Experiences with

Mixed connective tissue disease (MCTD)

Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago. Agreed with GP after asking about crutches to take short course of steroids as instructed by rheumatology. They worked within a day. Had rheumatology appointment, referred to cMATS again, appointment tomorrow

Hi all - I posted this on NRAS website and loads of helpful replies. As lupus is part of my diagnosis I thought I would post here too: Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago. Agreed with GP after asking about crutches to take short course of steroids

And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?

Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing

When I questioned an NHS endo about the relationship between the high cholesterol and MCTD, he dismissed it completely.

Could this be related to my diagnosis of Lupus, Sjogren's, MCTD, Interstitial lung disease, or even Mobitz I or II?

hi, I have MCTD with secondary fibromyalgia. I have had numerous sick absences from my work. I have had to work part time since 2014 due to managing health/conditions and life. my new work manager has taken me down the attendance to work policy. Currently I am at stage one.

Still going through the phase of being diagnosed even though I do have a current diagnosis of mctd. But my Ssa Ro52 was positive and Ana 1:640 nucleolar and symptoms lean more toward Sjögren and myositis. I will be going to a rheumatology center soon.

I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders that cause facial rashes?

I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it the Sjogren's that's causing this or a mixture of all? Any suggestions would be much appreciated.

Could these new issues be linked to MCTD, should I tell my rheumatologist, I have an appointment with him this week ?

Finally I got to see ophthalmologist last week who again thinks I have myasthenia or myasthenia syndrome with other autoimmune possibly mctd.(on first impression).

It has come to light that I was initially given hydroxy to see if helped with symptoms of then which it did (as did steroids at height of bad health) as suspected mctd lupus aps. As they helped and told to discontinue with progression I wonder if anyone can shed any light.

Been diagnosed with UCTD/ SLE by rheumatology whereas immunology as MCTD. waiting to hear from dermatology as they will probably be the ones to determine the final diagnosis. In the meantime on 200mg hydroxychloroquine twice a day to manage flares.

My ANA and dsDNA are the ones that the Neuro picked up on and has referred me to Rheumatology as he thinks I have mCTD (lupus plus other presents). Anyway that trip is still to come. As part of my flare, I also lost the ability to fall and stay asleep.

I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of MCTD - primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice.

Hi there Can anyone tell me the difference between MCTD and UCTD? I have UCTD but cannot seem to find what MCTD is or what the first initial (M) stands for. Thank you in hope

The purpose of this post is two fold 1 I want to demonstrate, using the example below, that members are empowered to take even the most complex scientific studies and use Google's Notebooklm to convert them into easy to understand language. 2. In the process, provide some insight into Lactate

Hi everyone. I hope you are having a blessed day... I am hoping those with much more experience and research under their belt can share their thoughts or point to relevant reference material... I am currently adhering to 5day/week 18+hour of nightly fast. I eat last meal around 5-6 PM. In the morning

Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues.