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Experiences with
Mixed connective tissue disease (MCTD)
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MCTD diagnosis, finally!
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
MauveMouse
in
Thyroid UK
2 months ago
High cholesterol and high TSH with mixed connective tissue disease
When I questioned an NHS endo about the relationship between the high cholesterol and
MCTD
, he dismissed it completely.
When I questioned an NHS endo about the relationship between the high cholesterol and
MCTD
, he dismissed it completely.
MauveMouse
in
LUPUS UK
2 months ago
Having chest pain
Still going through the phase of being diagnosed even though I do have a current diagnosis of
mctd
. But my Ssa Ro52 was positive and Ana 1:640 nucleolar and symptoms lean more toward Sjögren and myositis. I will be going to a rheumatology center soon.
Still going through the phase of being diagnosed even though I do have a current diagnosis of
mctd
. But my Ssa Ro52 was positive and Ana 1:640 nucleolar and symptoms lean more toward Sjögren and myositis. I will be going to a rheumatology center soon.
Jadaboo4
in
Myositis UK
2 months ago
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Malar Rash
I’m in the
MCTD
and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders that cause facial rashes?
I’m in the
MCTD
and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders that cause facial rashes?
Tonkie
in
LUPUS UK
5 months ago
Nose sores
I was diagnosed with Lupus SLE, Sjogren's and
MCTD
. Is it the Sjogren's that's causing this or a mixture of all? Any suggestions would be much appreciated.
I was diagnosed with Lupus SLE, Sjogren's and
MCTD
. Is it the Sjogren's that's causing this or a mixture of all? Any suggestions would be much appreciated.
Tessie62
in
NRAS
7 months ago
Should I tell my rheumatologist?
Could these new issues be linked to
MCTD
, should I tell my rheumatologist, I have an appointment with him this week ?
Could these new issues be linked to
MCTD
, should I tell my rheumatologist, I have an appointment with him this week ?
Mctd
in
LUPUS UK
6 months ago
MCTD & UCTD
Hi there Can anyone tell me the difference between
MCTD
and UCTD? I have UCTD but cannot seem to find what
MCTD
is or what the first initial (M) stands for. Thank you in hope
Hi there Can anyone tell me the difference between
MCTD
and UCTD? I have UCTD but cannot seem to find what
MCTD
is or what the first initial (M) stands for. Thank you in hope
Bakbre
in
LUPUS UK
1 year ago
following ophthalmology
Finally I got to see ophthalmologist last week who again thinks I have myasthenia or myasthenia syndrome with other autoimmune possibly
mctd
.(on first impression).
Finally I got to see ophthalmologist last week who again thinks I have myasthenia or myasthenia syndrome with other autoimmune possibly
mctd
.(on first impression).
stiff19
in
LUPUS UK
2 months ago
right side face droop
It has come to light that I was initially given hydroxy to see if helped with symptoms of then which it did (as did steroids at height of bad health) as suspected
mctd
lupus aps. As they helped and told to discontinue with progression I wonder if anyone can shed any light.
It has come to light that I was initially given hydroxy to see if helped with symptoms of then which it did (as did steroids at height of bad health) as suspected
mctd
lupus aps. As they helped and told to discontinue with progression I wonder if anyone can shed any light.
stiff19
in
Hughes Syndrome APS Forum
3 months ago
hydroxychloroquine?
Been diagnosed with UCTD/ SLE by rheumatology whereas immunology as
MCTD
. waiting to hear from dermatology as they will probably be the ones to determine the final diagnosis. In the meantime on 200mg hydroxychloroquine twice a day to manage flares.
Been diagnosed with UCTD/ SLE by rheumatology whereas immunology as
MCTD
. waiting to hear from dermatology as they will probably be the ones to determine the final diagnosis. In the meantime on 200mg hydroxychloroquine twice a day to manage flares.
Severancered9
in
LUPUS UK
4 months ago
MCTD and gastritis
Anyone else suffer with gastritis and
MCTD
? Just getting over a really bad flare up of gastritis and hadn't realised that it comes under the heading of auto immune disease, so should I mention it to Rheumy when I see her?
Anyone else suffer with gastritis and
MCTD
? Just getting over a really bad flare up of gastritis and hadn't realised that it comes under the heading of auto immune disease, so should I mention it to Rheumy when I see her?
SecondLife
in
LUPUS UK
1 year ago
Tips for dealing with GP
I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of
MCTD
- primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice.
I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of
MCTD
- primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice.
Mctd
in
LUPUS UK
4 months ago
A small journey... and a tip to share
My ANA and dsDNA are the ones that the Neuro picked up on and has referred me to Rheumatology as he thinks I have
mCTD
(lupus plus other presents). Anyway that trip is still to come. As part of my flare, I also lost the ability to fall and stay asleep.
My ANA and dsDNA are the ones that the Neuro picked up on and has referred me to Rheumatology as he thinks I have
mCTD
(lupus plus other presents). Anyway that trip is still to come. As part of my flare, I also lost the ability to fall and stay asleep.
ns01
in
LUPUS UK
3 months ago
Memory issues ??
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like
MCTD
. So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues.
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like
MCTD
. So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues.
Weemillie
in
NRAS
6 months ago
Fed up with meds
Diagnosed with
MCTD
and inflammatory arthritis in 2020. Steroids were amazing but obviously can't stay on them and I think they affected my blood sugar. Methotrexate made my hair fallout. Now on mycophenolate which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4.
Diagnosed with
MCTD
and inflammatory arthritis in 2020. Steroids were amazing but obviously can't stay on them and I think they affected my blood sugar. Methotrexate made my hair fallout. Now on mycophenolate which keeps causing my wcc to drop. I am still taking them at the min with a wwc of 3.4.
Cactus7
in
NRAS
1 year ago
Your best adjunct therapy pick
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
Dabaa
in
Cure Parkinson's
3 months ago
Anyone diagnosed with trigeminal neuralgia before being diagnosed with an autoimmune condition?
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
LouSkel
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Anyone with trigeminal neuralgia diagnosis prior to autoimmune diagnosis?
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
I have heard from a USA neurologist that scleroderma, sjogrens, RA,
MCTD
and lupus can attack the trigeminal nerve in the face cause this trigeminal neuralgia pain - especially in young patients but there is not much talk of it in the UK.
LouSkel
in
My MSAA Community
1 year ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
4 months ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
4 months ago
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