurting more and more (
MCTD
+ Scleroderma) can anybody recommend some painkillers please? AX
Hi all, my hands are hurting more and more (
MCTD
+ Scleroderma) can anybody recommend some painkillers please? AX
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Tooth ache, or something else?
I am wondering if maybe it is something to do with
MCTD
and not the tooth. Anyone had similar problems, or advice please. I don't know where to go for help. Most dentists have a 2 year waiting list. The community dentist is emergency only, but says the tooth is clean.
I am wondering if maybe it is something to do with
MCTD
and not the tooth. Anyone had similar problems, or advice please. I don't know where to go for help. Most dentists have a 2 year waiting list. The community dentist is emergency only, but says the tooth is clean.
Pinky1go
in
LUPUS UK
5 years ago
Plaquenil and dry mouth
Plaquenil is helping some of my lupus and
mctd
symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
Plaquenil is helping some of my lupus and
mctd
symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
5 years ago
APS and myasthenia gravis
My brother has myasthenia gravis and i have APS and
mctd
. I realized when i recently saw him that we walk alike and experience so many of the same symptoms then I started thinking that I should be tested for myasthenia gravis
My brother has myasthenia gravis and i have APS and
mctd
. I realized when i recently saw him that we walk alike and experience so many of the same symptoms then I started thinking that I should be tested for myasthenia gravis
loretta1106
in
Hughes Syndrome APS Forum
5 years ago
Scared😷
Well as usual I'm worried IV had
mctd
and pf for about 4 yr now only diagnosed last march though but they weren't sure anyway my immune system is a no go I catch everything ,can't even fight a big off with antibiotics because I'm used to them even IV.i did say to the specialist I know and you know I'm
Well as usual I'm worried IV had
mctd
and pf for about 4 yr now only diagnosed last march though but they weren't sure anyway my immune system is a no go I catch everything ,can't even fight a big off with antibiotics because I'm used to them even IV.i did say to the specialist I know and you know I'm
Dion3844o1
in
Lung Conditions Community Forum
5 years ago
Difference between a flare and just usual symptoms??
Diagnosed loosely with
MCTD
in august on MTx and Loasartin for 10 weeks. How long does a flare last as mine seems to have been since June but how do you know the difference and what would symptoms be like out of a flare?? Sorry may be a daft question but I have no comparison.
Diagnosed loosely with
MCTD
in august on MTx and Loasartin for 10 weeks. How long does a flare last as mine seems to have been since June but how do you know the difference and what would symptoms be like out of a flare?? Sorry may be a daft question but I have no comparison.
Melarky
in
NRAS
5 years ago
How do you manage with work?
He knows that I have
MCTD
, without knowing much about it.
He knows that I have
MCTD
, without knowing much about it.
Mumof2andadog
in
LUPUS UK
5 years ago
What’s the Difference Between MCT Oil and Coconut Oil?
This article was originally written by: Gavin Van De Walle, MS, RD on November 13, 2019 for Healthline.
This article explains the similarities and differences between MCT oil and coconut oil and whether one is better for reaching specific goals.
https://www.healthline.com/nutrition/mct-oil-vs-coconut-oil
This article was originally written by: Gavin Van De Walle, MS, RD on November 13, 2019 for Healthline.
This article explains the similarities and differences between MCT oil and coconut oil and whether one is better for reaching specific goals.
https://www.healthline.com/nutrition/mct-oil-vs-coconut-oil
suramo
Star
in
Diabetes India
5 years ago
Unclear diagnosis
Hi, I was diagnosed with
MCTD
in May 2018 after a couple of years of experiencing fatigue, worsening Raynauds and joint pain. I was taken off Hydroxycloroquine as it was felt I do not have inflammation in my joints. However I live each day with constant joint pain.
Hi, I was diagnosed with
MCTD
in May 2018 after a couple of years of experiencing fatigue, worsening Raynauds and joint pain. I was taken off Hydroxycloroquine as it was felt I do not have inflammation in my joints. However I live each day with constant joint pain.
Scottishstudent92
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
2nd opinion resulted in mctd
I received my 2nd diagnosis after previously been diagnosed in April 2019 wit pmr. My new diagnosis is a mixed connective tissue disease which is essentially a mix of several things. My symptoms and blood results point more to Sjögrens, lupus, and RA. I recently tapered quickly off prednisone. I continue
I received my 2nd diagnosis after previously been diagnosed in April 2019 wit pmr. My new diagnosis is a mixed connective tissue disease which is essentially a mix of several things. My symptoms and blood results point more to Sjögrens, lupus, and RA. I recently tapered quickly off prednisone. I continue
Hidden
in
PMRGCAuk
5 years ago
Pain Medication . Suffer of Lupus and APS as well as MCTD
Hi I was just wondering if anyone had a letter like the one below . I am feeling really anxious that I am going to be taken off my medication . I suffer from pain daily . My medication is the only thing that gets me through the day . I am going on Monday and don't really know what to say or do x
Hi I was just wondering if anyone had a letter like the one below . I am feeling really anxious that I am going to be taken off my medication . I suffer from pain daily . My medication is the only thing that gets me through the day . I am going on Monday and don't really know what to say or do x
Paulie303
in
LUPUS UK
5 years ago
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