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Experiences with
Mixed connective tissue disease (MCTD)
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Nose sores
I was diagnosed with Lupus SLE, Sjogren's and
MCTD
. Is it the Sjogren's that's causing this or a mixture of all? Any suggestions would be much appreciated.
I was diagnosed with Lupus SLE, Sjogren's and
MCTD
. Is it the Sjogren's that's causing this or a mixture of all? Any suggestions would be much appreciated.
Tessie62
in
NRAS
3 months ago
MCTD & UCTD
Hi there Can anyone tell me the difference between
MCTD
and UCTD? I have UCTD but cannot seem to find what
MCTD
is or what the first initial (M) stands for. Thank you in hope
Hi there Can anyone tell me the difference between
MCTD
and UCTD? I have UCTD but cannot seem to find what
MCTD
is or what the first initial (M) stands for. Thank you in hope
Bakbre
in
LUPUS UK
9 months ago
Malar Rash
I’m in the
MCTD
and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders that cause facial rashes?
I’m in the
MCTD
and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders that cause facial rashes?
Tonkie
in
LUPUS UK
1 month ago
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Should I tell my rheumatologist?
Could these new issues be linked to
MCTD
, should I tell my rheumatologist, I have an appointment with him this week ?
Could these new issues be linked to
MCTD
, should I tell my rheumatologist, I have an appointment with him this week ?
Mctd
in
LUPUS UK
2 months ago
MCTD and gastritis
Anyone else suffer with gastritis and
MCTD
? Just getting over a really bad flare up of gastritis and hadn't realised that it comes under the heading of auto immune disease, so should I mention it to Rheumy when I see her?
Anyone else suffer with gastritis and
MCTD
? Just getting over a really bad flare up of gastritis and hadn't realised that it comes under the heading of auto immune disease, so should I mention it to Rheumy when I see her?
SecondLife
in
LUPUS UK
9 months ago
Fed up with meds
Diagnosed with
MCTD
and inflammatory arthritis in 2020. Steroids were amazing but obviously can't stay on them and I think they affected my blood sugar. Methotrexate made my hair fallout. Now on mycophenolate which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4.
Diagnosed with
MCTD
and inflammatory arthritis in 2020. Steroids were amazing but obviously can't stay on them and I think they affected my blood sugar. Methotrexate made my hair fallout. Now on mycophenolate which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4.
Cactus7
in
NRAS
10 months ago
Tips for dealing with GP
I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of
MCTD
- primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice.
I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of
MCTD
- primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice.
Mctd
in
LUPUS UK
22 days ago
Anyone diagnosed with trigeminal neuralgia before being diagnosed with an autoimmune condition?
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
LouSkel
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Anyone with trigeminal neuralgia diagnosis prior to autoimmune diagnosis?
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
LouSkel
in
My MSAA Community
11 months ago
Memory issues ??
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like
MCTD
. So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues.
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like
MCTD
. So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues.
Weemillie
in
NRAS
2 months ago
new normal blood tests
For years, even after diagnosis changed to primary sjogrens, then
MCTD
/ overlap ctd my inflammation and other blood tests were elevated. Now I’m definitively diagnosed with antibody positive systemic sclerosis and get Mycophenolate, Iloprost and Losartan amongst others.
For years, even after diagnosis changed to primary sjogrens, then
MCTD
/ overlap ctd my inflammation and other blood tests were elevated. Now I’m definitively diagnosed with antibody positive systemic sclerosis and get Mycophenolate, Iloprost and Losartan amongst others.
OldTed60
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
17 days ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
17 days ago
Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
1 month ago
Rhumotolgy no more
Hi History I was diagnosed with
MCTD
. Was told it is a mild form. Lupus markers and inflammation is slightly elevated so was given hydroxychloroquine to take. Fast forward 6 months and had a bad reaction to hydroxychloroquine....extreme itching of skin. So was told to drop to 200mg.
Hi History I was diagnosed with
MCTD
. Was told it is a mild form. Lupus markers and inflammation is slightly elevated so was given hydroxychloroquine to take. Fast forward 6 months and had a bad reaction to hydroxychloroquine....extreme itching of skin. So was told to drop to 200mg.
Awwy
in
LUPUS UK
1 year ago
Frustrated
Last year I was finally diagnosed with
MCTD
and Fybromyalgia. It was such a relief ar first because I had thought I was losing my mind...
Last year I was finally diagnosed with
MCTD
and Fybromyalgia. It was such a relief ar first because I had thought I was losing my mind...
Mctd
in
LUPUS UK
1 year ago
Lupus or Mixed Connective Tissue disease? 🤔
Lupus or
MCTD
, the outcome is the same……. just rubbish. But we all know only too well about that. Hope you all have a peaceful and enjoyable Christmas 🎄and a happy and as healthy as possible 2023. Sue x
Lupus or
MCTD
, the outcome is the same……. just rubbish. But we all know only too well about that. Hope you all have a peaceful and enjoyable Christmas 🎄and a happy and as healthy as possible 2023. Sue x
Susieliz39
in
LUPUS UK
1 year ago
MCT Oil
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
Hidden
in
Thyroid UK
8 months ago
Belimimab and mumps
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
One of my nephews has mumps, I have
MCTD
, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as numerous other meds. I just don't want to jeopardise my Belimimab infusions as they seem to be starting to have a positive impact.
solo99
in
LUPUS UK
1 year ago
confused
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
I also have
MCTD
, Rheumatoid arthritis, I’ve been anemic my whole life . I had small bowel blockage in 2017 after a very botched prolapse surgery almost died… again Was septic had multi organ failure in 2009.
Chimama
in
Kidney Disease
1 year ago
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